Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Delayed Food Reactions


Leper Messiah

Recommended Posts

Leper Messiah Apprentice

Hi,

Anyone experience (or know that they do!) delayed symptoms for any of their intolerances. Generally for me my symptoms are extreme tiredness and hunger straight after eating as well as a blown up stomach but like today I'm fairly sure I haven't had any gluten, accidental or otherwise yet my symptoms are quite severe.

Just made me think it could be a delayed reaction to something I ate at the weekend, not gluten but I accidentally had a lot of food that sneakily had milk powder in it which I didn't notice until after I'd eat quite a bit of it and I'm pretty sure milk is a problem food for me.

Any experiences/thoughts on delayed onset food allergies?

What a pain in the @ss these reactions are...oh to eat like a 'normal' person.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor

Hi,

Anyone experience (or know that they do!) delayed symptoms for any of their intolerances.

Yup - dairy and soy reliably give me a rash that sets in about 36 hours after I eat them.

Jeanne

ravenwoodglass Mentor

My neuro symptoms and stomach growling happen pretty quick. My GI issues, DH breakout and muscle and joint pain don't normally hit until 3 or 4 days later. My allergist said this was normal for intolerances and that for some the reaction can take up to a week.

hypersof Apprentice

well, I'm still fairly new to all that (1 month gluten-free),

but it seems that for me, the GI symptoms hit around a half day after accidental "glutening", and the rest of the symptoms (brain fog, rash...) arrive a couple days later...think I got glutened about 6 days ago, my digestive tract is getting back to normal (BM need time but insane bloating was gone pretty quick), and the fatigue and rash are just begginning to slow down now...

I hope this is all going to be behind me very soon, & hope the same for you!!

Sophie

Leper Messiah Apprentice

Just out of interest when you start on the gluten free diet, how far back does one glutening put you?

I've gone gluten, soy and dairy free and think I've just about found a daily diet that I can stick to but fearful that because the person I live with isn't gluten free that a crumb or two may have sneaked under the radar onto my plate/food and into my stomach.

bridgetm Enthusiast

I felt minor symptoms immediately after that pie incident on Sunday, but I didn't start to get severe abdominal pain until late last night and this morning and it's steadily getting worse. It doesn't help that I crash-tested a few questionable things, such as a single Quaker Quake. I've learned my lesson, but I've just gotten so tired of reading labels and planning every bite.

Relatively on topic... Anyone have any post-glutening tips? Do you simplify your diet as much as possible your system returns to "normal"? Focus more on hydration? Or just make sure you don't get glutened again so as not to compound the symptoms?

Wolicki Enthusiast

Simple foods, lots of water, no dairy and probiotics. There is anecdotal evidence that LGlutamine helps, but I have not tried it yet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Leper Messiah Apprentice

Why do you say no probiotics?

jackay Enthusiast

Why do you say no probiotics?

I'm sure she means simple food, lots of water, probiotics and no dairy.

bridgetm Enthusiast

Simple foods, lots of water, no dairy and probiotics. There is anecdotal evidence that LGlutamine helps, but I have not tried it yet.

I've been drinking lots of water today and eating the basics (fresh fruits, veggies, some lean meat, peanut butter, a potato and some gluten free banana bread). I've noticed some definite improvement though the pain is worst within an hour of eating; the general abdominal pain is now more localized. It's bothering me, but at least I'm not curled up in a ball.

I've been avoiding dairy for over a week and started taking a multi-vitamin. Any probiotic suggestions?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.