Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Milk Make Gluten Intolerance Worse?


Glutenfreenoobie

Recommended Posts

Glutenfreenoobie Rookie

I've heard many bad things about milk. I'm wondering if the 1% milk I've been drinking is causing my symptoms to be worse. I've been gluten free for awhile now, at least 2 months. I tried going milk free and my symptoms seems to be improving faster. I know if the digestive track is under strain, you basically become intolerant to lactose.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

You can be intolerant to lactose, casein, or both with celiac and a damaged gut. A lot of celiacs go off milk until they feel better. I was casein sensitive but did OK with goat dairy. I was able to eat cow dairy again after about nine months.

Lisa Mentor

It's offend recommended that you eliminate dairy from your diet when you go gluten free due to Celiac.

The villi are damaged due to Celiac. Absorption is hindered because of the that damage. Dairy is one of those hindered....

Often, once healing takes place, dairy is re-introduced without an issue.

Glutenfreenoobie Rookie

It's offend recommended that you eliminate dairy from your diet when you go gluten free due to Celiac.

The villi are damaged due to Celiac. Absorption is hindered because of the that damage. Dairy is one of those hindered....

Often, once healing takes place, dairy is re-introduced without an issue.

I'm going to try to reduce or eliminate my dairy intake. I can get vitamin D from the sun and calcium from vegetables. I plan to drink green tea instead of milk. Is there any type of beverage that promotes healing? What else is recommended that I eliminate while I still have symptoms?

knittingmonkey Newbie

I'm going to try to reduce or eliminate my dairy intake. I can get vitamin D from the sun and calcium from vegetables. I plan to drink green tea instead of milk. Is there any type of beverage that promotes healing? What else is recommended that I eliminate while I still have symptoms?

Ironically, raw milk is very healing for the intestine and raw also doesn't cause problems digesting lactose because it naturally contains the enzyme needed for digestion. Unfortunately, in most of the USA, raw milk cannot be sold commercially, so one must find a farmer. Since being diagnosed celiac 2 weeks ago, I've been drinking a little raw milk and feel it's helping me.

Open Original Shared Link

Skylark Collaborator

I'm going to try to reduce or eliminate my dairy intake. I can get vitamin D from the sun and calcium from vegetables. I plan to drink green tea instead of milk. Is there any type of beverage that promotes healing? What else is recommended that I eliminate while I still have symptoms?

Keep an eye on soy. Some people find themselves sensitive to it too. Edamame used to tear me up. It's also usually recommended that newly diagnosed celiacs not eat oats, even gluten-free ones. A few celiacs seem to be truly cross-sensitive to oats.

As far as promoting healing, the main thing is to carefully avoid gluten. Cheat or make a mistake during the healing process while you still have a lot of antibodies and you can set yourself back.

Glutenfreenoobie Rookie

Keep an eye on soy. Some people find themselves sensitive to it too. Edamame used to tear me up. It's also usually recommended that newly diagnosed celiacs not eat oats, even gluten-free ones. A few celiacs seem to be truly cross-sensitive to oats.

As far as promoting healing, the main thing is to carefully avoid gluten. Cheat or make a mistake during the healing process while you still have a lot of antibodies and you can set yourself back.

Hmm, I've been having gluten free toast in my family's toaster that has toast contain gluten toasted everyday. Should I be worried about such a small dosage of gluten?

That's cool about raw milk. In school I was brainwashed to think raw milk was bad because of no pasteurization and to drink skim milk. Now in 2010 I find skim milk is the least healthy, yes whole milk is healthier since less % protein, and raw milk is the healthiest. I feel lied to and cheated by my schools.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hmm, I've been having gluten free toast in my family's toaster that has toast contain gluten toasted everyday. Should I be worried about such a small dosage of gluten?

That's cool about raw milk. In school I was brainwashed to think raw milk was bad because of no pasteurization and to drink skim milk. Now in 2010 I find skim milk is the least healthy, yes whole milk is healthier since less % protein, and raw milk is the healthiest. I feel lied to and cheated by my schools.

You just have to make sure that raw milk has been tested for bovine tuberculosis. I agree - when we moved from milking our own cows on the farm, to city pasteurized milk, it was awful Once it was homogenized it was even worse. I wouldn't drink it.

