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Wheat Starch?


foodiegurl

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foodiegurl Collaborator

I was wondering what your thoughts were on wheat starch? I know I have read that in the US it is not as 'cleaned" and pure and not safe to consider gluten-free. But in Europe that have more "pure wheat starch, and I know of some Scandinavian companies that put it in the gluten-free breads, cakes, cookies. And apparently that is considered gluten-free there.

Would you eat a gluten-free product from a European country? Or is the word 'wheat' enough to turn you off? Just curious.


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mushroom Proficient

I personally don't eat anything with wheat on the label unless it has "buck" in front of it :lol: Codex wheat starch is supposed to be safe for celiacs, but not for all celiacs. Our member Irish DaveyBoy cannot eat it. It depends on your level of sensitivity.

YoloGx Rookie

I agree. I doubt I could handle it given how sensitive I am; however there are others who aren't as sensitive. Here in the States for instance distilled whiskey is considered safe for many celiacs--but I reacted badly repeatedly just from kissing an ex boyfriend who drank it. I also ate some "Glutino" cookies from Canada that are supposed to be gluten-free--and I was down for a day with a migraine, as was my new celiac boyfriend.

Bea

mamaw Community Regular

I think the company you are referring to is Toro. They used to be sold in the US but recently close shop in the US. The rule of thumb is under 20ppm's....with that said I did eat the Toro mixes because I was sent samples a few years back. They were good & I had no outward symptoms... optive word here is : outward.....

For me I wouldn't run out & buy these products when I can get great taste without any wheat starch....

Just my thoughts.blessings

mamaw

Takala Enthusiast

I wouldn't touch it.

There is no reason to put a product deliberately derived from wheat into any food or medication products I consume, no matter what assurances I was given that it was supposedly "safe."

I have read of way too many anecdotes of people getting sick from these products.

It's already a minefield just trying to deal with the cross contamination issues of other supposedly "gluten free" items and then afterwards you find out by research that surprise, the facility is not gluten free or the manufacturer doesn't "get" it- witness the big uproar over when a famous American pretzel manufacturer, which is going to introduce a line of "gluten free" pretzels soon, revealed himself in an interview to be a clueless idiot on why manufacturing the wheat pretzels in the same facility put people at risk of illness. (and who was really taken to task by other gluten free and celiac blogs.)

foodiegurl Collaborator

I was actually not singling out Toro, but some other brands there that are currently just over there, but had a friend who wanted to send me some, but was worried about trying it. The last thing I want to do it make myself sick, yet these are companies who only make gluten-free food. So am I wondering..is the wheat starch safe in them, if all celiacs in Sweden, Norway, etc..eats this stuff....or are we still damaging ourselves inside?

ravenwoodglass Mentor

So am I wondering..is the wheat starch safe in them, if all celiacs in Sweden, Norway, etc..eats this stuff....or are we still damaging ourselves inside?

Not all celiacs in those countries consume wheat starch. As you have seen many of us here wouldn't chance it. I wouldn't either.

You might want to ask in the International section, perhaps some folks there can give an opinion on whether they consume it or not.


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YoloGx Rookie

Are Glutino cookies made by "Toro"?

I just looked it up and didn't see a reference to it--either as Toro or having wheat of any sort. What they do have however are "Natural Flavors" which can be, as you all know, created by using alcohol as an extraction method. It may be they used distilled grain alcohol, but that still gets me...

Nevertheless the Glutino cookie effect only lasted a day for me, ditto with my boyfriend--so the effect wasn't as severe as some things... However I still plan to stay away from their products.

Lycopene Rookie

The WORD wheat scares me. There's no way I'd ever eat anything like that no matter what assurances I had stating that it was safe. If it's made from wheat, I'm not eating it. No thank you. :P I hate feeling sick, and I get bloated and gassy for WEEKS if I get glutened. So annoying.

Korwyn Explorer

Foodiegirl, this is not directed at you or your post, but at an attitude I seem to keep encountering even in people who have been diagnosed and living with celiac disease for years longer than I have. So.....

I'm going to go onto a slight rant here. :) I don't understand what the obsession is with having to reintroduce or 'get to eat wheat again' for many companies, except that the agri/grain companies have such a vested interest in finding a way to 'make it safe.' As more and more research is being done (or being rediscovered) about the physiologic, endrocrine, and insulin impact of grains and refined carbs and their relationship to the diseases of western civilization, the agri companies are seeing a growing threat to their forced saturation of our diet with engineered, modified, and highly processed grains many of which are not even good for us even if we didn't have celiac disease! (Do some reading on the hormonal impact of soy on both men and women for example).

