Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed With Crohn's But Wondering About Celiac


Strineski

Recommended Posts

Strineski Newbie

Hi everyone! Following four months of diarrhea,extreme weight loss, fatigue, night sweats, and low-grade fevers, I was finally diagnosed last week with Crohn's Disease. At first the GI considered Celiac, but he did a colonoscopy, endoscopy, and biopsies and those all came back negative for Celiac or anything else; so then he ordered a small bowel x-ray series, and the radiologist took one look at the terminal ileum in my small intestine and said I have Crohn's. The GI doctor said my most recent round of blood tests also confirmed Crohn's. I am now on Prednisone and Pentasa (only 5 days and I feel no different). However, I'm wondering...does anyone know if Celiac could cause the same visible problems in the terminal ileum as Crohn's? I did go off gluten for two weeks prior to the colonscopy/endoscopy; the doctor said that any allergy still should have shown up in the biopsy even though I'd been off wheat for quite a while. (I did start eating wheat like CRAZY four about five days before those biopsies to try to build it up in my system again). But I guess I'm hoping against hope that maybe I do have celiac and that is what's causing the symptoms and inflammation/stricturing in my ileum. In addition, when I eat offensive foods, it doesn't become diarrhea until many hours after eating--seven to twelve hours, usually. Would wheat ingestion take that long? Thanks for any help!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Desiree49 Newbie

I just found out last week that I don't have Crohn's disease and instead have celiac disease. He told me that they look different, especially on the upper GI scan.

sb2178 Enthusiast

It's possible to have both, but I'm pretty sure that fever and strictures are Crohn's symptoms. Celiac, not so much. I have a couple of friends who have Crohn's and they absolutely have to avoid whole grains, so if you tended to eat whole wheat that would definitely exasperate Crohn's while refined grains less so.

You may also have some food intolerance(s) thrown in there. I'm in the process of an elimination diet, and while it is boring as heck, useful information will be obtained very easily and cheaply. If you have not a consult with a knowledge GI about diet, get a referral to an RD who deals with both food prob and Crohn's to figure out how to deal with food/nutrition issues.

Hi everyone! Following four months of diarrhea,extreme weight loss, fatigue, night sweats, and low-grade fevers, I was finally diagnosed last week with Crohn's Disease. At first the GI considered Celiac, but he did a colonoscopy, endoscopy, and biopsies and those all came back negative for Celiac or anything else; so then he ordered a small bowel x-ray series, and the radiologist took one look at the terminal ileum in my small intestine and said I have Crohn's. The GI doctor said my most recent round of blood tests also confirmed Crohn's. I am now on Prednisone and Pentasa (only 5 days and I feel no different). However, I'm wondering...does anyone know if Celiac could cause the same visible problems in the terminal ileum as Crohn's? I did go off gluten for two weeks prior to the colonscopy/endoscopy; the doctor said that any allergy still should have shown up in the biopsy even though I'd been off wheat for quite a while. (I did start eating wheat like CRAZY four about five days before those biopsies to try to build it up in my system again). But I guess I'm hoping against hope that maybe I do have celiac and that is what's causing the symptoms and inflammation/stricturing in my ileum. In addition, when I eat offensive foods, it doesn't become diarrhea until many hours after eating--seven to twelve hours, usually. Would wheat ingestion take that long? Thanks for any help!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

    3. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    4. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

    5. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,876
    • Most Online (within 30 mins)
      7,748

    pilber309
    Newest Member
    pilber309
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.