Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Other Way To Put It But That I Stink!

jackay

By jackay
in Food Intolerance & Leaky Gut

Recommended Posts

jackay Enthusiast
jackay
Posted

I know I've seen this addressed several times but am addressing it again since I'm getting very frustrated.. I want input from others as to what has worked for them. I feel I am at the point where I shouldn't ever go out in public. I don't know when I'm going to be hit with a stink bomb! This happens every day with whatever I eat.

I have read about using activiated charcoal but that it can interfere with absorption of nutrients and I don't want that. I am taking probiotics, which helped years ago but don't seem to help anymore. My doctor suggested I keep trying different strains. Right now I am taking Align brand. They're expensive, but have a 60 day guarantee so either they help or I will get my money back.

I drink at least 9-10 cups of water a day. I've tried digestive enzymes and haven't found a brand that works for me. I went on a candida and elimination diet. I have the candida somewhat under control and am still working on getting rid of it. I've been taking Candex for five weeks and have just added oregano oil to further help it along.

Since I started Candex, plus the candida and elimination diet, I have started sleeping and feeling so much better. The only thing that hasn't improved is the stinky gas. I have a bit of stomach discomfort at times but nothing major.

I'm looking for any and all gluten free things that have worked for others. I know I'm not getting glutened because I don't have diarrhea, which is always a giveaway.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


meatslayer Newbie
meatslayer
Posted

I stunk before going gluten free.... my gas stopped almost the day I went gluten free? Did you stink before going gluten free?

Korwyn Explorer
Korwyn
Posted

This problem for me turned out to be two things: dairy (casein) and pretty much all refined carbs. If I eat more than about 50 grams of refined carbs over a two day period I get that same thing. If I eat 40 or so in a single day I get that as well. By refined carbs I mean: sugar (sucrose, dextrose, maltose), white rice (brown rice is somewhat better), and any kind of refined flours (amaranth, arrowroot, potato, tapioca, rice, and soy flours especially - this was when I was still eating soy).

Whole grain milled Sorghum, millet, buckwheat I do better with. Coconut flour, almond flour, and flax I don't really have much of a problem with, probably due to the relatively low carb content.

Dairy is really bad.

jackay Enthusiast
jackay
Posted
  • Author

This problem for me turned out to be two things: dairy (casein) and pretty much all refined carbs. If I eat more than about 50 grams of refined carbs over a two day period I get that same thing.

I have been dairy free for quite some time. Tried plain yogurt one time and plain kefir another and it didn't get any worse (or better). I've been off all sugars and yeast for months because of the candida. Also, I've been off all grains for over six weeks.

What I currently am eating is meat (except for beef), avacado, olive oil, tahini, almonds, sunflower seeds, turnips, cauliflower, broccoli, onion, garlic, asparagus, lettuce, brussel sprouts, spinach and green olives. I realize my diet is quite high in fats and proteins. I also realize most of the veggies I eat are gas producing.

I plan on adding non-gluten grains to my diet pretty soon. I miss them:(

I am just in need a medication or supplement that will cut the gas. Supposably Gas-X is gluten free but I've read on this forum that some people feel they get glutened from it.

jackay Enthusiast
jackay
Posted
  • Author

I stunk before going gluten free.... my gas stopped almost the day I went gluten free? Did you stink before going gluten free?

I didn't stink before I went gluten free as long as I took a good probiotic. Now that I am gluten free, I stink. Go figure!

Wolicki Enthusiast
Wolicki
Posted

How is your stomach acid? I had the same problem: never stunk before gluten-free, only after :blink: Turns out I had low stomach acid and low enzymes. Now I take Betaine HCL before every meal and enzymes after. Any low acid symptoms?

jackay Enthusiast
jackay
Posted
  • Author

How is your stomach acid? I had the same problem: never stunk before gluten-free, only after :blink: Turns out I had low stomach acid and low enzymes. Now I take Betaine HCL before every meal and enzymes after. Any low acid symptoms?

What are low stomach acid symptoms? That could possibly be my problem.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

Open Original Shared Link

Easy test. Mix some baking soda with some water. Drink it. If you're not burping like crazy within 5 minutes, this is your problem. Good news it's an easy fix :D

jackay Enthusiast
jackay
Posted
  • Author

Open Original Shared Link

Easy test. Mix some baking soda with some water. Drink it. If you're not burping like crazy within 5 minutes, this is your problem. Good news it's an easy fix :D

Yes, I got the burps. I see a lot of the Betaine HCL comes with pepsin. Would you suggest I just order the Betaine HCL or the combination?

Wolicki Enthusiast
Wolicki
Posted

Jackie,

For the Heidelberg test, if the baking soda makes you burp, you probably do not have low acid. But I am not sure it is 100% accurate,.

Do you have the symptoms in the link? If so, then get Betaine HCL capsules. Not tablets.

Start with one with meals. Next meal take two, and so on, up to eight! If you feel burning with 2 or 3 or 4, etc. go back down to the next lower number. If your meal does not have much protein, don't take the HCL. Take it just before you start eating, or with your first bite. After your last bite, take your enzymes. I like the Pancreatin better than the plant enzymes- 2 after each meal.

HTH

Janie

jackay Enthusiast
jackay
Posted
  • Author

Open Original Shared Link

Easy test. Mix some baking soda with some water. Drink it. If you're not burping like crazy within 5 minutes, this is your problem. Good news it's an easy fix :D

I took the quiz and came out at 50%, so low stomach acid could be possibility. As far as the baking soda test with water, I used a lot of baking soda. Didn't know how much to use. Guess I can give the hydrochloric acid a try and see if it helps.

I normally eat some meat with my breakfast. This morning I just had half an avacado and some almonds to see if I was less gassy. Still had some gas but was able to contain it during my exercise class, which was a miracle. It also wasn't as stinky. It appears that I am not digesting meat correctly. I'll give the digestive enzymes a try again.

HeatherY Newbie
HeatherY
Posted

Hi,

As I read down this exchange, I wanted to contribute that drinking 1 to 2 glasses of kefir has eliminated my gassy problem. Then I got to this last message, that mentions meat, so I'll add that not all meat is alike! I don't tolerate beef well, but buffalo works as a good substitute. I have a friend who doesn't tolerate chicken at all, so uses turkey and other game birds... Basically I would suggest going with local, high quality meats and changing them around until you narrow down which ones are giving you the gas. When I'm drinking kefir and monitoring my types of meats - voila, no gas! *insert happy face here* :D

  • 2 weeks later...
Apache Apprentice
Apache
Posted

I know this is an old post, but I wanted to add my two cents. I've noticed whenever my liver gets over worked it makes my urine smell exactly like the food that I've eaten. Maybe a liver cleanse would help.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    2. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    3. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    4. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    5. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.