Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insides In An Uproar...

ciavyn

By ciavyn
in Coping with Celiac Disease

Recommended Posts

ciavyn Contributor
ciavyn
Posted

So I'll throw this out there because...well, let's face it, getting glutened is annoying. I've found that when I'm glutened, it takes about three weeks or so for my system to even out again. This last time, I ate ONE Nacho Dorito chip, before thinking to check the back of the bag. Because I can have other Dorito flavors, it didn't occur to me that they could be a problem. Of course, I rarely indulge in junk food, so it would figure that the one time I do, I screw it up!

Anyway, my main symptoms have mostly been GI ones. Specifically, the most horrific gas you can imagine. It would help if I didn't work in a tiny office! So I'm miserable AND embarrassed.

My question: does this sound pretty normal? Anyone else in a similar boat? I guess this misery would like some company. Any suggestions on how to counteract the gas? I've tried over the counter stuff without much success.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

I don't get gassy, but I do feel that my insides are in an uproar. It takes me about two weeks to feel close to normal. I think you will find you are not alone in either symptoms or time frame here.

michelley65 Rookie
michelley65
Posted

I feel for you....really...I do!I have the exact same problem!I havent been diagnosed as a celiac..but I definately have gluten sensitivity.The doctor is sending me for more bloodwork to test for celiac again.Anyway,my main problem is bloating and gas..and my insides grumble around and make nioses like I am passing gas..when Im not.I worked at a small office for two weeks...and quit,one reason was because it was so quiet there,and I was embarrased they might hear my stomach.I hate it..Im so disqusted with this whole thing!Ive been almost gluten-free all week,and do feel better,but its a diet thats so frustrating!

rtrheli Newbie
rtrheli
Posted

Lately I have been getting gas and bloating from everything I eat and I have been gluten free for about 6 months. I started taking charcoal capsules last week and they actually take the painful pressure away. My stomach still rumbles and makes noises, but luckily our office is bigger. I guess I am still healing and hope someday this bloating with everything I eat will go away.

Roda Rising Star
Roda
Posted

I'm not saying that you might not have other intolerences, but for a more simplified answer you could be just having "gas" because you have been eating more fiber rich foods. If I sat and ate a bunch of beans I definately would get gassy and I'm not sensitive. Add more fiber in gradually so your body can get used to it. It could just be your body reacting to the accidental gluten.

jerseyangel Proficient
jerseyangel
Posted

So I'll throw this out there because...well, let's face it, getting glutened is annoying. I've found that when I'm glutened, it takes about three weeks or so for my system to even out again. This last time, I ate ONE Nacho Dorito chip, before thinking to check the back of the bag. Because I can have other Dorito flavors, it didn't occur to me that they could be a problem. Of course, I rarely indulge in junk food, so it would figure that the one time I do, I screw it up!

Anyway, my main symptoms have mostly been GI ones. Specifically, the most horrific gas you can imagine. It would help if I didn't work in a tiny office! So I'm miserable AND embarrassed.

My question: does this sound pretty normal? Anyone else in a similar boat? I guess this misery would like some company. Any suggestions on how to counteract the gas? I've tried over the counter stuff without much success.

Sounds pretty normal to me.....I don't have problems with gas much at all until I get glutened. Then, it's frequent and embarassing. It's usually the first sign for me that something is amiss.

I haven't found much to counteract it once it gets going, but eating bland things like potato, banana, etc help make it easier to be around others if you get my drift.....

ciavyn Contributor
ciavyn
Posted
  • Author

Thank you for the feedback. It definitely, ah, puts life in perspective a bit when you are dodging people in the grocery store and hoping to get out of the aisle before everyone figures out it's you! :lol: I can't wait to get my system back to normal!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


michelley65 Rookie
michelley65
Posted

Thank you for the feedback. It definitely, ah, puts life in perspective a bit when you are dodging people in the grocery store and hoping to get out of the aisle before everyone figures out it's you! :lol: I can't wait to get my system back to normal!!

LOL...thats too funny!I know exactly what you are saying,though!By the way....Im from Pottsville,Pa..high neighbor!

ciavyn Contributor
ciavyn
Posted
  • Author

LOL...thats too funny!I know exactly what you are saying,though!By the way....Im from Pottsville,Pa..high neighbor!

I definitely know Pottsvile! Been there many times. Welcome!

michelley65 Rookie
michelley65
Posted

I definitely know Pottsvile! Been there many times. Welcome!

Thanks!Lets hope that we can soon get our digestive track back on the right track...Im so tired of feeling this way.Trying to decide if I should have my blood drawn tommorow for the test for celiac...Ive been trying to aviod gluten for a week and a half(not totally off it yet)..I hope they can get an accurate reading if I go tommorow.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg). Both are gluten free and free of other allergens. I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25". It's gluten and allergen free and made in the USA. It's a powder form of Vitamin A. ...
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      results from 13 day gluten challenge - does this mean I can't have celiac?

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      results from 13 day gluten challenge - does this mean I can't have celiac?

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding. I will have my first appt with a GI dr on March 4th I will not eat gluten again - at least not on purpose ...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
    5. trents
      - trents replied to Jane07's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free Yogurt suggest

      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free. Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,366
    • Most Online (within 30 mins)
      7,748
    caroljben
    Newest Member
    caroljben
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
    • trents
      Gluten free Yogurt suggest

      By trents · Posted

      I would not think store bought yogurt would contain gluten unless it possibly could be through an added flavoring or coloring ingredient. Otherwise, it should be naturally gluten free.  Keep in mind that some companies are capitalizing on people's fears and ignorance (nothing personal intended) by labeling foods "gluten free" that are just that way by the nature of what they are. They are hoping to create a marketing edge over their competitors by adding "gluten free" because they know it may catch attention of those new to the celiac/gluten sensitivity experience without having to cost them anything in the way of changing their manufacturing process or doing testing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.