Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Other Tall Celiacs Out There?


LqrMan

Recommended Posts

LqrMan Newbie

I couldn't find the best place to make this topic, so I put it into the health section. I am 6'2'' and remarkably continued to grow even though I was malnourished/anemic/had osteoperosis before being diagnosed with celiac disease! I was just wondering if there are any other tall celiacs that can relate because I always thought celiac could stunt your growth if not dealt with properly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

I haven't been officially diagnosed as Celiac but I am gluten intolerant and have had symptoms most of my life. BUT I am 5'10", have great teeth (no cavities) and as far as I know, no osteoperosis.

Stephanie

Guest BellyTimber

I'm 50 so this story goes back.

My parents who are now elderly have been unburdening themselves of the odd matter that they had kept to themselves or even just plain forgotten about, as is normal I'm sure.

My experience was that I was seriously emaciated, underweight and weak from age about 5 to well past 20, but never stopped putting on height and in fact was almost the tallest in the class bar one or two until most of the rest caught up with me at around age 16. I have been 6ft since about age 16, which would have been tall earlier in the century but is perhaps near average among my contemporaries.

Am now 15st due to middle age spread which further confuses doctors.

What my folks just told me is, they were almost in trouble because I was so emaciated. This was after coeliac disease was heard of but evidently insight hadn't spread.

I had lots of symptoms that later (but not very well known) science has associated with celiac disease-like conditions.

HTH :)

Guest gliX

i wouldn't call myself tall but i'm around 5'9 now..but didn't really grow until i went on the diet.

tarnalberry Community Regular

darn... I wish I put on height after I went on the diet... 5"2' is tough to shop for - but hey, I can fit the cheaper childrens clothing. ;-)

Guest imsohungry

Hey there! B)

Interesting topic! I'm 5'8" and have been thin my entire life. Of course, I fight multiple chronic disabilities...so I can't necessarily blame my blood probs. and thinness on celiac disease alone.

Hee hee...I was 5'6" by the end of elementary school with a whopping size nine foot. Doctors thought I would be closer to six feet, but I got sick and quit growing remarkably early.

Could be a blessing in disquise...I could be a giant! :P

flagbabyds Collaborator

I;m almost 5'7" and still growing tall because I am almost 15 and I grew about 7" since I was diagnosed w/ sleep apnea YAY!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Thomas Apprentice

Smith

Carriefaith Enthusiast

I'm also almost 5"7 and I'm done growing.

Guest imsohungry

Hi Smith...I didn't mean that being tall means you are a giant (in any negative way)...Like you, I also appreciate my height. B)

Well, all you tall ladies and gents out there have a good day! -Julie ;)

VegasCeliacBuckeye Collaborator

I'm 6 feet and 2 inches.

I weigh around 230.

Everytime I go to a Celiac "event", people are suprised that I have Celiac. I guess some people think it can only happen to skinny folks (its not that I'm chubby - I'm just a corn-fed Ohio boy).

Guest vetnurse

I am 5'11" and 43 so I hope I don't get a growth spurt! :o

skbird Contributor

I wanted to be six feet tall. Was a goal. I had a size 10 shoe at the end of 6th grade. Still wear size 10 shoes. I met a second cousin of mine about 10 years ago and she wears size 12, for some reason I was envious of this!

Funny anyway, I guess there is no one way to look/be with gluten intolerance.

Stephanie

LqrMan Newbie

Hey all...thanks for the replies!

I guess our bodies are quite amazing if they are able to still grow with health problems. We are quite the diverse group of celiacs! My goal growing up was to be taller than my father and be 6'1'' but then I said the heck with that, might as well be 6'2''. I have size 12/13 feet too...

  • 1 month later...
bremac Apprentice

I'm 5'8" but I stopped growing a couple years before I was diagnosed so I don't know if celiac disease affected my growth that much. I have always been thin, but not underweight. My dad is really tall (6'6") so I think I reached my "natural" height.

Bre

Canadian Karen Community Regular

I'm 5'9", and I am the shortest one in my family..... People used to call my dad an "ex-mountain", he's huge......

My daughter (who so far is not celiac) is only 11 and she is already 5'7" with a ladies size 9 foot!!!! I am still waiting for her growth to level off a bit...... Interestingly, my younger daughter who is 6 is the cutest, tiniest, petite little pixie you ever saw. Go figure, eh? Two children, same parents, opposite ends of the spectrum.....

Karen

tasha Apprentice

I'm 5'8 -5'9ish, I guess that is kind of tall. I think I only developed celiac disease about two years ago (I'm 20 now), which was when I stopped growing. Its hard to tell if I stopped growing because of celiac or just because of my age.

nikki-uk Enthusiast

We suspect my dh has had celiac disease since childhood,always extremely thin,now at 6ft at 110 pounds.

Oddly enough most of his family are on the small side(one brother is only 5ft 4inches-no celiac disease)

It seems that children grow-even if they're malnourished-but I think you pay the price in your health in later years.

celiac3270 Collaborator

I was short--around 5'2"...since Feb. I've grown about 5 inches and gone from a size 8 shoe to 10 1/2. My GI says it's catch up growth. I should be over six feet tall.

VegasCeliacBuckeye Collaborator

I'm around 6'3 and 225 lbs.

I have to admit, I don't meet that many celiac disease's that are my size....

Generic Apprentice

I am 5'8", I think I would have been a lot taller. My dad is 6'6" and my mom is 5'1". I am glad my growth was stunted actually.

Guest gliX

I'm around 5'9 now

and definitely grew after going gluten-free

  • 2 weeks later...
Brian Allee Newbie

I'm 6'1" and I went through a huge growth spurt my junior and senior year in

High school. I still have knee and back pain! I think I developed Celiac a little bit later in life.

Misa Rookie

This is an interesting topic. Celiacs do come in all shapes and sizes.....

I'm 173 cm, I think that's 5'9. Looking back, have had celiac disease symptoms all my life. My sister is exactly the same height, and both my brother and father are tall people. But I was always the very slim one, even though I ate HUGE amounts of food all day long.

Misa :D

LRgirl Explorer

I'm 5'11, so is my dad! My mom is 5'8. My mom's side of the family are 5'8 or taller.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Going for upper endoscopy today

    2. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

    3. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Going for upper endoscopy today

    4. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    5. - Cecile replied to Cecile's topic in Related Issues & Disorders
      4

      Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,188
    • Most Online (within 30 mins)
      7,748

    TBH
    Newest Member
    TBH
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!    
    • Scott Adams
      I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs.
    • Midwesteaglesfan
      UPDATE:  here I am a couple months past my full diagnosis and going gluten free.  I’ve been feeling a lot better.  More energy, joint pain has gone down a lot.  Haven’t really had the headaches and migraines I’ve had for years.   My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said,  have the dr test her for celiacs.  Her antibodies came back as greater then 100.  So she is scheduled for her endoscopy and going to be joining me on this journey.
    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.