Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Damn Gluten!

Becci

By Becci
in Coping with Celiac Disease

Recommended Posts

Becci Enthusiast
Becci
Posted

I was doing GREAT!! Haven't had gluten for months! But today, it got me again!! I felt like screaming as soon as I realized my nausea wasn't just a random coincidence...

Now, just a few hours later, I feel like my stomach is being ripped to shreds from the inside out from the pain... I scared my poor mother in law (who is 80 years old, has dementia, and just moved in with us a few days ago)...She was talking to me and I ignored her. All of a sudden I had to run inside, and I felt like I threw up everything I'd eating for the last week!

And guess what... It was from a can of 'supposed to be' gluten-free black eyed peas!! WTF?

I know I am ranting. But my God.!. I have to be in COURT tomorrow!! And Gluten really screws with my mind and my memory.. How am I going to do it??? I can't just call in the morning and say 'Sorry, can't be there, I got health issues that came up in less than a days notice'. I want to hit something!!

Agh! Just venting makes me want to vent more. lol

Good night my fellow Celiacs.. I am so GLAD to know others understand.

<3 you all!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Sorry you are feeling so bad, honey. Could it be food poisoning? Just another happy thing to think about. What ever it is, feel better soon.

Coinkey Apprentice
Coinkey
Posted

Try a can o' Red Bull, sometimes it can negate the brain effects and it is gluten free. Can't promise anything though because everyone is different.

Becci Enthusiast
Becci
Posted
  • Author

Hi Karen,

No, definitely gluten... I don't know how to explain to others (without celiac disease) -- it is just one of those things when you feel it, you know it is gluten.. you know??

:(

Becci Enthusiast
Becci
Posted
  • Author

I might try that tomorrow, coinkey.. :) Thanks for the advice!

charles76 Newbie
charles76
Posted

Becci,

I totally understand!! In fact, i just started looking for gluten-free meetings again because it sucks that so many people have NOOOO idea what its like having to deal with this .

And the brain fog I tootally understand. Actually, my sister has the same problem too, but I think I'm more sensitive to gluten. And those b@$t@rd$.. I'm glad people are labeling products, but when you get a bunk label, they should be sued or something. seriously.

And the frustration, when you're just trying to get through your work or court, and bam from out of nowhere like someone pushes the power button on you, man..

I concur about redbull. Caffeine does seem to help with thinking clear - though for me it can make me have to go to the bathroom more, a small price to pay. Activated charcoal also really helps. It seems to absorb the chemicals going to the brain, but it can also act like fiber and makes your poo charcoal black. The best I've found is mint leaves, not the tea water, but the leaves. I just can't eat mint everyday or I would.

Anyway, good luck, and I feel you're pain!

K8ling Enthusiast
K8ling
Posted

I totally understand that feeling, I can usually tell EXACTLY what got me. It's like a spidey sense. I hope you feel better!! Bananas and chicken broth maybe??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


charles76 Newbie
charles76
Posted

Oh, and watch out for "natural flavors" in products.. what brand did you say they were?.. the flavors are usually msg (not all that bad), but can be derived from corn and wheat gluten without the manufacturers doing all their due inspection..

..and mint is a good temporary fix, especially if you get a package of fresh mint for cooking, it is usually the mild flavored "apple-mint". It just doesn't seem to help with the digestion part, just the brain fog.

Also, about eight or so ounces of yogurt has enough natural phenylalanine to counteract the brain fog, though it takes about an hour to start working, and you'll get withdrawal the next day, similar to caffeine, unless you can eat enough regularly - though again I can't eat that much everyday, although its almost doable with almonds or walnuts, if not a bit expensive.

Becci Enthusiast
Becci
Posted
  • Author

Thanks to the both of you... As for the redbull, I guess I will try it. Because I am feeling like crapola on a freaking stick!

I need something before I have to deal with this guy.

And it was a brand that had allergen info on it, said only peanuts.. BUT -- I called and found out that a few batches 'accidentally' had wheat gluten put in for flavoring.. !!

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks to the both of you... As for the redbull, I guess I will try it. Because I am feeling like crapola on a freaking stick!

I need something before I have to deal with this guy.

And it was a brand that had allergen info on it, said only peanuts.. BUT -- I called and found out that a few batches 'accidentally' had wheat gluten put in for flavoring.. !!

Please do tell us the brand so others don't suffer. Also you need to go to the FDA website and report this. Wheat has to be on the label by FDA regs and allowing a few batches to slip through is just not allowed, a recall needs to be done.

Becci Enthusiast
Becci
Posted
  • Author

I believe it was Margaret Holmes... I didn't even think when I grabbed the can, because I got sick from some Succotash of theirs before, then a few months later they started putting on the can 'May Contain Wheat Gluten'...

They are labeling TOO late!

So be careful of the black eyed peas!

Becci Enthusiast
Becci
Posted
  • Author

I sent in a letter to the FDA yesterday about it as well, Raven.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748
    Clare Durham
    Newest Member
    Clare Durham
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.