Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does A "master" List Of Gluten Ingredients Exist?


Kim27

Recommended Posts

Kim27 Contributor

I'm having a hard time getting handle on the things I need to avoid since being recently diagnosed with Celiac disease. Besides the obvious listings of ingredients like wheat, barley, rye on food AND also hygiene products, make-up, shampoo, conditioner, lotion, toothpaste, deodorant... What are other ingredients to look for??? How do you know if they have 'hidden' gluten under some complicated name that you don't recognize? For example, I looked at all my shampoo, cond., lotion, toothpaste, etc. and the only thing that listed wheat was my shampoo & conditioner, however, from this forum it seems that others have a HARD time finding products like that DON'T contain gluten. I find it unlikely that I would happen to have the ones that don't have gluten. For example, I read one post on here that said tocopheryl acetate in hand sanitizer sometimes is made from wheat, I would've NEVER known that, how would you ever know that! So my question is for the experienced Celiacs out there... What do I look for??? What are the ingredients you look for to avoid in hygiene/ make-up products and also food??? What else do they list wheat/barley/rye under??? Any help would be greatly appreciated!!!!

Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Heidi S. Rookie

This book really helped me figure out grocery shopping and pharmacy information. Recalls do happen but they try to post updates on their website. They have a section for skin care, hair care, over the counter meds. Its not complete but it helps.

Open Original Shared Link

Unfortunately, I have not found a master list b/c products and ingredients change. For me: I found some staple items and then slowly add brand names that I research. I try to stick to easy things that I can remember, example like Make-up: BareMinerals (everything except %100 natural lip stick/gloss). You do have to email the companies now and then to check but it gets easier! Do the best you can and stick with what you know!

Tocopheryl or vitamin E you have to check the source it is derived from. Also watch the genus for wheat is triticum.

There are a number of species including:

Triticum aestivum

triticum aethiopicum

triticum araraticum

triticum boeoticum

triticum carthlicum

triticum compactum

triticum dicoccoides

triticum dicoccon

triticum durum

triticum ispahanicum

triticum karamyschevii

triticum macha

triticum militinae

triticum monococcum

triticum polonicum

triticum spelta

triticum sphaerococcum

triticum timopheevii

triticum turanicum

triticum turgidum

triticum urartu

triticum vavilovii

triticum zhukovskyi

See a pattern if I see Triticum...anything, I avoid.

Carmel Coloring is still debated but I avoid, Natural Flavorings-you have to check what they are, Barley is

"Hordeum vulgare" and "malt" you must watch for barley. Vinegar is ok if it is distilled but not in other forums.

This can all be very overwhelming, you will learn as we all are still learning, use the forums most ppl post up to date information as it happens or research they do!

Skylark Collaborator

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - melthebell replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    2. - trents replied to melthebell's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    3. - melthebell posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Persistent isolated high DGP-IGG in child despite gluten-free diet

    4. - trents commented on Scott Adams's article in Winter 2026 Issue
      4

      Why Celiac Diagnosis Still Takes Years—and How to Change That

    5. - Jmartes71 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,498
    • Most Online (within 30 mins)
      7,748

    genliu
    Newest Member
    genliu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • melthebell
      Thanks very much for taking the time to write this. I have been pretty worried so appreciate reading any advice. Yes, the endoscopy will include a biopsy, and we have hopefully found a good pediatric gastro to guide us through it all.  Will also run the HLA typing - I have the swabs ready to go.
    • trents
      Welcome to the celiac.com community, @melthebell! I certainly would have a biopsy repeated as it has been 5 years since the first one. You mentioned he was scheduled for an endoscopy but make sure a biopsy is also done. It's possible he, like you are, is a "silent" celiac where the damage to the intestinal mucosa happens very slowly and can take years to manifest to the point of being detectable and where symptoms are minimal or absent. At 10 years old, his immune system may not be mature enough het to trigger the usual IGA responses that the IGA celiac tests are designed to detect.  I would also have genetic testing done to confirm that he has or doesn't have the potential to develop celiac disease. The genetic profile can also offer insight into the type of celiac disease a person will develop if they ever convert from latent to active. Take a look at table 2 under the section "Types of Celiac Disease" in the article found in this link: https://pmc.ncbi.nlm.nih.gov/articles/PMC9980758/  Genetic testing is available from 3rd party labs. I think you just have to send in a cheek swab sample.
    • melthebell
      Hello community; it's nice to have found you. I am a 42 year old biopsy confirmed celiac. I have had it since I was 18. Well managed on a gluten free diet. No idea if I have the gene (presume I do) as never tested. Diagnosed as was anaemic and had a high celiac market (can't recall which), and a positive biopsy. Asymptomatic. Given this, I regularly test my two children. My eldest is the child in question. First tested at age 5 due to slight anaemia. Everything negative except for a slightly high DGP IGG (slightly elevated at 25). Not IGA deficient. Did a biopsy with a pediatric gastro, was negative. Next test at age 8. Everything once again negative, high DGP IGG at 116 U/ml this time. Living in a country now with no celiac knowledge so decided to whack him on a gluten-free diet and see how he goes. Next test at age 9 after a year on gluten-free diet. Everything once again negative, high DGP IGG at 174 U/ml this time! On a gluten-free diet. Final test was a week ago at age 10, on continued gluten-free diet. Once again a positive DGP IGG, this time over 250 U/ml. On a gluten-free diet. what the heck is going on with my kid? We have seen a pediatric gastro via telehealth, who was equally puzzled and suggested doing a gluten challenge and an endoscopy, which we have schedule for end of April. Kid is otherwise fine. Energetic and growing well. No significant gastrointestinal symptoms. Has anyone encountered something like this before?
    • Jmartes71
      Domino's and Mountain Mike also has glutenfree pizza.However the issue is the cross contamination. Not worth a few minutes of yum yums i n the taste buds with a painful explosion later.
    • Scott Adams
      I don't recall seeing "many people here recommending RO water," but reverse osmosis (RO) water is water that has been purified by forcing it through a very fine membrane that removes dissolved salts, heavy metals, fluoride, nitrates, PFAS, and many other contaminants. It is one of the most thorough household filtration methods available and can be especially beneficial in areas with well water or known contamination concerns. While RO systems also remove beneficial minerals like calcium and magnesium and may produce slightly “flat”-tasting water, most dietary minerals come from food rather than drinking water, so this is not usually a health concern for most people. Overall, RO water is very clean and safe to drink, and it can be a smart option where water quality is questionable, though it may not be necessary in areas with well-tested municipal water.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.