Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Hate Feeling Like I Am Crazy....


tictax707

Recommended Posts

tictax707 Apprentice

Ok all, there is a food somewhere in my diet that is irritating me. I can't be sure if it is gluten, because as we all know there are a host of other intolerances out there, of which I have a few. But I get really frustrated at times like this when something I am eating is CLEARLY irritating my system and I can't figure out what it is. I have been slowly eliminating certain suspect foods over the past few days, and instead of getting better, I am getting worse. So clearly the culprit is still in there somewhere. Tomorrow I am putting the brakes on this whole process and going back to my rice cereal and meal supplement to give myself a chance to rest and slowly add back in basic foods.

I hate this mentality that I get in where I start suspecting everything I eat all over again. I am really truly careful about this diet, I make all my own food, and don't often eat out, much less eat things that contain ingredient lists. It's like this crazy form or paranoia or dementia where I don't feel safe and I don't know where the enemy is hiding and it really stresses me out. I am also stressed about getting sick because I have a race (triathlon) this coming weekend. We have to swim off Alcatraz island to the mainland, and while I am properly freaked out about that, I can't have my strength sapped by some sneaky ingredient!!! This race is too important to me!

I am scared of being sick and confused about the offending food and frustrated with this whole process. I realize I am not looking for help finding the offending food - I am looking for help battling these mental states that come on when we start to feel sick or threatened. :( (where's the emoticon that's actually crying?!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I know, it really stinks to have to feel paranoid about everything you put in your mouth :o Don't let it get you down!. I think your plan following the race is a good one - go back to basics and start again, one by one. It's really the only way to be sure. Good luck with the race :) Hope you swim at high tide!!

tictax707 Apprentice

Thanks for the well wishes, mushroom. Just having someone tell me I am doing the right thing helps. :) Today saw some improvements over yesterday. One good thing about going back to the basics is that the fear and paranoia go away because I really do trust my baby food & meal replacement! Emotionally, that makes quite a difference. After one more day of rest I will be hopefully ready for real food again. (just in time!)

PS - I checked the tides too! They should be in our favor... :D

Skylark Collaborator

I don't know about you, but eating gluten actually makes me depressed and anxious. When I get glutened I don't only have to cope with the frustration, but also a physical anxiety reaction caused by the gluten itself. I wonder if you have something similar going on? I know the feeling of returning to "safe" foods. I've been eating home cooked food all week after getting glutened Sunday.

Good luck in your race!

butterfl8 Rookie

Banana's? They are good too, right? I can sympathize with how you feel. I know soy is a total problem for me, but I keep thinking there's something else that is keeping me from being 100%. Or what I think 100% should be? Should I cut out x, y, z? AHHHHH!!! You can do this! And you are much stronger than I am, being willing to search to find the culprit. I will probably wait until I actually feel really bad, not just 'not good.'

Here's hoping the support helps--

-Daisy

tictax707 Apprentice

the support really does help, and I am so grateful! And I DO get real depression/anxiety with these incidents... I can feel this whole mental/physical circuit that gets activated and it seriously adds to the downer of it all. Blech - hopefully tomorrow will be the end of this dip, but my system sure does seem to be taking its sweet time... <_<

BethM55 Enthusiast

I hear ya'. I'm finally realizing that when I'm moody and irritable, it's likely I've been glutened. Of course, there's PMS, family, etc, etc, but I'm thinking that when I get that really out of control, out of body, wanting to bite someone's head off irritability and depression and despair, gluten could easily be the culprit. Sigh. It's more complicated than I ever thought. :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.