Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Borland-Grover Clinic Said Ok To Be Off Gluten And Get Tested


Not2sure

Recommended Posts

Not2sure Rookie

I'm a newbie trying to figure out what to do. I've experienced diarrhea for a few months now along with greasy/oily stool, and have lost weight, which I didn't need to do. I've had fecal fat, bacteria and parasite testing done on my stool and they all came back normal. So the Doctor's PA and I spoke about the possibility of Celiac Disease and she's ordered blood work to test for it. The doctor's assistant and I spoke today as I wanted to know what type of test would be ordered and she said that it's a test for Celiac and that they draw blood, freeze and send to a lab in South Florida to be tested. I asked her if it would matter that I'd been off of gluten for about 2 weeks and she said no, it wouldn't matter.

So I'm confused as I've read on the forum that a person should be on gluten when getting tested. I want to know what others think. She said that they test for antibodies and if I have them they would show up whether I've eaten gluten or not.

Let me know what you think, so that I have a clear understanding of what to do before I get tested.

I also wanted to say that my bowels have cleared up tremendously since getting off gluten with no diarrhea and no obvious oil in my stool.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I'm a newbie trying to figure out what to do. I've experienced diarrhea for a few months now along with greasy/oily stool, and have lost weight, which I didn't need to do. I've had fecal fat, bacteria and parasite testing done on my stool and they all came back normal. So the Doctor's PA and I spoke about the possibility of Celiac Disease and she's ordered blood work to test for it. The doctor's assistant and I spoke today as I wanted to know what type of test would be ordered and she said that it's a test for Celiac and that they draw blood, freeze and send to a lab in South Florida to be tested. I asked her if it would matter that I'd been off of gluten for about 2 weeks and she said no, it wouldn't matter.

So I'm confused as I've read on the forum that a person should be on gluten when getting tested. I want to know what others think. She said that they test for antibodies and if I have them they would show up whether I've eaten gluten or not.

Let me know what you think, so that I have a clear understanding of what to do before I get tested.

I also wanted to say that my bowels have cleared up tremendously since getting off gluten with no diarrhea and no obvious oil in my stool.

You need to be on a full out gluten diet for the test to yield an accurate result. I'm not sure how much healing you would have done in only 2 weeks--symptom improvement isn't always in line with actual intestinal healing.

You have already done a perfectly valid test with your own body, in that your symptoms improved greatly after cutting out gluten. You could just take that for your answer and stay gluten-free. If you feel you want an official diagnosis I would suggest postponing the test and going back on gluten for a month at the rate of 3-4 slices of bread a day. I'm sure that the thought of making yourself sick all over again sounds awful and I would agree.

It's a personal decision about which way to go.

siglfritsch Newbie

You need to be on a full out gluten diet for the test to yield an accurate result. I'm not sure how much healing you would have done in only 2 weeks--symptom improvement isn't always in line with actual intestinal healing.

You have already done a perfectly valid test with your own body, in that your symptoms improved greatly after cutting out gluten. You could just take that for your answer and stay gluten-free. If you feel you want an official diagnosis I would suggest postponing the test and going back on gluten for a month at the rate of 3-4 slices of bread a day. I'm sure that the thought of making yourself sick all over again sounds awful and I would agree.

It's a personal decision about which way to go.

I agree. I was tested after being off gluten for 3 weeks and everything came back negative, although, like you my stools finally were normal. It used to be I could see everything I ate the day before in my stool, so much undigested food and the stool was light tan colored. My doc said the same thing, that not a lot of healing would happen in 3 weeks, but according to a Dr. Green's book on celiac you have to eat the equivilant of 4 pieces of bread for 1-3 months right up to the test. My results were negative but now I'll always wonder if it was an accurate test. A huge waste of 400 bucks and I'm not repeating them. Even if it still came back negative after re-testing I would'nt eat gluten because it makes me sick, so what's the point? The really one positive thing about having celiac is that you can eat what you want, yot can treat yourself and don't have to have a docs prescription for anything.

O.N. Rookie

I'm a newbie trying to figure out what to do. I've experienced diarrhea for a few months now along with greasy/oily stool, and have lost weight, which I didn't need to do. I've had fecal fat, bacteria and parasite testing done on my stool and they all came back normal. So the Doctor's PA and I spoke about the possibility of Celiac Disease and she's ordered blood work to test for it. The doctor's assistant and I spoke today as I wanted to know what type of test would be ordered and she said that it's a test for Celiac and that they draw blood, freeze and send to a lab in South Florida to be tested. I asked her if it would matter that I'd been off of gluten for about 2 weeks and she said no, it wouldn't matter.

So I'm confused as I've read on the forum that a person should be on gluten when getting tested. I want to know what others think. She said that they test for antibodies and if I have them they would show up whether I've eaten gluten or not.

Let me know what you think, so that I have a clear understanding of what to do before I get tested.

I also wanted to say that my bowels have cleared up tremendously since getting off gluten with no diarrhea and no obvious oil in my stool.

I was gluten-free for almost 2 months when my celiac blood test was done. It was my BIG mistake to let them do the test. I had doubts about it, but my doctor was sure that such a short period of time wouldn

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      12

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,360
    • Most Online (within 30 mins)
      7,748

    Known1
    Newest Member
    Known1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.