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Intestinal Healing In Celiac

Dino

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Dino Rookie
Dino
Posted

I have been gluten free for about 2 months. Things seem to be getting better although once in a while I seem to get hit with something that is similar to a gluten hit. Probably some sneaking in as I get used to the new lifestyle. I do have a couple of questions though. Should I back off of coffee. I enjoy it and it did not seem to cause any problems but it has been suggested that it might slow down healing. Also has anyone had any experience with plant enzymes helping in healing?

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Kay DH Apprentice
Kay DH
Posted

My doctor said coffee, even decaffeinated, can relax the esophageal sphincter and increase acid reflux. It also seems to have an effect on IBS such that it encourages food to move through the digestive track at a faster pace. Perhaps you are either having problems with contamination or cross-contamination of gluten, or the coffee is causing GI problems? Writing down you rmeals and marking any GI or other problems may help to pin down the problem. I got sick from gluten-free hummus (small print processed in same plant with wheat...) and from a gluten-free cupcake that was in a bag that had a non-gluten-free roll. Best of luck with your investigations. I'm new to gluten-free and it is quite the life change, and one that few people understand.

RoseTapper Newbie
RoseTapper
Posted

Celiac experts oftentimes recommend taking L-Glutamine to heal the gut, and also Metagenics Medical Food has been recommended to me. I put it in my morning smoothie for about a year, and it helped my digestion a lot. You don't have to take the full amount it suggests--just one scoop is all you need to feel better.

burdee Enthusiast
burdee
Posted

Celiac experts oftentimes recommend taking L-Glutamine to heal the gut, and also Metagenics Medical Food has been recommended to me. I put it in my morning smoothie for about a year, and it helped my digestion a lot. You don't have to take the full amount it suggests--just one scoop is all you need to feel better.

I second the L-Glutamine suggestion. I'm taking that 2x daily now to heal damage from long misdiagnosed celiac disease, food allergies, and 8 gastrointestinal infections (including pathogenic bacteria, 2 parasites and candida). I'll take that for at least 6 weeks and then assess my progress.

SUE

Dino Rookie
Dino
Posted
  • Author

How much L-Glutamine have you guys been taking.

Gfresh404 Enthusiast
Gfresh404
Posted

I have been gluten free for about 2 months. Things seem to be getting better although once in a while I seem to get hit with something that is similar to a gluten hit. Probably some sneaking in as I get used to the new lifestyle. I do have a couple of questions though. Should I back off of coffee. I enjoy it and it did not seem to cause any problems but it has been suggested that it might slow down healing. Also has anyone had any experience with plant enzymes helping in healing?

I would lay off the coffee for a while - see if you notice an improvement. I believe it is an irritant to the GI tract.

The "gluten-like" poisonings that you describe is most likely either cross contamination or lactose intolerance.

You also have my vote for the Glutamine supplementation, but I would be very careful with it. Most of the studies have shown little to no side effects, but I still don't buy it. I take two grams once a week on an empty stomach with some enzymes. But I have noticed some personality changes after taking it, mostly depression. Theoretically it could also cause some brain damage. It is a natural substance (the most abundant amino acid in the body), but it does not occur by itself in virtually almost any dose. The only reason I still take it is because I believe the benefits outweigh the risks. Just monitor yourself as you take it.

Enzymes also helped me greatly - I'm not sure if it was so much with healing, but more just energy levels.

Dino Rookie
Dino
Posted
  • Author

Ok, I will lay off the coffee, I hear camomile tea is good for the gut so I will trade in my coffee for now. I also am going to start to take probiotics as well as some L-glutamine and see if that all helps. I have been feeling better over all but am kind of tired of the days when I don't so I will be much more consistent and hopefully these things will help.

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burdee Enthusiast
burdee
Posted

How much L-Glutamine have you guys been taking.

I'm taking one rounded teaspoonful of L-glutamine powder dissolved in a cup of water 2x daily (when I first wake up and before bed) for at least the next 5 weeks. However, I'm using that to treat stomach damage from the H. Pylori bacteria as well as longterm celiac damage. I wasn't diagnosed with celiac disease until I was 56, but I had symptoms for at least 15 years before that. So like other adults diagnosed in middle age, I may still have unhealed intestinal lesions from celiac disease. Hopefully the LG will heal all that.

SUE

Gfresh404 Enthusiast
Gfresh404
Posted

Ok, I will lay off the coffee, I hear camomile tea is good for the gut so I will trade in my coffee for now. I also am going to start to take probiotics as well as some L-glutamine and see if that all helps. I have been feeling better over all but am kind of tired of the days when I don't so I will be much more consistent and hopefully these things will help.

Things will only get better.

Dino Rookie
Dino
Posted
  • Author

I am not sure but does getting "glutened" affect the psyche? It seems that a couple of days after getting hit and the gut seems to feel better my mood stinks. I get angry much easier and go into a depressed mood. This lasts for a day or two. Anybody else experience this?

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    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
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      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
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