Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Gain


lbv6684

Recommended Posts

lbv6684 Rookie

How many of you actually gained weight after going on a gluten-free diet? I am struggling with this. I am overweight, could use to loose about 50 pounds or so to reach what I consider a healthy weight. Before I was diagnosed with celiac, I was doing well, loosing weight slowly with Weight Watchers, and working out. I was diagnosed 8 weeks ago, and have fallen off of the weight loss wagon. I just can't get back on. I have gained about 5 pound since starting. I need to get back into the swing of things but can't get my mind around how to do this. Does anyone else feel this way? I get very discouraged when I see posts that say "I have lost 30 pounds since going on this diet".... :angry: I feel like ALL food is the enemy right now, but I can't seem to stay away!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I am with you, but I don't know the answer. I was seriously emaciated before going gluten free last summer, and now I am plump. This is while working out like a dog and watching every bite, never consuming more than 1500 calories a day. I just don't get it. I don't eat any processed food, rarely grains. Lots of lettuce :(

I ate and ate and ate before I was diagnosed, just trying to put on some weight, and since diagnosis have gained so much that my weight has doubled. My doctor keeps saying give it time, your body was starving and is holding onto everything. He says once it realizes that it will not be starved again, then the weight will come off. Well, it's been almost 9 months. Will someone please tell my body it's not starving???

Sorry this turned into a rant. But I do understand. My thyroid went wonky, and I take Levoxyl for it, but the Endo says it's not enough to cause weight gain.

If anyone has answers, lbv and I would love to hear!

luvs2eat Collaborator

I've told my tale of weight woe before, but I was diagnosed very quickly... after only a few months of symptoms. In the next year, I put on about 30 lbs... happily filling up on all the foods I COULD have to make up for the foods I could no longer have.

I do know that a lot of gluten free foods (rice pastas, breads) have a higher glycemic index and often more calories per serving that a lot of gluten foods. And there are no "diet" breads, etc. for us.

I've had to cut way back on obvious carbs... breads and pastas... and I eat mostly lean meats, veggies, fruits... low fat too. I've lost almost 20 lbs. in about 3 months w/ another 20 or so to go!

Tehana Newbie

I was always thin built until I started becoming very ill, I went from about 105lbs to about 135 in a few months, but much of that was water bloat, my stomach was swollen. When I went gluten-free I lost much of that water bloat and slowly began to put on healthy weight. I'm still between 130lbs and 135, but its much different weight than I had before. I've been hoping to loose a bit of this weight, as I'm quite short and the weight packed on a little bit too quick for my liking, but I haven't had any luck.

Nor-TX Enthusiast

I have also found that I have gained a little weight. I've gained 5 lbs. since October, and couldn't figure why. I guess I am eating many more carbs than before... and guess where they are settling? Yes.. right around my middle...

lbv6684 Rookie

Interstingly enough, I had a GI appt today, my first since going gluten free 2 months ago. When I went gluten-free he told me that many people gain weight, and asked today about it, I have only gained a few pounds, but he actually said that was a good sign (easy for him to say, skinny man that he is!). He has had a hard time actually dx me as I have a positive biopsy and negative blood work and so going gluten free was the test to see if celiac was the dx. Gaining weight to him means that I likely had some intestinal damage before, which meant that I wasn't absorbing nutrients as I should be. I was working on loosing weight before and was thrilled that it was coming off easily etc, but now that I think about it, this may have been because I was sick and not really because I was following Weight Watchers (darn it!) Now that my intestines are healing, gaining weight makes sense because my intestines are doing what they are designed to do- abosorb nutrients. Sort of a double edge sword if you think about it. At least it made me feel better about the fact that I am healing! Yay! Now I need to get to the point where I give up the gluten-free cookies, cakes and breads that I have worked so hard to learn how to make <_<

WheatChef Apprentice

Going on a restrictive diet can have many unintended consequences. What sort of breakfast are you eating on a regular basis?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KateGrace Newbie

I lost weight on this diet, mainly because I had to give up dairy as well as gluten. (I used to overeat on both.)

I also don't eat any of the gluten-free packaged foods because I'm still healing, which is probably helpful.

And ever since my (ex) favorite chocolate started included dairy and possibly wheat (damn you, Green & Blacks!), I've stopped eating chocolate. So another food addiction--gone.

Now I'm 5'8 and weigh 120 lbs, like I did in high school, and am no longer plagued by cravings. I don't believe in "fast" metabolism or "slow" metabolism, I just believe in overeating! And I don't blame myself or anyone for lack of "willpower," I blame our food for being so horribly refined and loaded with calories. Staying away from packaged food definitely helps in that regard, because they are usually filled with "taste-enhancers" (like MSG, usually disguised as "natural flavoring") that make you overeat. I think they should be outlawed.

