Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ferritin Levels Vs. Rbc Count


Laura9

Recommended Posts

Laura9 Rookie

I have been gluten-free for 2 years now and have frequently experienced symptoms of iron deficiency, mostly shortness of breath and fatigue. My doctor only orders the RBC count (hemoglobin, hemocritin, platelet count, etc...) These levels all come back normal. Are these tests alone sufficient in ruling out iron deficiency? Is a ferritin or iron blood test different than the RBC count? Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

ferritin tests how much iron you have stored. Your body will rob all other organs of iron in order to continue making hemoglobin. If your stores of ferritin are depleted and you still aren't absorbing enough iron you may experience a precipitous drop in your hematocrit.

snapdragon Newbie

Your haemoglobin levels are not an accurate indication of your ferritin levels (stored iron). My haemoglobin levels (last time I had them checked) were 'on the low side but not too bad' whereas my ferritin levels were virtually non existant.

Roda Rising Star

I was symptomatic with a ferritin level at 4. My hemoglogin and hematocrit most of the time were fine. I had shortness of breath and tachycardia and would fatigue easily. I have raised it up and I can tell a difference. I quit taking the iron for awhile, but I'm back on it so I hope to get it up more.

Laura9 Rookie

Thank you everyone for your replies. I plan to see my doctor and get a ferritin test.

gf-soph Apprentice

I would recommend getting full iron studies (iron, ferratin, saturation and TIBC), B12 and folate tested, as they can all cause anaemia if they are too low.

Drs can use the full blood count because the average size of the blood cells can indicate different types of deficiency. From memory B12 deficiency can make the red cells larger. The problem is that if you have multiple deficiencies they can be normal size! In someone with celiac or gluten intolerance I really think a dr needs to test the levels in a more thorough way.

I have had chronic B12 and iron deficiency, and my full blood count was pretty much normal, despite my B12 sometimes getting dangerously low, and my iron never being adequate. I shudder to think how bad it could have got if they tested those levels only and sent me away.

It is always a good idea to get print outs of your blood results, as the 'normal' ranges are not always adequate, especially with B12.

lizzers Newbie

My family has a bunch of weird diseases. My dad has the opposite problem - haemochromotosis - too much iron in the blood. When he gets his bloodwork done, he gets ferritin, total iron binding capacity (TIBC) and % saturation (I'm not sure if % saturation is a number worked out between ferritin and the TIBC, or if it is a separate test). The stupid thing is that you could have a low circulating iron count, and still have a high stored iron count, in which case you wouldn't want to be taking any iron at all as it could do more damage.

RBC count really has nothing to do with iron. Hemoglobin is a good one to get tested too - this is what they use if you would be donating blood to make sure you were fit for donation.

So, yup, I concur with all the rest - get a full iron panel - B12/folate, etc etc. (stick Vit D in there too). Then you can make a better estimation...

I have been gluten-free for 2 years now and have frequently experienced symptoms of iron deficiency, mostly shortness of breath and fatigue. My doctor only orders the RBC count (hemoglobin, hemocritin, platelet count, etc...) These levels all come back normal. Are these tests alone sufficient in ruling out iron deficiency? Is a ferritin or iron blood test different than the RBC count? Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,929
    • Most Online (within 30 mins)
      7,748

    Mike Rowicki
    Newest Member
    Mike Rowicki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.