Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Airborne Wheat

beksmom

By beksmom
in Coping with Celiac Disease

Recommended Posts

beksmom Apprentice
beksmom
Posted

It is Saturday June12, 2010. I have been in and out of the hospital for four days with severe hives and back to back anaflactic reactions. Ive been put on high doses of prendisone, benedryl, my potassium is low so they put me on klor- con 10 mg. ive had to use an epi pen once already and theyve had to give me it twice at the hospital. Being that i have taken all wheat out of my diet can this be a new serious problem to be resolved due to airborne wheat grass. anyone please help/advise.

thank you

beksmom

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Why do you think of air borne wheat? Where is it coming from? Any thoughts from the doc's on what is causing the allergic type reaction? Not doubting you, just trying to help you investigate.

Also, if you dont't mind - where do you live ? And is it city, suburb, country?

beksmom Apprentice
beksmom
Posted
  • Author

Why do you think of air borne wheat? Where is it coming from? Any thoughts from the doc's on what is causing the allergic type reaction? Not doubting you, just trying to help you investigate.

Also, if you dont't mind - where do you live ? And is it city, suburb, country?

beksmom Apprentice
beksmom
Posted
  • Author

I live in Mt Shasta, CA Its Northern California about 2hours from the Oregon border. I was thinking airborne because i have been gluten free since December and i'm thinking maybe now that i'm not ingesting wheat maybe my body doesn't have it in my system to resist it in the air??? i really don't know i'm just starting to get scared nothing has changed in my home enviroment and have not changed soaps or cleaners?

mushroom Proficient
mushroom
Posted

I am wondering if you have ever had other allergies in your life, not just to foods but to pollens, cats, whatever??? Not saying that it is caused by anything like this but some people are more predisposed to a massive histamine response than others. It could be that you have built up an intolerance to something else, something that has never bothered you before.

As an example, I have never been bothered by the pine pollen at Lake Tahoe which is very heavy over the summer. Last year was especially bad and for the first time I started sneezing and couldn't stop. And the pine pollen is supposed to be too large to cause that kind of response :( . I hope I don't do it again this year. Also, the first few times I was exposed to poison oak I had no problems, but by the time I left California I was afraid to go outdoors in the summer, but not to worry, my cat used to bring it in to me :lol: I have also become intolerant to other foods as you will see from my signature as the months of gluten free have gone by. Certainly not to the point of anaphylaxis but to a very distressing degree nevertheless, so it is possible for this to happen. Some of the things like the citrus, it was obvious that I had just been eating too much of it, but the recent problem is legumes of all kinds, even green peas and beans, which I have eaten all my life without problem.

So I am suspecting that it might be another food intolerance that is getting you big time!! Have you been eating a lot of, say, corn, or something else like that? Or have you had a different kind of gluten free flour in a bread mix?? Just thoughts thrown out there. I know how frightening this must be for you and I hope that you and your doctors can pinpoint what is causing it.

beksmom Apprentice
beksmom
Posted
  • Author

That is a good point i will ask my doctor to run a panel on food allergies since i've totally changed to 100 percent gluten free maybe i am over exposing myself to an ingredient that i now am allergic to. Who Knows ? But it certainly wont hurt. If you come up with any other thoughts please let me know.. Have you ever heard of anyone with airborne issues ? Or is that a far fetched possibility? They also said they cant do skin testing for airborne allergies until this episode ends, otherwise i can stop breathing right now, its too dangerous during the flare up.

Once again , thank you soooooo much for giving me some directions to go in and giving me hope,

Beksmom

mushroom Proficient
mushroom
Posted

Well, springtime is a notorious allergy season for anything that blooms and produce pollens in spring. I would doubt that it would be wheat because harvest season is surely not upon you yet when wheat could be flying in the air. Do they grow wheat in the Shasta region? What else grows nearby you that could be producing allergens at this time of year??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

This is some sort of allergic reaction you are having to something that you have come in contact with or eaten or drank.

Ask yourself what is different.

Medications, food, topical lotions, etc.

Insecticides, too.

