Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Migraines After Gluten Free


melblondin

Recommended Posts

melblondin Apprentice

Has anyone experienced migraines after going gluten-free? I've never had a migraine before in my life but was just hit with a terrible one last night complete with auras and everything. As far as I know I've been gluten free but maybe some sneaked in somewhere. The only thing I can think of is possibly my thyroid meds that I take everyday (Levothyroxine by Sandoz). I've tried looking into them, but haven't been able to get an answer yet. Does anyone else know about that company or experienced something similar?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I had occasional migraines before I went gluten free, but they really started up a few years after I was gluten free - when I moved and changed jobs. It's not always a food thing (or certainly not always a gluten thing) and they can come on at any time. For me, I suspect it was a combination of stress affecting my brain chemistry and barometric pressure changes.

Coolclimates Collaborator

You are probably experiencing withdrawl symptoms. I also had lots of headaches the first few weeks of the gluten-free diet, as well as crying spells, anger and all kinds of emotions. The gluten-free diet is like quitting smoking or drugs cold turkey. Essentially, it's not much difference. If you're used to eating glutenous foods all your life and suddenly remove them and drastically change your diet, you will most likely experience withdrawl symptoms. They should improve, they were the worst for me the first couple of weeks. I hope your migranes improve soon.

T.H. Community Regular

For me, I only had one migraine in my life before going gluten free, and after I was gluten free for a while, suddenly I get migraines if I eat peanuts. :blink: No idea why, it doesn't test positive as an allergy, but if I eat it, I get a migraine. Even ingested it accidentally twice now, same reaction.

However, re: medicines! there is a great site that is kept up by a pharmacists that lists drugs by name that are gluten free. It's kept very up to date.

Open Original Shared Link

And according to it, I'd say you are right on the money with your worries. It lists Levothyroxine as gluten free if it is made by Lannett and Movak but no other companies were listed. So that could definitely be your culprit!

Has anyone experienced migraines after going gluten-free? I've never had a migraine before in my life but was just hit with a terrible one last night complete with auras and everything. As far as I know I've been gluten free but maybe some sneaked in somewhere. The only thing I can think of is possibly my thyroid meds that I take everyday (Levothyroxine by Sandoz). I've tried looking into them, but haven't been able to get an answer yet. Does anyone else know about that company or experienced something similar?

melblondin Apprentice

Thanks everyone for the responses and esp. for that website. I had tried contacting the company, but hadn't got very far, and then ended up just getting busy with other things and forgetting all about it. I will pursue that further for sure. I haven't had another migraine since Sunday and am praying things stay that way!!!

melblondin Apprentice

Just in case anyone else is wondering I talked to someone at Sandoz, the makers of the Levothyroxin 112 mcg that I'm taking and they said that while they can't certify that their products are gluten free because they don't test for it in their facilities, none of the actual ingredients in the medication contain gluten. Do you think it's safe to assume that the medication is okay then???

ravenwoodglass Mentor

Just in case anyone else is wondering I talked to someone at Sandoz, the makers of the Levothyroxin 112 mcg that I'm taking and they said that while they can't certify that their products are gluten free because they don't test for it in their facilities, none of the actual ingredients in the medication contain gluten. Do you think it's safe to assume that the medication is okay then???

I take a generic drug that Sandoz makes because the name brand isn't gluten free. I have had no issues with it. I can't of course say for sure that yours or any other they make wasn't CC'd somewhere down the line since they don't test but I would feel safe taking it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

For me, I only had one migraine in my life before going gluten free, and after I was gluten free for a while, suddenly I get migraines if I eat peanuts. :blink: No idea why, it doesn't test positive as an allergy, but if I eat it, I get a migraine. Even ingested it accidentally twice now, same reaction.

However, re: medicines! there is a great site that is kept up by a pharmacists that lists drugs by name that are gluten free. It's kept very up to date.

Open Original Shared Link

And according to it, I'd say you are right on the money with your worries. It lists Levothyroxine as gluten free if it is made by Lannett and Movak but no other companies were listed. So that could definitely be your culprit!

how soon after eating peanuts, do you get the migraine?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.