Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doctor Is Unsure

dhiltonlittle

Recommended Posts

dhiltonlittle Contributor
dhiltonlittle
Posted

i've done about every test there is out there and it seems to me it is celiac but my doc doesn't seem to want to give it the diagnosis yet. my symptoms are the usual gi stuff (noises, loose(never formed) stools, sometimes constipation, nausea,headaches, brainfog, dizzyness, etc etc. i had antigliadin iga antibodies elevated to 39 with a range >11 being positive. igg i think was fine as was all of the ttg and deam peptide tests. colonoscopy was fine but endo showed mild blunting of villi and said inconclusive for celiac diagnosis. thoughs? i'm going to the celiac center at columbia university in a few months for a second opinion. what do you all think? my doc says he is not ruling out celiac but is still looking around for other stuff. my gene test was dq8 positive and dq2 negative. i am also hypothyroid.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

Hi, your blood test, your symptoms, hypothyroidism plus mild blunting means celiac.

Maybe go over to the delphi celiac forum where some people got diagnosed with mild blunting? You might get some more input there.

sb2178 Enthusiast
sb2178
Posted

blunted villi plus positive bloodwork? Seriously, still questioning?

umm... yes... that would be celiac disease. Can CU get you in sooner? Are you still eating gluten? Ask them if you can stop if you are since you already have the biopsy and bloodwork. And STOP. Three things you can follow up on with them: bloodwork shift to normal after going gluten-free, cessation or continuance of symptoms after gluten-free, and genetic testing.

Skylark Collaborator
Skylark
Posted

Marsh 1 biopsy is not positive for celiac in the strictest sense. There is research showing that some people with positive bloodwork and mild blunting feel better off gluten, and that some convert to Marsh 3 or Marsh 4 biopsies if they keep eating gluten.

dhiltonlittle Contributor
dhiltonlittle
Posted
  • Author

thanks for the replies so far. i have not eaten gluten for about 1 1/2 or 2 months now. i have seen some slight improvement of some symptoms but nothing night and day. i also stared synthroid at the same time so it is hard to know what is doing what. i wish i could get in to the center earlier but that was the soonest they could see a new patient. one doctor was booked solid until november!

nora-n Rookie
nora-n
Posted

I think many places, including the U of Maryland will diagnose celiac with blunted villi and symptoms and bloodwork and if you get better off gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,821
    • Most Online (within 30 mins)
      7,748
    MHolm
    Newest Member
    MHolm
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      New here

      By cristiana · Posted

      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      New here

      By trents · Posted

      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      Probiotics

      By Theresa2407 · Posted

      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      New here

      By KathyR37 · Posted

      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.