What few grains we do eat in our house now are almost always whole milled grains (millet, buckwheat, sorghum, brown rice, etc) and it has taken some time but we have managed to find recipes and techniques which have replaced almost everything we 'used to love to eat'. We don't take store prepared lunches to work anymore we usually spend a Saturday a month cooking and baking and then freeze what we will need. Why do we feel this need to try and reacquaint ourselves with a substance that is a toxin for us, and will ultimately result in the shortening of our lifespan? It's like trying to figure out how much dioxin or DDT would be safe to ingest before we start to feel sick. Because almost every one of use bases our 'glutened' status on how we feel, not what our lab work shows.

* Edited for typo correction.

YoloGx Rookie

Foodiegirl, this is not directed at you or your post, but at an attitude I seem to keep encountering even in people who have been diagnosed and living with celiac disease for years longer than I have. So.....

I'm going to go onto a slight rant here. :) I don't understand what the obsession is with having to reintroduce or 'get to eat wheat again' for many companies, except that the agri/grain companies have such a vested interest in finding a way to 'make it safe.' As more and more research is being done (or being rediscovered) about the physiologic, endrocrine, and insulin impact of grains and refined carbs and their relationship to the diseases of western civilization, the agri companies are seeing a growing threat to their forced saturation of our diet with engineered, modified, and highly processed grains many of which are not even good for us even if we didn't have celiac disease! (Do some reading on the hormonal impact of soy on both men and women for example).

What few grains we do eat in our house now are almost always whole milled grains (millet, buckwheat, sorghum, brown rice, etc) and it has taken some time but we have managed to find recipes and techniques which have replaced almost everything we 'used to love to eat'. We don't take store prepared lunches to work anymore we usually spend a Saturday a month cooking and baking and then freeze what we will need. Why do we feel this need to try and reacquaint ourselves with a substance that is a toxin for us, and will ultimately result in the shortening of our lifespan? It's like trying to figure out how much dioxin or DDT would be safe to ingest before we start to feel sick. Because almost every one of use bases our 'glutened' status on how we feel, not what our lab work shows.

* Edited for typo correction.

Go girl!

Bea

Skylark Collaborator

Go girl!

Bea

That's a "he". ;)

This article scared me half to death about European "gluten-free" baked goods. Open Original Shared Link As far as I can tell, the wheat starch baked goods are only currently required to be below 200 ppm gluten to be labeled "gluten-free". Starting January 1 2012, there is a 20 ppm requirement for labeling food "gluten-free", and baked goods can label "very low gluten" if they are below 100 ppm. I'll be surprised if any of the Codex Alimentarius wheat starch foods manage the 20 ppm gluten limit to be labeled "gluten-free".

Gemini Experienced

That's a "he". ;)

This article scared me half to death about European "gluten-free" baked goods. Open Original Shared Link As far as I can tell, the wheat starch baked goods are only currently required to be below 200 ppm gluten to be labeled "gluten-free". Starting January 1 2012, there is a 20 ppm requirement for labeling food "gluten-free", and baked goods can label "very low gluten" if they are below 100 ppm. I'll be surprised if any of the Codex Alimentarius wheat starch foods manage the 20 ppm gluten limit to be labeled "gluten-free".

Wheat starch is supposedly so highly processed, that the gluten molecule is removed....much like distillation. I am not personally buying into that myself.

Having been to Europe many times and planning on going again this Fall, I do not ever eat anything which contains Codex wheat starch. Usually, I eat Atkins when on vacation and get my starches through baked potatoes and rice. I am pleased to see there is a Whole Foods market now (a big one) in London so will see how many truly gluten-free products they carry. If there is gluten-free bread, I always check the ingredients listing and if there is wheat starch, I do not buy it. I do not drink hard liquor/grain alcohol so have no idea if I would react to them. A previous poster had a good question....if European Celiacs are eating foods with up to 200ppm, are they causing damage? Testing in the US has shown that ingestion of gluten over 20 ppm causes villous atrophy so why would Europeans allow up to 200ppm? :blink: Maybe one of our European posters can answer that. I am very careful when eating in Europe and have been 100% successful so far but I generally eat almost zero carbs when on vacation as that's the only way I know to be completely safe.

Skylark Collaborator

Testing in the US has shown that ingestion of gluten over 20 ppm causes villous atrophy so why would Europeans allow up to 200ppm? :blink: Maybe one of our European posters can answer that. I am very careful when eating in Europe and have been 100% successful so far but I generally eat almost zero carbs when on vacation as that's the only way I know to be completely safe.

That's simple. The regulations and research are driven by our ability to accurately and reproducibly measure the gluten content of foods. The 200 ppm recommendations and laws were adopted in the early 80s when gluten was not easy to measure at 20 ppm. Modern sandwich ELISA assays can measure down to 3 ppm gliadin (6 ppm gluten), so research on gluten tolerance is more accurate and regulations at 20 ppm are reasonable to enforce.

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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