Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

They Got Me!


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

I've been eating gluten free at Pei Wei every week with no problem but on Friday night they got me!!!!

I've had anxiety, heart racing, D then C, horrible stabbing pains and I'm so bloated I look preggo. I weighed myself and I gained 5 pounds from yesterday to today in water and bloating.

Gah!!! I need to call them tomorrow when it's not so busy and let them know they need to be more careful.

I'll give them another chance. They glutened me once out of like 20 times I've eaten there. But darnit. It is true that every time you eat out you take a risk, but the alternative really sucks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

I've been eating gluten free at Pei Wei every week with no problem but on Friday night they got me!!!!

I've had anxiety, heart racing, D then C, horrible stabbing pains and I'm so bloated I look preggo. I weighed myself and I gained 5 pounds from yesterday to today in water and bloating.

Gah!!! I need to call them tomorrow when it's not so busy and let them know they need to be more careful.

I'll give them another chance. They glutened me once out of like 20 times I've eaten there. But darnit. It is true that every time you eat out you take a risk, but the alternative really sucks.

You poor thing ... I'm so sorry! And on a holiday too!

dilettantesteph Collaborator

Sorry that happened. I haven't chanced it for some time. Too chicken. I get glutened enough as it is.

ravenwoodglass Mentor

I'm sorry you got glutened. I hope you feel better soon. Every time we go out we are playing roulette. That's why I don't eat out very often.

vbecton Explorer

Ugh! I just ate there today. I was happy they had a gluten free menu, but I most certainly understand how risky it is for us to eat out no matter the precautions they take. Hope you feel better soon.

CarolinaKip Community Regular

I hate that happened to you! I have eaten out 3 times since learning of my Celiac status. I had one good experience. My dietition said you have to live, but right now, I'm having too much pain in my own home. I hope you feel better soon!

kip

i-geek Rookie

I eat out at most twice per month. I seem to get glutened or at least CCed about 1/3 of the time. IMO the alternative doesn't suck that much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

I eat out at most twice per month. I seem to get glutened or at least CCed about 1/3 of the time. IMO the alternative doesn't suck that much.

That's awful! I eat out a lot and I've only been glutened 3 times. Once it was McD's fries. They must have messed up the dedicated fryer. I will never eat McD's fries again. The second was Daphne's fries. Won't eat fries except In N Out now. Then Pei Wei.

But I've seriously eaten Pei Wei at least 20 times since diagnosis so that's pretty decent odds. I've never gotten sick from them before.

It's not an easy choice whether to eat out or not, but the lifestyle I lead demands it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,238
    • Most Online (within 30 mins)
      7,748

    Chrystal May
    Newest Member
    Chrystal May
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.