Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Secondary Infertility And Other Questions


happylittlemama

Recommended Posts

happylittlemama Rookie

I am newly diagnosed and have a few questions in the "lady issues" section. My husband and I have 6 kids all about 2 years apart. In the 9 years I was conceiving kids I had 4 miscarriages, the last two being in the past year. My 6th baby was a twin but we lost one of them early on. I've always had issues with cysts, but never diagnoses with PCOS. At 14 I had an 8lb ovarian cyst removed along with my left ovary. We had decided to have one more baby, but when we didn't conceive for almost 1 year I went in to see a doctor. In Dec. I started going to an OBGYN that ran some tests and told me I was entering early menopause and that I had less than 1% chance of conceiving a baby because my eggs were now low quality. I'm 36! Reading on my own I saw that women with one ovary go into menopause 6-10 years earlier than their peers. The same statics are for Celiacs as well. Are these numbers reversible once getting healthier on a gluten free diet?

My question is if going on the diet has helped with conception on your own or if once you are at this stage that I am (pre-menopausal) it's not reversible? My first cycle a couple weeks ago since going gluten-free was lighter than usual and short. Usually the cycles lasted 7-14 days with a lot of pain and heavy bleeding. My cycles started coming closer together over the last year too, somewhere around 21-25 days, but they were not predictable either, sometimes coming 18 days apart or 35 days. This kind of wrecks havoc on a person trying to conceive. I guess my other question is just about cycles: what were they like upon diagnosis and how did they fair after a year or so after diagnosis?

Thanks for any input. This part of the disease is very fascinating to me. Oh, and I also forgot to add that I'm quite anemic and low in Vitamin D, things which I know affect fertility. I'm really blessed and surprised I was able to have 6 healthy children knowing what I know now.

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StacyA Enthusiast

Sorry no one replied to your post yet, and you may already have your answers, but I've known people who were able to finally conceive after going gluten-free. However you've obviously conceived before. One symptom untreated celiac is absence of a period or lighter period, so going gluten-free often makes women have heavier periods.

You already said having one ovary speeds up menopause - and celiac and menopause are two different things. You don't mention if you have celiac disease or gluten intolerance. If gluten isn't an issue with your body, then going gluten-free may not change your fertility.

  • 2 weeks later...
SGWhiskers Collaborator

I'm sorry I missed your post too. At 31, I was told I would need an egg donor because my day 3 and day 10 fsh and something else were not where they should be. 3 years later, I was diagnosed with celiac, and started a gluten free diet. My periods became lighter and shorter and initially had less cramping (I have endometriosis). After 2 years Gluten free, I concieved naturally. If you are trying to figure out when best to time intercourse, I would HIGHLY recommend Taking Charg of Your Fertility. It is a book by Toni Weschler. My cycles have never been that regular, but I know when I'm ovulating now and when to expect my period. Both are highly convenient to know.

Good luck with the new diet and TTC your next little one.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.