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Copper Deficiency


TrillumHunter

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TrillumHunter Enthusiast

I've read some articles about this being more common in celiac patients. I have iron-deficiency anemia that has been very resistant to treatment and a return of neuro problems despite a strict gluten-free diet.

I'm wondering if anyone has any experience with this? I'm seeing my gp next week and I'm going to ask for the test.

  • 8 months later...

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kaplan1975 Newbie

I've read some articles about this being more common in celiac patients. I have iron-deficiency anemia that has been very resistant to treatment and a return of neuro problems despite a strict gluten-free diet.

I'm wondering if anyone has any experience with this? I'm seeing my gp next week and I'm going to ask for the test.

I have been experimenting with zinc and magnesium, among other vitamins, and noticed that certain symptoms got worse when I was taking too much zinc. Turns out zinc supplementation effects copper absorbtion and I feel that I was making a copper deficiency even worse.

I have been taking copper for a few days now and definitely feel that my body needed it. I also take zinc at night to maintain a balance and it helps me get restorative sleep. Copper deficiency has been linked to premature grey hair and pale skin as well.

I am finding out that there is a delicate balance between what our bodies need as a result of the damage caused by celiac disease. I am also newly casein free which had immediate neuro benefits for me.

ravenwoodglass Mentor

I have been experimenting with zinc and magnesium, among other vitamins, and noticed that certain symptoms got worse when I was taking too much zinc. Turns out zinc supplementation effects copper absorbtion and I feel that I was making a copper deficiency even worse.

I have been taking copper for a few days now and definitely feel that my body needed it. I also take zinc at night to maintain a balance and it helps me get restorative sleep. Copper deficiency has been linked to premature grey hair and pale skin as well.

I am finding out that there is a delicate balance between what our bodies need as a result of the damage caused by celiac disease. I am also newly casein free which had immediate neuro benefits for me.

Have you had your blood levels checked to make sure you are really deficient? If not you should before supplementing. Too much copper is toxic and can damage your organs. Here is a link to what the Merck manual has to say about copper.

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kaplan1975 Newbie

Have you had your blood levels checked to make sure you are really deficient? If not you should before supplementing. Too much copper is toxic and can damage your organs. Here is a link to what the Merck manual has to say about copper.

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The Merck Manual also states:

Copper Deficiency

"Copper deficiency is rare among healthy people. It occurs most commonly among infants who are premature, who are recovering from severe undernutrition, or who have persistent diarrhea. A severe disorder that impairs absorption of nutrients (such as celiac disease, Crohn's disease, cystic fibrosis, or tropical sprue) or weight-loss (bariatric) surgery may cause this deficiency. Consumption of too much zinc can reduce the absorption of copper, causing a deficiency. Some male infants inherit a genetic abnormality that causes copper deficiency. This disorder is called Menkes syndrome."

I understand that taking supplements without professional advice can be dangerous, but I am comfortable taking the FDAs RDA of copper in supplement form daily and do not plan to have blood tests done. With that said, I am not recommending anyone else to try anything that they are not comfortable with themselves.

ravenwoodglass Mentor

I understand that taking supplements without professional advice can be dangerous, but I am comfortable taking the FDAs RDA of copper in supplement form daily and do not plan to have blood tests done. With that said, I am not recommending anyone else to try anything that they are not comfortable with themselves.

Taking a regular vitamin with the RDA is not a problem. I was cautioning about taking mega doses of copper but I didn't really make that clear. Some vitamins like B12 and C for example are fine to take large doses of while others like iron or copper can build up to dangerous levels. Sorry I wasn't more clear about what I meant.

kaplan1975 Newbie

Taking a regular vitamin with the RDA is not a problem. I was cautioning about taking mega doses of copper but I didn't really make that clear. Some vitamins like B12 and C for example are fine to take large doses of while others like iron or copper can build up to dangerous levels. Sorry I wasn't more clear about what I meant.

No need to apologize as I didn't take it that way. I think that there are many people who "pop" supplements because they are not considered to be dangerous, when in fact they be doing more harm than good.

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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