Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does The Reaction Get Worse Over Time

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I got glutened about two weeks ago now. When I first was diagnosed the gluten reaction would last 2-3 days. Now it seems to be lasting over a week. Is this normal? I had such bad depression a week later. It was just like the depression I got right after I was glutened in the past. I was really careful so I know I wasn't reglutened. Does it normally get longer over time? If it does this is just going to be even more awful.

Also do people drink soda/pop from dispensing machines? I'm pretty sure this is how I got glutened. I don't know if it was the pop or the glass or what. Can plastic have gluten in it? Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Glutenator Contributor
The Glutenator
Posted

I have definitely found the reaction gets worse with time. When I get glutinated now, the symptoms can be much more severe and last longer. Bummer! Though I haven't had a problem with pop machines, so maybe look for another source? Or if you are worried, consider wiping the can with alcohol (or hand sanitizer if you have it) and rinsing before having the drink.

Googles Community Regular
Googles
Posted
  • Author

Thanks for the info. It wasn't a pop machine that dispenses cans, it was a fountain drink dispenser. (couldn't think of the better name last time I posted.)

Ahorsesoul Enthusiast
Ahorsesoul
Posted

If the machine had a soda that contained gluten running in it, it could contaminate your drink. The glass, especially if it was plastic could be contaminated from being in contact with something with gluten. Was the pop you were drinking gluten free? I know some orange and root beers are not gluten free. I'd get sick if glutened root beer had been just dispensed right before I filled my glass.

Before going gluten free I felt terrible all the time with spikes of horrible gluten poisoning. I never felt good enough to know when it really ended. Being gluten free I feel better and I know how well I can feel. I think when I am glutened now, it is worse because I compare it to how well I felt gluten free. So yes, if you get glutened you will feel awful. Worse? Probably.

Just a thought. Corn syrup also could be making you sick. Have you kept a food diary?

dilettantesteph Collaborator
dilettantesteph
Posted

At first it seemed like my reactions were getting worse as I seemed to get sensitive to lower levels of gluten. Now, after 2.5 years, my reactions are getting much better. I'm not sure how much it has to do with my figuring out how to eat, but I get over the worst of my symptoms in a day now. It is so much better than lying in bed wishing I could die for a week!

  • 7 months later...
missingtortillas Rookie
missingtortillas
Posted

This is an older Topic but I have not learned how to use this forum just yet. I've noticed that I have reactions from Dr. Pepper when it's from the fountain machine at Circle K and from Barro's Pizza (I didn't there but my friends picked me up a Dr. Pepper at lunch). My reactions consist of my tummy painfully expanding and the feeling of not being able to take a deep breath. The feeling of not being able to breath right while having a conversation just like when I've had gluten.

They have the one size for 79cents but the lids are so hard to get out that you end up grabbing 5 at a time just to pull one lid out. I glance over at the hot dog machine and only imagine who got a hot dog first or who was eating chips etc. then touched all the lids in the front including the one I'm about to pick. I try to pull out 3, discard, then pull out 3 more and pick the center one. I don't think it works though because they all look like they've been smudged on the side from fingers. YUCK!

I just don't want it to be the Dr. Pepper itself because I'm addicted big time! Anyone have this problem?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748
    GR82BNTX
    Newest Member
    GR82BNTX
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      still struggling with cravings

      By Scott Adams · Posted

      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Oh my goodness medication causing pain !!!!

      By Scott Adams · Posted

      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Knowing what to do when feeling unwell.

      By Scott Adams · Posted

      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.