Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee Issues


lynnelise

Recommended Posts

lynnelise Apprentice

I have recently started drinking coffee in the mornings. Last week I drank the Millstone cinnamon hazelnut and the vanilla nut without issues. This week I started on the Millstone Caramel Truffle and got sick with GI "issues" Sunday and Monday. It is my understanding that all Millstone varieties are gluten-free but I decided obviously something is in the caramel that doesn't agree. So last night I went out and bought Folger's Vanilla Biscotti (feel kind of stupid saying I bought something that said biscotti on the label) because I read that all Folger's flavors are gluten free. Well drank my first cup this morning and had even worse issues than with the caramel! Plus I have a weird itchy rash on the top of my hand which I've never gotten before. (I do get rashes on my legs, around the knee when I consume gluten but never anywhere else.)

So I guess basically I'm wondering whether there is anything else in these flavors that I could be reacting to and also where can I find good flavored coffee that is safe. I don't think coffee itself is the problem since I often get Starbucks coffee on my lunch break and do not have issues. I also don't think it's the

Almond Breeze I put in the coffee because I use it in smoothies without issue. Thanks for any help/advice you can provide! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Alot of the flavored syrups are gluten-free (check to be sure a few flavors aren't). I like vanilla Silk creamer with plain coffee. Good luck. Its also possible something else is bothering you. If Starbucks flavorings don't bother you, you can buy them for your coffee at home.

lynnelise Apprentice

I guess I could try the syrups. I don't use anything with Splenda in it so it would add some calories to my morning coffee. I would still love to find ground flavored coffee that set well with me.

I called Folger about the vanilla biscotti but got the CYA statement that they can't guarantee it's gluten free because there are numerous times between harvesting and processing that it could have came into contract with gluten. All she could say was that coffee beans themselves are gluten-free. She wouldn't discuss what natural and artifical flavorings were used. Frustrating.

pammygb Newbie

So sorry you are having issues with coffee. I do know that any coffee flavoring can contain gluten which may be irritating you.

Korwyn Explorer

Have you ever been in one of the packaging facilities for the mass coffee houses? There are only four in the US, and they handle all the coffee for all the brands. Folger's, MJB, Hills Bros, etc. The production lines used there handle a variety of blends, additives (including some which would contain gluten), etc. There is a huge CC issues. I don't trust any of the mass packaged coffees. I got green coffee beans (for about $3.80 to $4.50 a pound) and roasted my own coffee. Takes about a 1/2 hour to roast enough coffee for my wife and I for a week.

lynnelise Apprentice

It guess I never thought about how coffee was produced and packaged! Thanks for the tip! Looks like I can order unroasted beans online. This is probably a stupid question but, do I need to buy a special coffee roaster or can they be roasted in the oven?

Korwyn Explorer

Hot air popcorn popper is what we use. Wear-ever popcorn pumper model works great and you can find them on E-bay cheap ($8-$15). Search for 'wear even popcorn'.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I had no idea coffee beans could be CC. Seems like gluten is everywhere.

For flavored coffee, you can put some stick cinnamon in with the grounds, or add a drop of vanilla extract with the cream and sugar. Hershey's syrup is really good too if you don't mind the sugar. Frangelico liqueur is amazing in coffee, but I only do that on weekends when I don't mind a tiny bit of alcohol. B)

  • 1 month later...
lynnelise Apprentice

Well yesterday I went to the allergy doctor because after I posted this topic my issues started getting stranger in that I was having tingling around my lips and gums and a strong metallic taste in my mouth after drinking coffee. Turns out I have developed a coffee allergy. I just thought I should update it so if anyone searched the forums they wouldn't be scared to drink coffee.

I still think the information about the mass packaging plants and home roasting was good advice!

GFinDC Veteran

I have a reaction to coffee also. Just wanted to mention tea. There are a ton of flavored teas and plain teas you could substitute. But same deal, some of them have gluten in the flavorings. So be careful of them also. Plain tea should be ok. If you have hayfever the flavored teas with flowers etc are usually a problem also.

  • 5 months later...
Kinshasav Newbie

I just broke out on my elbows after having Milestone Caramel Truffle coffee. I decided to check online to see if anyone else has problems with flavored coffees. It is difficult to know what is safe. I have random breakouts, with food that don't seem to have gluten in them.

I have recently started drinking coffee in the mornings. Last week I drank the Millstone cinnamon hazelnut and the vanilla nut without issues. This week I started on the Millstone Caramel Truffle and got sick with GI "issues" Sunday and Monday. It is my understanding that all Millstone varieties are gluten-free but I decided obviously something is in the caramel that doesn't agree. So last night I went out and bought Folger's Vanilla Biscotti (feel kind of stupid saying I bought something that said biscotti on the label) because I read that all Folger's flavors are gluten free. Well drank my first cup this morning and had even worse issues than with the caramel! Plus I have a weird itchy rash on the top of my hand which I've never gotten before. (I do get rashes on my legs, around the knee when I consume gluten but never anywhere else.)

So I guess basically I'm wondering whether there is anything else in these flavors that I could be reacting to and also where can I find good flavored coffee that is safe. I don't think coffee itself is the problem since I often get Starbucks coffee on my lunch break and do not have issues. I also don't think it's the

Almond Breeze I put in the coffee because I use it in smoothies without issue. Thanks for any help/advice you can provide! :)

Salax Contributor

I know this thread was started earlier this year. But I too have been having weird things happening to me and I think it's the coffee. For over a week I have had the swollen, itchy tongue, with D and tummy issues going on. I also saw a gray/white film on my tongue the other day. I did some research and I think I have a coffee/caffine intolerance. Apparently the mouth issues with the gray/white tongue is also related to caffine toxicity. So, those of you that experience any of these symptoms might want to try caffine free and see if it helps. That includes; no coffee, no tea, no caffinated soda, chocolate, etc.

*cry* going to miss my chocolate. :blink:

No bread or chocolate, you have got to be kidding me. *falls over, gets up and grabs some letuce.*

*sigh* :( Food just isn't fun anymore.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,221
    • Most Online (within 30 mins)
      7,748

    Jeniffer
    Newest Member
    Jeniffer
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.