I get glutened if someone toasts gluten bread in my toaster - I will no longer permit it - not even my sister who visits infrequently. It's not worth it. I had house guests just recently (old high school friend, husband, and their friend) and I just served everything gluten free and didn't even comment on it (except when I asked Peter what he wanted for breakfast, and he said "Oh, Weetbix, or...." He didn't get a chance to continue because my Dh and I both laughed and said in chorus "Not in this house!")

Skylark Collaborator

Hmm, I've been having gluten free toast in my family's toaster that has toast contain gluten toasted everyday. Should I be worried about such a small dosage of gluten?

People's sensitivity to gluten is really variable. Vertical toasters are always a problem. They can trap a lot of crumbs and wheat and you can't see how much or clean it out. A metal toaster oven rack that you remove and clean daily with soap and water before making your gluten-free bread would be OK for a lot of celiacs.

You'll learn to listen to your body and see whether you're one of the celiacs who tolerates 20 ppm gluten, or one who gets sick from 1 ppm and needs an entirely separate toaster.

Glutenfreenoobie Rookie

People's sensitivity to gluten is really variable. Vertical toasters are always a problem. They can trap a lot of crumbs and wheat and you can't see how much or clean it out. A metal toaster oven rack that you remove and clean daily with soap and water before making your gluten-free bread would be OK for a lot of celiacs.

You'll learn to listen to your body and see whether you're one of the celiacs who tolerates 20 ppm gluten, or one who gets sick from 1 ppm and needs an entirely separate toaster.

Great, not what I wanted to hear. I guess I'll learn eventually. I just feel sick almost all the time. A gluten-free diet has already put such a strain on the family budget. Lately I feel like I have to pee all the time. I'll go pee and within 30 secs I have to pee again.

Skylark Collaborator

Great, not what I wanted to hear. I guess I'll learn eventually. I just feel sick almost all the time. A gluten-free diet has already put such a strain on the family budget. Lately I feel like I have to pee all the time. I'll go pee and within 30 secs I have to pee again.

I'm sorry. I hate to be the bearer of bad news about gluten sensitivity.

Needing to pee all the time and feeling sick sure sounds like how I feel with a bladder infection. Have you talked to your doctor?

As for gluten-free and cost, the breads and gluten-free baked goods are really expensive but you don't need them. I eat rice, potatoes, and corn tortillas instead of gluten-free bread to save money.

Glutenfreenoobie Rookie

I'm sorry. I hate to be the bearer of bad news about gluten sensitivity.

Needing to pee all the time and feeling sick sure sounds like how I feel with a bladder infection. Have you talked to your doctor?

As for gluten-free and cost, the breads and gluten-free baked goods are really expensive but you don't need them. I eat rice, potatoes, and corn tortillas instead of gluten-free bread to save money.

I live in America so I'm not so sure eating corn is a good idea, unless the corn is from a local farmer. The reason being hybrid seeds and GMOs make allergies skyrocket, let alone all the shenanigans with HFCS. I've been reflecting lately and I think I'm having an intolerance to all dairy. I'm not sure if I'm just intolerant to dairy or intolerant to gluten also.

Assume that I am both celiac and have IBS. What would my diet look like? I'm pretty sure I would need to cut diary, gluten, fried food and a whole lot of other things. Living in America, land of the junk food my options are pretty limited. How would I manage?

Skylark Collaborator

I live in America so I'm not so sure eating corn is a good idea, unless the corn is from a local farmer. The reason being hybrid seeds and GMOs make allergies skyrocket, let alone all the shenanigans with HFCS. I've been reflecting lately and I think I'm having an intolerance to all dairy. I'm not sure if I'm just intolerant to dairy or intolerant to gluten also.

Assume that I am both celiac and have IBS. What would my diet look like? I'm pretty sure I would need to cut diary, gluten, fried food and a whole lot of other things. Living in America, land of the junk food my options are pretty limited. How would I manage?

Don't you cook? :P

As far as GMO or hybrid corn, I don't worry about it much. If I wanted to eliminate all foods humans have tampered with from my diet, I'd have to head into the hills to shoot a deer and gather wild nuts and seeds. You don't think broccoli or big Idaho potatoes got that way without human intervention and hybridization, do you?

Visit the outside edge of the grocery store where you find all the good stuff. Potatoes, fresh fruits and veggies of all sorts, raw meats, gluten-free lunch meats if you're so inclined, eggs, cheeses if you get dairy tolerant again. Add rice, beans if you tolerate them, corn tortillas (Mission brand has a dedicated line). Olive oil and enough plain herbs and spices (no mixes) to make everything taste good. Then go home and cook healthy food.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.