Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Never Ending Bloating -


pufffee

Recommended Posts

pufffee Apprentice

Hi

I got officially diagnosed two weeks ago. Second Endo and all positive blood work. My mother has it as well.

I have been doing great on diet and have a lot of help from this site and of course my mother. I have gurgling noises and what seems to be stomach acid issues but never get heartburn ever. I was given Bentyl and only take one pill three times a day. This comes from months of taking pepermint, Ginger, etc with no help. Still, this is not working either, but it has only been two weeks. BUT I have been bloated for over a year and half. Now that I am officially diagnosed and on diet, will this ever go away? I have lost about 7lbs over last 6 months but belly looks like I am pregnant or have little bowling ball in stomach.( i am 6"3 190lbs . I was told I have lactose intolerence but drink milk and eat cheese in small doses and see feel no reactions. Also I have given up all Lactose containing products for a month at a time and still bloated. Everyone on here gets the Big D, tired constantly, and have muscle issues during recovery and prior to diagnoses. I will admit I am tired a lot but muscles are fine and all vitamin levels are fine.

Anyone with similar issues or advise with bloating. I have come so far with this but can't get this one thing fixed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Are you taking probiotics?

Have you looked into any other foods which may tend to bother you?

pufffee Apprentice

Are you taking probiotics?

Have you looked into any other foods which may tend to bother you?

I have been eating yogurt. Yoplait gluten-free yogurt for the first time in my life so that is my only probiotic I take. I have taken then in the past as well with no luck. Maybe try again? Rice Works chips bother my stomach alot so no more of those. But other then that not much really bothers me. I am just constantly bloated

Wolicki Enthusiast

I am thinking it's secondary food intolerances. Why not try an elimination diet? The common culprits for Celiacs are dairy, rice, corn, soy, nighshades and eggs.

bluebonnet Explorer

i've dealt with bloating and i'm 3 months into gluten free. i started feeling less bloated after about 3 to 4 weeks. somewhere in week 5 or 6 i accidentally ate it somewhere though and my stomach bloated out 3" and that lasted for 4 days!! crazy.

i also drink a lot of water and take hikes and walk a lot so that makes me feel better too. i try to make ginger tea often with hopes that it will ease some discomfort but i think that ends up being more pyschological. :)

it will get better ... just hang in there!

pufffee Apprentice

i've dealt with bloating and i'm 3 months into gluten free. i started feeling less bloated after about 3 to 4 weeks. somewhere in week 5 or 6 i accidentally ate it somewhere though and my stomach bloated out 3" and that lasted for 4 days!! crazy.

i also drink a lot of water and take hikes and walk a lot so that makes me feel better too. i try to make ginger tea often with hopes that it will ease some discomfort but i think that ends up being more pyschological. :)

it will get better ... just hang in there!

Thank you! I hope it does get better it is a dumb problem to have lol

DonaldandAlanda Evans Apprentice

I have been eating yogurt. Yoplait gluten-free yogurt for the first time in my life so that is my only probiotic I take. I have taken then in the past as well with no luck. Maybe try again? Rice Works chips bother my stomach alot so no more of those. But other then that not much really bothers me. I am just constantly bloated

This could be part of your problem if your lactose intolerant.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Puffee,

It seems like you really just got started on the gluten-free diet. It's not a light switch where you can just throw it and you get better instantly. It takes time. Your gut has a microsystem of bacteria that changes based on what you eat. Some bacteria do better with the gluten and others do better without it. So you can go through a re-balancing period at first and that can last for a while. A couple things that might help are getting rid of all diary, and sugar in your diet. From what I can see, Bentyl has lactose in it, which can be a problem at first.

Being you are new to the diet, you have a learning curve to master. So be a little patient with yourself as you go along, cause it can take a while.

The easiest way to start the diet is to stick with all home cooked meals made from whole ingredients. NO processed foods or spice blends, or multi-vitamins with tons of ingredients in tiny type. Remember everything you eat or drink needs to be gluten-free.

After you have been at a a few months, you could try an elimination diet if things don't improve.

pufffee Apprentice

Hi Puffee,

It seems like you really just got started on the gluten-free diet. It's not a light switch where you can just throw it and you get better instantly. It takes time. Your gut has a microsystem of bacteria that changes based on what you eat. Some bacteria do better with the gluten and others do better without it. So you can go through a re-balancing period at first and that can last for a while. A couple things that might help are getting rid of all diary, and sugar in your diet. From what I can see, Bentyl has lactose in it, which can be a problem at first.

Being you are new to the diet, you have a learning curve to master. So be a little patient with yourself as you go along, cause it can take a while.

