Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety!


revenant

Recommended Posts

revenant Enthusiast

Did anybody overcome any anxiety after going gluten free??

I've been diagnosed with gluten sensitivity, and I have severe agoraphobia, I can rarely leave the house. I find I am worse after I've eaten something with milk or gluten.... Could it be the gluten?

Would love to hear any experiences.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It could be a contributing factor. Many have gotten relief from anxiety with the diet. I alas was not someone that just the diet worked for. I have PTSD and have, or I should now say had, agoraphobia. In addition to the diet I would strongly urge you to find a counselor that you can work with. Sometimes it has to be baby steps with the agorophobia. I started by sitting on my porch, then we progressed to going into my back yard when people were in the yard next door, then short walks etc. It can be overcome but it really helps to have someone to talk to about it and help you form a plan of action. Try the diet and see if it helps but if things don't improve enough after a couple of months do seek out some help.

Skylark Collaborator

I overcame a lot of mental problems going off gluten, anxiety included. I was just talking to a friend and she gets anxious when she is short of vitamin B12, which a lot of celiacs don't absorb well. A lot of folks around here take extra B12. I also find inositol powder and fish oil helpful if I get glutened and anxious.

lucia Enthusiast

I started having inexplicable anxiety attacks 1 and 1/2 years before I went off of gluten. They seemed to arise out of nowhere. I started taking an anti-depressant which controlled them. Since going off gluten, I've phased off of the anti-depressant and have no more anxiety attacks.

Marz Enthusiast

I started having panic attacks after a severe stomach bug.

I overcame it somewhat using the "Linden method" - just google it and you'll find his site. I found the program *very* useful in lowering my anxiety without drugs.

When I went gluten free my anxiety greatly lessened and no more panic attacks :D

I hope it is the same for you, otherwise check out this course or go see a counsellor to talk to.

A hint about the Linden method - it's based around *distraction* - distracting yourself by busying your mind with something else like an enjoyable hobby. At the same time it's all about decreasing your level of anxiety down to a "normal" level.

I do think there's a good chance that if you're gluten sensitive, it can crank up the anxiety a huge amount. I think your body just knows something is wrong!

beals Newbie

I'm a member of a social anxiety forum, and there is one person who got rid of much of their anxiety by going gluten free. This gives me hope, as I have pretty bad SA!

lovemydog Newbie

That's very strange because ever since I went gluten free, I get chest pressure/anxiety. I think the chest pressure and heart palpiations could be from my hiatal hernia or stomach acid because I take antacid chewables and the pressure goes away.

I mean I'm not going to lie, I'm sort of a high strung person with some mild OCD tendencies but I've always managed to control it and don't really get full on anxiety attacks. I'm just one of those over thinkers with lots of energy and I'm very skinny despite eating like a pig. I take chamomile pills and they help relax the digestive system and respiratory system so they do calm me down. I would recommend getting some.

But I definitey feel like the chest pressure/discomfort comes first and THEN I start having anxiety. It's just me reacting and thinking, "oh no, what's wrong with me? Am I having a heart attack?" So do you guys think there is a relation to going gluten free and having this new symptom of feeling like an elephant is sitting on my upper chest?

Thanks for any info. I'm new here and desperate for some answers and sick of doctors undermining my compaints/symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marz Enthusiast

But I definitey feel like the chest pressure/discomfort comes first and THEN I start having anxiety. It's just me reacting and thinking, "oh no, what's wrong with me? Am I having a heart attack?" So do you guys think there is a relation to going gluten free and having this new symptom of feeling like an elephant is sitting on my upper chest?

Thanks for any info. I'm new here and desperate for some answers and sick of doctors undermining my compaints/symptoms.

hey there, hope you're still lurking around to see my answer. Have you been to a doctor to have the chest pain/pressure checked out? If you have and your heart is in good condition, then you have nothing to fear but the fear itself ;). Just wanted to make sure you got checked out first though.

Regarding the anxiety, my panic attacks I think were fairly mild. But it always started with a bit of nausea, and then I start thinking obsessively that I might have food poisoning. That was my fear trigger. As soon as I learnt that my mind was producing all the anxiety related stuff (heart rate increase, increased nausea, burning in hands and on back) - I realized I didn't need to fear it. Distraction works well for me- doing something busy. It used to often happen in bed, so I learnt some visualization exercises, listened to my fav music on headphones until it passes etc.

I'm surprised it's happening on a gluten-free diet though. Are you 100% sure you are not getting glutened? Maybe you still in the withdrawal period, and your body is percieving the loss of gluten as a threat? Or it could be as you suggest. - some other stomach problem. Have you been for an endoscopy? If antacids give relief , or if it's worse around meal times or on an empty stomach you may have an ulcer?

Hope you find relief from the problem soon!!

adab8ca Enthusiast

my anxiety has skyrocketed since i went gluten free 3 and a half weeks ago.....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.