Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee Issues


lynnelise

Recommended Posts

lynnelise Apprentice

I have recently started drinking coffee in the mornings. Last week I drank the Millstone cinnamon hazelnut and the vanilla nut without issues. This week I started on the Millstone Caramel Truffle and got sick with GI "issues" Sunday and Monday. It is my understanding that all Millstone varieties are gluten-free but I decided obviously something is in the caramel that doesn't agree. So last night I went out and bought Folger's Vanilla Biscotti (feel kind of stupid saying I bought something that said biscotti on the label) because I read that all Folger's flavors are gluten free. Well drank my first cup this morning and had even worse issues than with the caramel! Plus I have a weird itchy rash on the top of my hand which I've never gotten before. (I do get rashes on my legs, around the knee when I consume gluten but never anywhere else.)

So I guess basically I'm wondering whether there is anything else in these flavors that I could be reacting to and also where can I find good flavored coffee that is safe. I don't think coffee itself is the problem since I often get Starbucks coffee on my lunch break and do not have issues. I also don't think it's the

Almond Breeze I put in the coffee because I use it in smoothies without issue. Thanks for any help/advice you can provide! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Alot of the flavored syrups are gluten-free (check to be sure a few flavors aren't). I like vanilla Silk creamer with plain coffee. Good luck. Its also possible something else is bothering you. If Starbucks flavorings don't bother you, you can buy them for your coffee at home.

lynnelise Apprentice

I guess I could try the syrups. I don't use anything with Splenda in it so it would add some calories to my morning coffee. I would still love to find ground flavored coffee that set well with me.

I called Folger about the vanilla biscotti but got the CYA statement that they can't guarantee it's gluten free because there are numerous times between harvesting and processing that it could have came into contract with gluten. All she could say was that coffee beans themselves are gluten-free. She wouldn't discuss what natural and artifical flavorings were used. Frustrating.

pammygb Newbie

So sorry you are having issues with coffee. I do know that any coffee flavoring can contain gluten which may be irritating you.

Korwyn Explorer

Have you ever been in one of the packaging facilities for the mass coffee houses? There are only four in the US, and they handle all the coffee for all the brands. Folger's, MJB, Hills Bros, etc. The production lines used there handle a variety of blends, additives (including some which would contain gluten), etc. There is a huge CC issues. I don't trust any of the mass packaged coffees. I got green coffee beans (for about $3.80 to $4.50 a pound) and roasted my own coffee. Takes about a 1/2 hour to roast enough coffee for my wife and I for a week.

lynnelise Apprentice

It guess I never thought about how coffee was produced and packaged! Thanks for the tip! Looks like I can order unroasted beans online. This is probably a stupid question but, do I need to buy a special coffee roaster or can they be roasted in the oven?

Korwyn Explorer

Hot air popcorn popper is what we use. Wear-ever popcorn pumper model works great and you can find them on E-bay cheap ($8-$15). Search for 'wear even popcorn'.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I had no idea coffee beans could be CC. Seems like gluten is everywhere.

For flavored coffee, you can put some stick cinnamon in with the grounds, or add a drop of vanilla extract with the cream and sugar. Hershey's syrup is really good too if you don't mind the sugar. Frangelico liqueur is amazing in coffee, but I only do that on weekends when I don't mind a tiny bit of alcohol. B)

  • 1 month later...
lynnelise Apprentice

Well yesterday I went to the allergy doctor because after I posted this topic my issues started getting stranger in that I was having tingling around my lips and gums and a strong metallic taste in my mouth after drinking coffee. Turns out I have developed a coffee allergy. I just thought I should update it so if anyone searched the forums they wouldn't be scared to drink coffee.

I still think the information about the mass packaging plants and home roasting was good advice!

GFinDC Veteran

I have a reaction to coffee also. Just wanted to mention tea. There are a ton of flavored teas and plain teas you could substitute. But same deal, some of them have gluten in the flavorings. So be careful of them also. Plain tea should be ok. If you have hayfever the flavored teas with flowers etc are usually a problem also.

  • 5 months later...
Kinshasav Newbie

I just broke out on my elbows after having Milestone Caramel Truffle coffee. I decided to check online to see if anyone else has problems with flavored coffees. It is difficult to know what is safe. I have random breakouts, with food that don't seem to have gluten in them.

I have recently started drinking coffee in the mornings. Last week I drank the Millstone cinnamon hazelnut and the vanilla nut without issues. This week I started on the Millstone Caramel Truffle and got sick with GI "issues" Sunday and Monday. It is my understanding that all Millstone varieties are gluten-free but I decided obviously something is in the caramel that doesn't agree. So last night I went out and bought Folger's Vanilla Biscotti (feel kind of stupid saying I bought something that said biscotti on the label) because I read that all Folger's flavors are gluten free. Well drank my first cup this morning and had even worse issues than with the caramel! Plus I have a weird itchy rash on the top of my hand which I've never gotten before. (I do get rashes on my legs, around the knee when I consume gluten but never anywhere else.)

So I guess basically I'm wondering whether there is anything else in these flavors that I could be reacting to and also where can I find good flavored coffee that is safe. I don't think coffee itself is the problem since I often get Starbucks coffee on my lunch break and do not have issues. I also don't think it's the

Almond Breeze I put in the coffee because I use it in smoothies without issue. Thanks for any help/advice you can provide! :)

Salax Contributor

I know this thread was started earlier this year. But I too have been having weird things happening to me and I think it's the coffee. For over a week I have had the swollen, itchy tongue, with D and tummy issues going on. I also saw a gray/white film on my tongue the other day. I did some research and I think I have a coffee/caffine intolerance. Apparently the mouth issues with the gray/white tongue is also related to caffine toxicity. So, those of you that experience any of these symptoms might want to try caffine free and see if it helps. That includes; no coffee, no tea, no caffinated soda, chocolate, etc.

*cry* going to miss my chocolate. :blink:

No bread or chocolate, you have got to be kidding me. *falls over, gets up and grabs some letuce.*

*sigh* :( Food just isn't fun anymore.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

    2. - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    3. - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - dsfraley replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,561
    • Most Online (within 30 mins)
      7,748

    tmk95
    Newest Member
    tmk95
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
    • Wheatwacked
      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
    • dsfraley
      Thank you all. Regarding dairy products: I think we are getting to the point that we are ready to try anything, but of course hesitant to cut this out entirely too as he's still a 9 year old and adjusting to a diet missing other foods he's used to. We have already kept him from milk (which he loves) to not overdo the dairy, but complete elimination will be tough. I have heard that the milk/casein association has more to do with its effects on an already damaged gut, such that it is more of a problem when healing and not long term: is the idea/suggestion proposed here that casein is triggering the same immune reaction as gluten would (which is a different matter)?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.