The easiest way to start the diet is to stick with all home cooked meals made from whole ingredients. NO processed foods or spice blends, or multi-vitamins with tons of ingredients in tiny type. Remember everything you eat or drink needs to be gluten-free.

After you have been at a a few months, you could try an elimination diet if things don't improve.

Thank you, this helps! I am gonna look into cutting as much of lactose out of diet as possible. I do have handle though on what has gluten and what does not but need to focus a bit on lactose more I guess

GFinDC Veteran

You are very welcome Puffee. Lactose iintolerance is common with us because the lactase enzyme that digests milk sugar( lactose) is produced by the villi.

The villi lining the small instestine get damaged by the antibodies to gluten, and then no more lactase enzyme. The nice thing is, some times after people have been gluten free a while and healed up, the villi start producing lactase again. So, you might want to try it every 4 months or so and see if you can eat dairy again.

For me it took 2 years on the diet to get back to eating dairy. But I had an intolerance to soy that was causing me lots of problems. When I eliminated soy everything started getting much better.

CecilyF Rookie

Puffee, I just posted something about this same problem! Pregnant-looking, severely bloated for over a year and a half. Cannot figure out what's causing it. Some days are better, but the bloating is taking over my life. I get very fatigued, sleepy, nauseated and unable to function. I cannot wear my clothes unless they have a stretchy waistband because I never know when it's going to swell.

My food intolerances: wheat, soy, peanuts and aspartame

Anyone else have a similar story or any advice for us?

Tummy Frustration Rookie

Puffee, I just posted something about this same problem! Pregnant-looking, severely bloated for over a year and a half. Cannot figure out what's causing it. Some days are better, but the bloating is taking over my life. I get very fatigued, sleepy, nauseated and unable to function. I cannot wear my clothes unless they have a stretchy waistband because I never know when it's going to swell.

My food intolerances: wheat, soy, peanuts and aspartame

Anyone else have a similar story or any advice for us?

I have the same problem too with the depressing bloated belly that looks pregnant! It is sooooooooo extremely frustrating to only see my stomach flat and "normal" maybe once a month--it sucks that bloated tends to be my normal belly that I forget what it's really supposed to look like. I feel super uncomfortable with certain shirts/jeans b/c of it also. I'm attempting to be strict with no gluten--have not been diagnosed with anything besides IBS, hiatal hernia, and gastritis.

Ahorsesoul Enthusiast

BUT I have been bloated for over a year and half. Now that I am officially diagnosed and on diet, will this ever go away? I have lost about 7lbs over last 6 months but belly looks like I am pregnant or have little bowling ball in stomach.I was told I have lactose intolerence but drink milk and eat cheese in small doses and see feel no reactions.

You have no reaction? But you are bloated? Is bloating not a reaction?

pufffee Apprentice

You have no reaction? But you are bloated? Is bloating not a reaction?

I don't consider it a reaction because I have given up both lactose and gluten for a month at a time and still bloated everysingle day and when I drink milk or eat icecream, nothing new happens I was already bloated. I will give it up again now that I am strictly gluten-free now.

newgfcali Rookie

I'm with ahorsesoul... bloating IS a reaction, so maybe there is another food you're sensitive to. Try deep-sixing the soy and yeast and see if that helps. If all else fails, you can do an extreme elimination diet, starting with very simple things like lamb and pears, then start adding one thing at a time. It takes a really long time, but at least you'll know exactly what's getting you.

KateGrace Newbie

As soon as I eat anything disagreeable, I bloat up (and get constipated). I feel your pain!

Yes, an elimination diet is the way to go. It helped me tremendously. Your body IS reacting to something; keeping a food diary will help you pinpoint what it is.

Experimenting in this way helped me discover that, besides no gluten, my body developed "issues" with dairy, eggs, soy, corn, and beans. And grains...I can only handle rice-cakes or plain white rice (it's very refined and thus easy to digest, but oh, I miss my wild rice!).

Most surprising discovery? My bloating was down 90% (after six weeks gluten-free), but when I stopped eating meat for a few days (by chance), my bloating went down 100%! My cheekbones popped, I suddenly had abs...it was unbelievable.

I added meat back in the next day, and within hours,my face softened up a bit and I got a little constipated.

I love meat :( But it's probably too much for my body to handle right now.

I'm very happy with my current diet, which is very restrictive but makes me feel OH so good. I wish you the same, and good luck with being a detective!

tomtom009 Apprentice

I've had nothing but bloating for 6-8 years! So I'm with you on this one. I've been gluten free for about month now and they bloating has decreased considerably. At about the 3 week mark things started to really settle down, although I wouldn't say it's 100% gone. Just stick it out, track your foods and know there is a light at the end of the tunnel. It's always darkest before dawn.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.