Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tiredness Poll


Leper Messiah

Recommended Posts

Leper Messiah Apprentice

Just wondering if anyone gets seriously tired after eating foods which they know or think are triggers for them? And by seriously I mean like a sleepy/brain fog stupor.

From reading posts on the forum it seems digestive issues are the main problem people face. Whilst I get bloating/other issues this is secondary to the tiredness. I do have borderline weak adrenals though so this may be a contributing factor. Be interesting to hear others experiences as a bit of a straw poll.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

Yes.

Last time I got glutened I was pretty much sapped for energy for the entire next day and decently drained the day after that.

jenngolightly Contributor

This is one of my primary symptoms. I sleep for hours on end. Sometimes I have to call in sick so I can sleep all day. This is in addition to sleeping extra hours at night. Usually this lethargy/brain fog/sleepiness lasts for a week.

Mac55 Apprentice

Do you mean trigger foods, as in gluten or other foods that cause issues? Exhaustion, brain fog, confusion, etc. are my worst complaints after I've been glutened. Well, my mood is up there too. It all seems to be getting worse the longer I'm gluten-free, which I've read is normal. I get to the point where I'm useless and thank God my kids still nap because I crash in the afternoon.

CeliacKate29 Newbie

Just wondering if anyone gets seriously tired after eating foods which they know or think are triggers for them? And by seriously I mean like a sleepy/brain fog stupor.

From reading posts on the forum it seems digestive issues are the main problem people face. Whilst I get bloating/other issues this is secondary to the tiredness. I do have borderline weak adrenals though so this may be a contributing factor. Be interesting to hear others experiences as a bit of a straw poll.

You are not alone!! My first symptom is always a terrible headache and then I immediately get lethargic and need to lie down. These symptoms can last up to 2 weeks for me as I am seriously sensitive to gluten. Hope this helps!

Ahorsesoul Enthusiast

I get sleepy within 30 minutes and it can last for several days. If I'm thinking I'm so tired I need a nap just to have the energy to nap I know I've been poisoned with gluten.

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

kaki-clam Enthusiast

when I first went gluten free, i found that after eating lunch i was sooo tired, i could barely keep my head up and my eyes open. It was all gluten free stuff, and stuff I knew was ok to eat, so, not trigger food, but still made me really tired...i car pool to work, thank god, because there were some nights that i wouldn't have been able to drive myself home.....after a few months, it stopped.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newgfcali Rookie

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

You're too funny! :P

Yep, huge snoozer here, too. For me it only lasts a couple of days, but it's a MAJOR nap attack. I think one time I slept about 20 hours out of 24.

glutenfr3309 Rookie

yes! this is one of my symptoms!!

it will usually hit me days later but i'm wondering if i got glutened because i haven't felt this exhaustion since before i went gluten-free.

for work we out for lunch yesterday and i had a burger (no bun) and a side of steamed veggies. guess it was the burger cause i struggled waking up this morning and passed out early last night!

sandsurfgirl Collaborator

The tiredness is awful for me.I got glutened yesterday and I'm SOOOOO tired. People have all sorts of symptoms with celiac, not just GI stuff. Probably another reason it's tough to diagnose. Neuro symptoms are pretty common, anxiety, depression, sleep disorders.

Anxiety became the bane of my existence for about 8 months before my diagnosis. It was so bad I would drive in the slow lane on the freeway in case I got too dizzy and had to pull over. After 2 days gluten free it went away, the first thing to go.

I have insomnia, which adds to my tiredness. I'm sure it's an unresolved celiac symptoms.

Leper Messiah Apprentice

I get sleepy within 30 minutes and it can last for several days. If I'm thinking I'm so tired I need a nap just to have the energy to nap I know I've been poisoned with gluten.

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

:lol: Haha, cracking comment.

Thanks for your replies, nice to know I'm not alone in the land of nod zZz. I work as an accountant and have to pray to god no-one phones or comes over with a complex query when my symptoms come on, mainly after lunch. It's so funny (and of course frustrating) when remembering someone's friggin name who you probably spoke to just before lunch poses a challenge! I can see it in their eyes "Wat...a...dumb@ss" lol.

My inquisitive nature wants to try and figure this out...I mean why do we get so tired? What is happening to our bodies on ingestion? Is the gluten/casein/etc causing leaky gut or so much inflammation that our adrenals struggle to cope? Hmmm...any ideas? As an aside it does seem to be getting better the longer I'm avoiding gluten, dairy and eggs, I'm still very much a newb to the diet though.

proud-armywife Rookie

I have seriously thought I may suffer from narcalepsy (At home. I feel like I could just pass out, like slow motion, sometimes my time perception feels distorted. It is hard to explain. It comes and goes I never have it for days only hours and the extreme reaction passes I drag after that. I find this to be the only thing that makes me want to adhear to the gluten free diet. Trying to keep the house clean running after kids, it is so hard for me to not be able to finish what I need to get done, and many times as silly as this sounds I feel so useless. But since I have found out this is what it is, I am trying to do right. I also feel like my body is shutting down during these times. I literally have called my mom an RN and told her I don't know what is going on with me, but I feel like it is struggling to operate. I swore I would die before they found out what was going on. Crazy HUH? All these things that Gluten does.It is still hard for my to believe that this could cause so many problems, and it makes me sad for people who are struggling and have no answers.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.