Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lost Almost 4 Lbs In 8 Hours Of . . .

masterjen

By masterjen
in Coping with Celiac Disease

Recommended Posts

masterjen Explorer
masterjen
Posted

I've been on a gluten-free diet for 7 weeks, but wasn't feeling any better (I know it takes time but I'm impatient - what can I say?!) so I also went soy and lectin-free 2 weeks ago. My plan has been to slowly add in lectins then soy, and have now added milk and eggs (one at a time, with about 5 days in between). Today I decided to add rice, starting with gluten-free hot rice cereal. Wow, major diarrhea, and as the topic title says, I lost nearly 4 pounds in 8 hours (I've been drinking fluids, and when my stomach feels temporarily settled I eat a bit of pure baby-food fruit (about all I really feel like trying to get into me right now). The other thing I noticed is that the shampoo I've used twice in the past 4 days (but not today) contains wheat germ oil. Can my reaction be to the shampoo (even though I didn't wash my hair today)? Or, would it be due to the rice cereal (which I hope it isn't because I really miss my pre-celiac-diagnosis hot cereals like Cream of Wheat, Sunny Boy, etc., and oatmeal [which I'm not allowed to have just yet])? Opinions much appreciated!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

I've been on a gluten-free diet for 6 weeks, but wasn't feeling any better (I know it takes time but I'm impatient - what can I say?!) so I also went soy and lectin-free 2 weeks ago. My plan has been to slowly add in lectins then soy, and have now added milk and eggs (one at a time, with about 5 days in between). Today I decided to add rice, starting with gluten-free hot rice cereal. Wow, major diarrhea, and as the topic title says, I lost nearly 4 pounds in 8 hours (I've been drinking fluids, and when my stomach feels temporarily settled I eat a bit of pure baby-food fruit (about all I really feel like trying to get into me right now). The other thing I noticed is that the shampoo I've used twice in the past 4 days (but not today) contains wheat germ oil. Can my reaction be to the shampoo (even though I didn't wash my hair today)? Or, would it be due to the rice cereal (which I hope it isn't because I really miss my pre-celiac-diagnosis hot cereals like Cream of Wheat, Sunny Boy, etc., and oatmeal [which I'm not allowed to have just yet])? Opinions much appreciated!

It's absolutely possible that the shampoo got you. Or that you can't handle rice. Or that you had a stomach bug. You've also only been gluten free for six weeks, not very long. I would also leave more time between new foods, maybe two weeks before adding a new one. Five days isn't long enough to be sure, for a lot of poeple.

digmom1014 Enthusiast
digmom1014
Posted

I've been on a gluten-free diet for 6 weeks, but wasn't feeling any better (I know it takes time but I'm impatient - what can I say?!) so I also went soy and lectin-free 2 weeks ago. My plan has been to slowly add in lectins then soy, and have now added milk and eggs (one at a time, with about 5 days in between). Today I decided to add rice, starting with gluten-free hot rice cereal. Wow, major diarrhea, and as the topic title says, I lost nearly 4 pounds in 8 hours (I've been drinking fluids, and when my stomach feels temporarily settled I eat a bit of pure baby-food fruit (about all I really feel like trying to get into me right now). The other thing I noticed is that the shampoo I've used twice in the past 4 days (but not today) contains wheat germ oil. Can my reaction be to the shampoo (even though I didn't wash my hair today)? Or, would it be due to the rice cereal (which I hope it isn't because I really miss my pre-celiac-diagnosis hot cereals like Cream of Wheat, Sunny Boy, etc., and oatmeal [which I'm not allowed to have just yet])? Opinions much appreciated!

ravenwoodglass Mentor
ravenwoodglass
Posted

It could be the shampoo that got you. Was the rice cereal make in a gluten free facility? It could have been CC'd if it wasn't. As mentioned it is also early on in the diet for you and healing does take some time.

For a nice hot cereal if you liked Cream of Wheat try Cream of Buckwheat. It is very close to cream of wheat in taste and texture. Pocono brand is for sure gluten free. Only buckwheat is processed in the plant and it is grown in dedicated fields.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748
    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.