My doctor keeps saying give it time, your body was starving and is holding onto everything.

This is definitely valid. What I have found that works--it may sound counterintuitive--is to supply your body with lots of "good," healthy fats. Olive oil and avocados, for example. They will not only fill you up for hours (that's important), but encourage your body to get rid of its own fat deposits.

I'm a poor grad student, but I manage to spend $14 on my olive oil (Napa Valley organic) and just drench my daily salad with it. It's very satisfying and I don't get hungry for hours.

In turn, I don't spend money on gluten-free crackers, pasta, cookies, and so on. I intuitively know that I would overeat on those. Instead, I snack on fruits, salads, and eat steamed veggies for dinner. Every few days I'll get some protein in there, too. Eating such whole foods has helped me to determine what "hunger" is versus "craving."

Another thing I've learned is to eat my biggest meal early in the day. Our metabolism peaks at noon and then tapers off. Also, if you give your body time to digest its last meal in the evening, then you'll burn more fat at night.

I tend to leave such long posts, sorry, I'll shut up now. :)

Reba32 Rookie

My new favourite chocolate is Endangered Species 80% cocoa :) Certified gluten free, kosher and vegan! ;)

Gluten free alternative foods are incredibly high in refined carbs. If you stay away from manufactured and processed foods, stick with whole, natural foods, include healthy fats, protiens, and lots of veggies, you'll feel better, and will lose weight.

For baking, switch to coconut or almond flour rather than rice or potato flour. Switch to stevia for a sweetener rather than sugar or honey.

Try The New Atkins. It is awesome, very easy to follow, and the early phases are naturally gluten free. Once you get to the grains rung, you can just skip those recipes. There are lots of alternatives, and along the way, you learn what and how to eat for a healthy lifestyle, not just to lose weight.

(and no, I don't work for Atkins!)

lbv6684 Rookie

The strange part for me was that prior to being diagnosed, I was already reading lables, eating less processed things, and had already eliminated anything "white" from both my diet and my families. Suddenly when I was told I could not have this I went bonkers and searched high and low for anything and everything that is processed and ready to eat AND started baking like a maniac, knowing full well that it wasn't good for me. I am so sure that if I could just get my mind off of the "no" foods I will find that there are plenty of "yes" foods to fill me up and satisfy me!

juppygirl Newbie

I have gained 2 stone I dont need since starting gluten-free last summer- unfortunately I didnt lose weight with the illness before I was diagnosed - am very fed up. I admit I havent been too healthy with choices but it is still frustrating :angry:

  • 1 month later...
foodiegurl Collaborator

The strange part for me was that prior to being diagnosed, I was already reading lables, eating less processed things, and had already eliminated anything "white" from both my diet and my families. Suddenly when I was told I could not have this I went bonkers and searched high and low for anything and everything that is processed and ready to eat AND started baking like a maniac, knowing full well that it wasn't good for me. I am so sure that if I could just get my mind off of the "no" foods I will find that there are plenty of "yes" foods to fill me up and satisfy me!

wow, i actually had to look who wrote this, because i thought it might have been me. i could have totally said these words! just like you i read labels carefully, and now i will eat anything that says gluten-free...which is so unlike what I used to be like.

and like many of you said....before i was diagnosed, i was trying to loose weight and it melted off, like 15 lobs super easy, i was so happy, and then about 3 months after going gluten-free it started to creep back up and now i am like 20lbs over...and so miserable about it. i actually rote a blog post about it today on my blog..glutenfreemusings.com, about this very thing.

it is like if i see something that is gluten-free, i have to grab it right there and then, because i am scared it might not even be found again :(

Heather's Mom Newbie

All I can offer you is my support as I am not a Celiac myself. My 11 year old daughter was diagnosed about 6 months ago. We just went in for her 6 month check up and we all cheered and praised her for gaining 7 lbs! I chuckled and told her enjoy it while you can...won't be long before gaining weight is not what you want. As a person who has struggled with my weight for my entire life I totally empathize with you. I lost about 75 lbs on Weight Watchers about 7 years ago and with a little ups and downs have mainly managed to keep it off (I'm up 10 lbs right now and back on the wagon). I say stick with Weight Watchers. Count your pointes and stay faithful to the program. Don't think of food as the ememy. I wish you much luck.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,137
    • Most Online (within 30 mins)
      7,748

    Jamy
    Newest Member
    Jamy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.