Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Reactions

Kelsls6608

Recommended Posts

Kelsls6608 Newbie
Kelsls6608
Posted

My boyfriend just got diagnosed with celiac disease about 1 month ago, so we are still getting used to everything. I was curious to what others see or what types of reactions people are having when they accidentally eat something with gluten in it. I am just wondering what the normal reactions are, although I know they do vary from every person. One thing I have noticed with my boyfriend when he has reactions is that he of course has terrible stomach aches, sometimes vomiting occurs, headaches, and one of the main reactions is that he has trouble breathing. Sometimes theses reactions last all night and sometimes they only last for a few minutes. I am still learning about all of this, so any advice is much appreciated! Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


OptimisticMom42 Apprentice
OptimisticMom42
Posted

Rashes, hives, constipation, depression, sore joints.

And I never actully eat gluten food, this is all just from accidental cross contamination.

Hope this info is helpful, RA

knittingmonkey Newbie
knittingmonkey
Posted

... I was curious to what others see or what types of reactions people are having when they accidentally eat something with gluten in it. I am just wondering what the normal reactions are, although I know they do vary from every person. One thing I have noticed with my boyfriend when he has reactions is that he of course has terrible stomach aches, sometimes vomiting occurs, headaches, and one of the main reactions is that he has trouble breathing...

I get a mysterious gurgling sound and sensation under my right rib cage about an hour or two after being glutened. My stomach gets sore. My mood falls and I seem to get pretty morose and tired, then after a day or more I get a terrible bout of diarrhea.

I seem to have not ever broken out with DH, Vomiting is rare. No headaches. and no trouble breathing.

i-geek Rookie
i-geek
Posted

Migraine (sometimes for several days), nasty mood swings (one of the earliest symptoms), stomach gurgling (several days), bloating, constipation (a couple of days) followed by diarrhea (a couple of days), extreme fatigue, acne breakout. I've never vomited but did get the dry heaves from migraine pain the last time I took a really bad CC hit. These are all CC or accidental glutening symptoms; I don't ever knowingly eat gluten.

marie1107 Newbie
marie1107
Posted

CC will usually give me a burning feeling in the stomach/belly plus nausea, diarrhea, brain fog and fatigue for a couple of hours or the rest of the day. If I actually have a bite of something containing gluten, it feels like I drank bleach! Terrible "cramps" for a couple a hours (like burning with spasms; can barely walk or move), diarrhea followed by constipation (for a couple of days), extreme fatigue, depression, bloating, sore joints, mouth ulcers, and I might be forgetting a few more(very intense for 1-2 days and usually goes away after 4-5 days).But, put short, it's something you just really don't want to happen.

revenant Enthusiast
revenant
Posted

Really gassy, feel like i'm sleeping while i'm awake (no focus, foggy head, colours and lights are brighter but more demanding and tiring), bloating, bad circulation like my legs fall asleep really easily, palpitations, heart pain, sweating badly for the next 2 days, constipation and then diarrhea for the next 2 days, depression and extra anxiety, irrational anger, joint pains, stomach gurgles a lot, and a funny feeling in my legs just above the knee where it feels like the veins are being constricted or something..I have no idea what that last one is and I've never seen anybody else have it...

Harley9999 Newbie
Harley9999
Posted

Really gassy, feel like i'm sleeping while i'm awake (no focus, foggy head, colours and lights are brighter but more demanding and tiring), bloating, bad circulation like my legs fall asleep really easily, palpitations, heart pain, sweating badly for the next 2 days, constipation and then diarrhea for the next 2 days, depression and extra anxiety, irrational anger, joint pains, stomach gurgles a lot, and a funny feeling in my legs just above the knee where it feels like the veins are being constricted or something..I have no idea what that last one is and I've never seen anybody else have it...

I have many of the same reactions named here and trouble breathing is one of them... but usually after I have been CC'd or glutened a few times within a short period of time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I will sometimes have trouble breathing after a glutening, but it is usually caused by bloating which creates pressure on the heart and lungs, espeically when lying down.

polarbearscooby Explorer
polarbearscooby
Posted

Major D about 30 mins after being CC'ed headache, swollen stomach (I usually got up 4 pant sizes) burping, mood swings, intense anger, so far I've only broken out once....

The swelling in my stomach doesn't go away for about a week...

And joint pain :P

Coinkey Apprentice
Coinkey
Posted

It seems to be different every time for me and how the cross contamination occured or if it outright my own fault. Randomly being sick after eating- I used to think I was preggers and get paranoid about that for a while because of the vomiting (and irregular periods did NOT help with that paranoia). Stomach pain, depression, anxiety, constipation and diarrhea (flip flops between the two), mood swings, lack of motivation/ energy, fatigue, joints will hurt sometimes, massive acne issues, irritability, twitchy legs as I drift off to sleep at night, tooth pain (the wisdom teeth that have decided to not grow- so it's pain that stretches from my gums to my sinus).

  • 4 weeks later...
Cheryl-C Enthusiast
Cheryl-C
Posted

My boyfriend just got diagnosed with celiac disease about 1 month ago, so we are still getting used to everything. I was curious to what others see or what types of reactions people are having when they accidentally eat something with gluten in it. I am just wondering what the normal reactions are, although I know they do vary from every person. One thing I have noticed with my boyfriend when he has reactions is that he of course has terrible stomach aches, sometimes vomiting occurs, headaches, and one of the main reactions is that he has trouble breathing. Sometimes theses reactions last all night and sometimes they only last for a few minutes. I am still learning about all of this, so any advice is much appreciated! Thank you!

Good for you for being so supportive! Everyone's reactions are different, and sometimes individual reactions can vary in the individual. For me, I'll usually get bloating, gurgling stomach, cramps, diarrhea or over-active bowel (lovely, I know) and really intense sinus pain. Sometimes it lasts a short time, sometimes longer.

Example: Before going gluten-free, I got 1/2 way through a pancake and got really intense stomach/bowel cramps. I stopped eating it, and ate some fruit and drank some juice and water - the cramps stopped when the eating did.

Yesterday, I stupidly ate some ice cream without checking the label - yep, I glutened myself. Intense sinus headache came on about 1/2 an hour later, and stomach cramps...still there today. Thankfully the headache has calmed down, but my stomach/bowels still feel iffy.

Ugh!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.