Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does A "master" List Of Gluten Ingredients Exist?


Kim27

Recommended Posts

Kim27 Contributor

I'm having a hard time getting handle on the things I need to avoid since being recently diagnosed with Celiac disease. Besides the obvious listings of ingredients like wheat, barley, rye on food AND also hygiene products, make-up, shampoo, conditioner, lotion, toothpaste, deodorant... What are other ingredients to look for??? How do you know if they have 'hidden' gluten under some complicated name that you don't recognize? For example, I looked at all my shampoo, cond., lotion, toothpaste, etc. and the only thing that listed wheat was my shampoo & conditioner, however, from this forum it seems that others have a HARD time finding products like that DON'T contain gluten. I find it unlikely that I would happen to have the ones that don't have gluten. For example, I read one post on here that said tocopheryl acetate in hand sanitizer sometimes is made from wheat, I would've NEVER known that, how would you ever know that! So my question is for the experienced Celiacs out there... What do I look for??? What are the ingredients you look for to avoid in hygiene/ make-up products and also food??? What else do they list wheat/barley/rye under??? Any help would be greatly appreciated!!!!

Thank you!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Heidi S. Rookie

This book really helped me figure out grocery shopping and pharmacy information. Recalls do happen but they try to post updates on their website. They have a section for skin care, hair care, over the counter meds. Its not complete but it helps.

Open Original Shared Link

Unfortunately, I have not found a master list b/c products and ingredients change. For me: I found some staple items and then slowly add brand names that I research. I try to stick to easy things that I can remember, example like Make-up: BareMinerals (everything except %100 natural lip stick/gloss). You do have to email the companies now and then to check but it gets easier! Do the best you can and stick with what you know!

Tocopheryl or vitamin E you have to check the source it is derived from. Also watch the genus for wheat is triticum.

There are a number of species including:

Triticum aestivum

triticum aethiopicum

triticum araraticum

triticum boeoticum

triticum carthlicum

triticum compactum

triticum dicoccoides

triticum dicoccon

triticum durum

triticum ispahanicum

triticum karamyschevii

triticum macha

triticum militinae

triticum monococcum

triticum polonicum

triticum spelta

triticum sphaerococcum

triticum timopheevii

triticum turanicum

triticum turgidum

triticum urartu

triticum vavilovii

triticum zhukovskyi

See a pattern if I see Triticum...anything, I avoid.

Carmel Coloring is still debated but I avoid, Natural Flavorings-you have to check what they are, Barley is

"Hordeum vulgare" and "malt" you must watch for barley. Vinegar is ok if it is distilled but not in other forums.

This can all be very overwhelming, you will learn as we all are still learning, use the forums most ppl post up to date information as it happens or research they do!

Skylark Collaborator

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

    2. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    4. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    5. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,661
    • Most Online (within 30 mins)
      7,748

    Penny W
    Newest Member
    Penny W
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MogwaiStripe
      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.