Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At Summer Camp And Just Need To Vent

polarbearscooby

Recommended Posts

polarbearscooby Explorer
polarbearscooby
Posted

So I'm at Summer Bible camp with my little sister right? (She has medical needs and needs a family member with her to take care of them) And I had to pack my own food. I'm ok with that. I don't wanna eat anything cooked in a kitchen full of wheat by teens. But I hate that I have to take away my sisters time playing to rush back to my room (Not staying in the dorms) and cook some food and wolf it down (burning my tongue in the process) and hurry back to the lessons/games/w.e with everyone else.

I hate this.

I hate being gluten-free in the moment....

That is all

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MissyJoy Rookie
MissyJoy
Posted

I am glad you vented before you exploded - and I really hope it made you feel a bit better. Your sister is so blessed to have you there to take care of her and protect her. Don't let your sacrifices steal your joy! What you are doing there is so awesome, but you should slow down and take care of yourself too. You'll both be better off!

kareng Grand Master
kareng
Posted

Yeah, this diet can be a big pain in the a$$. I hope your sis is having fun. Try to have some fun, too.

polarbearscooby Explorer
polarbearscooby
Posted
  • Author

I am glad you vented before you exploded - and I really hope it made you feel a bit better. Your sister is so blessed to have you there to take care of her and protect her. Don't let your sacrifices steal your joy! What you are doing there is so awesome, but you should slow down and take care of yourself too. You'll both be better off!

Thanks :) I really did just need to vent before I exploded... It sucks that she's not getting the 'dorm experience' but at least she's here. Right now I'm gonna rush and eat lunch....

AHHH

Yeah, this diet can be a big pain in the a$$. I hope your sis is having fun. Try to have some fun, too.

Yes, yes it can. But CC and the questions are the worse

I think some of the adults are starting to think I have an eating disorder because they never see me eat.

Thank God this only goes till Wed.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes, yes it can. But CC and the questions are the worse

I think some of the adults are starting to think I have an eating disorder because they never see me eat.

Thank God this only goes till Wed.

It is great that you are there for your little sister. I know it is difficult for you but the fact that your are taking her needs before your own says a great deal about your character. You are to be commended, give yourself a pat on the back.

As to the questions, yea they are likely a bit annoying but if you answer them simply, "I have celiac and can't risk being sick while I am here" and people ask more detailed questions it may be because they suspect they may have it or a family member or friend does. You don't need to give them a course in 'Celiac 101' just give them the name of this website and tell them they can come here for more info because right now you want and need to be with your sister.

polarbearscooby Explorer
polarbearscooby
Posted
  • Author

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

As for my little sister, she's doing great, things are a little awkward for her but she gets why I have to eat different food (for the most part anyway) so that's good. She's worn out tho, (and I am too)

Ravenwoodglass: Thanks :) I don't mind the questions so much as the "eating disorder" look....where people try to get you to eat foods and don't believe you are eating.

ravenwoodglass Mentor
ravenwoodglass
Posted

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

As for my little sister, she's doing great, things are a little awkward for her but she gets why I have to eat different food (for the most part anyway) so that's good. She's worn out tho, (and I am too)

Ravenwoodglass: Thanks :) I don't mind the questions so much as the "eating disorder" look....where people try to get you to eat foods and don't believe you are eating.

I am so glad you are there for this other little girl. You will surely be a big help for her, she must feel so sad and isolated.

Funny the way things work out sometimes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

That's great news! Good for both of you to know there is someone else there with the same issues.

lucia Enthusiast
lucia
Posted

Oh, that's such a great story! She'll probably remember you her whole life, and your presence will make having this disease a lot more comfortable.

As a kid, my ex-boyfriend used to go to "diabetes camp" (actually Camp Joslin after the Boston diabetes center), where all the kids were diabetic. I think it is important for kids to meet others who have the same issues they do.

I googled "camp celiac" out of curiosity, and it turns out there are such things for celiac kids too!

Open Original Shared Link

TaniaR Newbie
TaniaR
Posted

I completely agree being gluten-free is the biggest pain in the ass, esp. when you just want to eat in a hurry and that is just never an option. Im sorry your having a rough time :(

polarbearscooby Explorer
polarbearscooby
Posted
  • Author

Yeah she's having a really tough time and feeling very alone right now

And the bread everyone made today didn't help

If I had known they were gonna do that I would have brought stuff to make my own...

I didn't even go in the room it was horrible

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,690
    • Most Online (within 30 mins)
      7,748
    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.