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Does A "master" List Of Gluten Ingredients Exist?


Kim27

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Kim27 Contributor

I'm having a hard time getting handle on the things I need to avoid since being recently diagnosed with Celiac disease. Besides the obvious listings of ingredients like wheat, barley, rye on food AND also hygiene products, make-up, shampoo, conditioner, lotion, toothpaste, deodorant... What are other ingredients to look for??? How do you know if they have 'hidden' gluten under some complicated name that you don't recognize? For example, I looked at all my shampoo, cond., lotion, toothpaste, etc. and the only thing that listed wheat was my shampoo & conditioner, however, from this forum it seems that others have a HARD time finding products like that DON'T contain gluten. I find it unlikely that I would happen to have the ones that don't have gluten. For example, I read one post on here that said tocopheryl acetate in hand sanitizer sometimes is made from wheat, I would've NEVER known that, how would you ever know that! So my question is for the experienced Celiacs out there... What do I look for??? What are the ingredients you look for to avoid in hygiene/ make-up products and also food??? What else do they list wheat/barley/rye under??? Any help would be greatly appreciated!!!!

Thank you!!


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Heidi S. Rookie

This book really helped me figure out grocery shopping and pharmacy information. Recalls do happen but they try to post updates on their website. They have a section for skin care, hair care, over the counter meds. Its not complete but it helps.

Open Original Shared Link

Unfortunately, I have not found a master list b/c products and ingredients change. For me: I found some staple items and then slowly add brand names that I research. I try to stick to easy things that I can remember, example like Make-up: BareMinerals (everything except %100 natural lip stick/gloss). You do have to email the companies now and then to check but it gets easier! Do the best you can and stick with what you know!

Tocopheryl or vitamin E you have to check the source it is derived from. Also watch the genus for wheat is triticum.

There are a number of species including:

Triticum aestivum

triticum aethiopicum

triticum araraticum

triticum boeoticum

triticum carthlicum

triticum compactum

triticum dicoccoides

triticum dicoccon

triticum durum

triticum ispahanicum

triticum karamyschevii

triticum macha

triticum militinae

triticum monococcum

triticum polonicum

triticum spelta

triticum sphaerococcum

triticum timopheevii

triticum turanicum

triticum turgidum

triticum urartu

triticum vavilovii

triticum zhukovskyi

See a pattern if I see Triticum...anything, I avoid.

Carmel Coloring is still debated but I avoid, Natural Flavorings-you have to check what they are, Barley is

"Hordeum vulgare" and "malt" you must watch for barley. Vinegar is ok if it is distilled but not in other forums.

This can all be very overwhelming, you will learn as we all are still learning, use the forums most ppl post up to date information as it happens or research they do!

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
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    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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