Before I went off wheat and gluten I was hypersensitive to a lot of things, especially cosmetics like shampoos, now, not so much, except I welt up when I handle certain types of hay, so I wear long sleeves and I rinse my arms off immediately afterwards. We have one horse who is allergic to one kind of hay, the kind that he can eat, that does not contain this in the mix, I am allergic to. But I can go from just starting to turn pink to it immediately going away just by washing it, the reaction goes as fast as it starts. I petted the dog today, who had been outside, and my wrist got one welt, I immediately washed it and five minutes later it was gone. There is some kind of dry summer pasture weed coming up that I react to big time, just starting to make its move, I can smell the stuff outside now. It is a very sticky plant, that blooms in the fall. I have another horse who reacts to this stuff, too, I have been trying to find the botanical name.

The other type of reaction I've had where I had to go to the prednisone / massive amounts of benedryl route is to poison oak, to which I am hyper hyper sensitive. The last time I managed to pick it up while doing a fence repair, and then it spread to places you can't imagine- I had it on my face and eyelids, too. It took over a month to get over it, and my skin didn't really react normally to anything for several more months.

I've also gotten it from the dogs. We ended up making the one dog an outside on the enclosed porch dog at night because of this because she gets into it more than the others. You can also pick this up from burning brush, the smoke will spread it. DO NOT BURN POISON OAK you can die from breathing the smoke fumes.

Gluten does not typically cause this sort of reaction, and you probably are allergic to something else, which I hope you figure out.

kareng Grand Master
kareng
Posted

I asked where you live because of the different types of pollen. Here around now or in the next few weeks, corn pollen can be big in the air. I know a few people that have problems with it. When I lived in Sacramento but worked up in Placerville, pine pollen was big. I know it bothered people and my dog. You might email the local TV weatherman and see if he can tell you what has been heavy in the air. The ones here keep track of and report that.

Any bug bites? Maybe you are having a reaction.

It really sounds like an allergic reaction and allergies can develop or go away over time.

dilettantesteph Collaborator
dilettantesteph
Posted

I am sensitive to airborne gluten. I got very sick when I accidentally breathed in some flour when I threw mine out. The other day I went biking in the country and got worried when I saw farmers turning over their fields, maybe winter wheat? I was fine. I am much more sensitive to trace gluten in food. Unless you have some obvious source of airborne gluten, like you work in a bakery or something, I would look first at what you are eating. Also what you might be eating by accident in terms of lotions, shampoos etc.

kwylee Apprentice
kwylee
Posted

Sounds like everyone has given you some good leads in solving this, so happy about that. Like many on this forum, I know what it's like, how scary it is to have something going on in your body that you just can't figure out, so I'll be sending strong positive thoughts your way. Please write and let everyone know when you are better.

Skylark Collaborator
Skylark
Posted

Please find a good allergist and get there as soon as you possibly can!

Anaphylacic type allergens can be identified really easily with skin tests, and you don't want to try to diagnose a life-threatening allergy without help. You can't assume this is wheat. Your body may have changed since you went gluten-free and you'll need a full allergy panel to figure out what you're reacting to.

beksmom Apprentice
beksmom
Posted
  • Author

I just want to thank all my friends hee on this forum for throwing out your advice and giving me some directions to try. I love you all and will be keeping you posted as tests are done.

God Bless!

Beksmom

kareng Grand Master
kareng
Posted

I just want to thank all my friends hee on this forum for throwing out your advice and giving me some directions to try. I love you all and will be keeping you posted as tests are done.

God Bless!

Beksmom

Yes, please keep us posted. We are extremely nosy and love the gory details. ;). (OK, that's a joke). Hope you get some help soon.

Skylark Collaborator
Skylark
Posted

I just want to thank all my friends hee on this forum for throwing out your advice and giving me some directions to try. I love you all and will be keeping you posted as tests are done.

God Bless!

Beksmom

God Bless! I hope you get some answers before you get sick again. Good luck.

lovegrov Collaborator
lovegrov
Posted

Just wanted to assure folks with celiac that the reaction you're reading about in this post is an allergic reaction, not a celiac one. That doesn't make it any less scary for beksmom, but the vast majority of us don't have to worry about going into shock.

richard

whitey Rookie
whitey
Posted

Just noticed this thread air born, i was wondering,i do metal detecting which is in farmers fields of all different crops after being harvested, will it affect me ???? gosh another thing to worry about.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,948
    • Most Online (within 30 mins)
      7,748
    Stephanie94
    Newest Member
    Stephanie94
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.