Gi Appt On Monday, What ?'s Should I Ask

[Squeak1209]

So hopefully someone can help me, it looks like a lot of people on here are going through the same thing I am, or have already gone through it. I am fed up with feeling like this, I've had diarrhea twice this week, my right toe has gone numb, I'm nauseous, I have that "brain fog" thing happening, I'm so tired I don't want to do anything but sleep. I don't want to eat, because I feel like crap when I do, but if I don't, I still feel like crap. I tried going gluten-free on my own with no help, things got better for awhile, but now they're going downhill fast. My insides feel like they're revolting against me.

So I called Beth Israel in Boston and they have an opening this Monday. I have written down all my symptoms that I can think of (although with the brain fog it's a little difficult), I've been trying to keeps tabs on anything that happens, even if it doesn't seem related, like having my toe go numb, dizziness, short breath, stumbling, achiness in my muscles, yadda yadda, and even the obvious, nausea, diarrhea, bloated, muscle cramps, vomitting...

My question to all of you who read this is, if you have been through this, could you help me? I don't know what questions I should ask the GI. Anything specific? I would really appreciate it, I'm sure you have an idea of the gratefulness I would have.

[magyar]

  On 7/23/2010 at 9:06 PM, Squeak1209 said:

So hopefully someone can help me, it looks like a lot of people on here are going through the same thing I am, or have already gone through it. I am fed up with feeling like this, I've had diarrhea twice this week, my right toe has gone numb, I'm nauseous, I have that "brain fog" thing happening, I'm so tired I don't want to do anything but sleep. I don't want to eat, because I feel like crap when I do, but if I don't, I still feel like crap. I tried going gluten-free on my own with no help, things got better for awhile, but now they're going downhill fast. My insides feel like they're revolting against me.

So I called Beth Israel in Boston and they have an opening this Monday. I have written down all my symptoms that I can think of (although with the brain fog it's a little difficult), I've been trying to keeps tabs on anything that happens, even if it doesn't seem related, like having my toe go numb, dizziness, short breath, stumbling, achiness in my muscles, yadda yadda, and even the obvious, nausea, diarrhea, bloated, muscle cramps, vomitting...

My question to all of you who read this is, if you have been through this, could you help me? I don't know what questions I should ask the GI. Anything specific? I would really appreciate it, I'm sure you have an idea of the gratefulness I would have.

Hi, Sorry you feel so rotten, but most of us here can relate. My question to you is - are you seeing a Celiac Dr. or a GI? Lot of Upper GI Drs. have no clue and don't believe you. I know, my family Dr. said I was WRONG! If not check out the Internet in your area or even your local hospital. Then you won't have to ask the questions, the Dr. will. Brain fog is the worst. I thought I was nuts. The 24/7 nausea, the bathroom hunts when you go out. Your intestines are inflamed. When you go off of gluten there is what's called the healing crisis. You body is dumping toxins and while this stuff floats in your system on it's way out it makes you sick. My husband and I rented a two bathroom apt. because of Celiac. Even though you went off gluten you may be getting contaminated in areas you have no idea. Vitamins, soap--oatmeal--nailed me! Cheaper soy sauce has wheat in it. Some candies do. Your toothpaste. A lot of Celiacs can't eat corn either, so you may have more issues. For me it's even tomato sauce. I am 59 and was diagnosed in 2004. I don't digest a lot of food. I have to eat smaller meals, so I started juicing. Turning out well also detoxing. When I started juicing, I had rotten symptoms, dizzy, nausea, lack of appetite...healing crisis. Not anymore. If you can find a Celiac Dr. I would go there first. When you get on the right track you will be amazed how quickly you will heal. Good Luck...

[Coinkey]

  On 7/23/2010 at 9:06 PM, Squeak1209 said:

So hopefully someone can help me, it looks like a lot of people on here are going through the same thing I am, or have already gone through it. I am fed up with feeling like this, I've had diarrhea twice this week, my right toe has gone numb, I'm nauseous, I have that "brain fog" thing happening, I'm so tired I don't want to do anything but sleep. I don't want to eat, because I feel like crap when I do, but if I don't, I still feel like crap. I tried going gluten-free on my own with no help, things got better for awhile, but now they're going downhill fast. My insides feel like they're revolting against me.

So I called Beth Israel in Boston and they have an opening this Monday. I have written down all my symptoms that I can think of (although with the brain fog it's a little difficult), I've been trying to keeps tabs on anything that happens, even if it doesn't seem related, like having my toe go numb, dizziness, short breath, stumbling, achiness in my muscles, yadda yadda, and even the obvious, nausea, diarrhea, bloated, muscle cramps, vomitting...

My question to all of you who read this is, if you have been through this, could you help me? I don't know what questions I should ask the GI. Anything specific? I would really appreciate it, I'm sure you have an idea of the gratefulness I would have.

In my brief experience with the walk in clinic doctor, I told rather than asked. I said- look, these are my symptoms- I feel better when I don't eat gluten so do some tests for that. (not in those words but that's the gist of it- and frankly, he didn't respond much but handed me the sheet to take to the lab for tests without saying that it was indeed a celiac panel). The answers I got from the results (different doctor - walk in clinics suck) were "not many people actually get positive results and you're deficient in vit D and ferritin, if you feel better without gluten keep eating that way, it's not worth it to do any further tests at this time" and he walked out of the office as I was trying get a clearer understanding of what the results were. So as to what questions to ask- I found that ANY questions caused the "knowledgeable" doctors to leave the office, while simply TELLING them got me what I wanted. I sincerely hope that your doctor is open to answering any questions you may have.

[Squeak1209]

  On 7/24/2010 at 1:23 AM, magyar said:

Hi, Sorry you feel so rotten, but most of us here can relate. My question to you is - are you seeing a Celiac Dr. or a GI? Lot of Upper GI Drs. have no clue and don't believe you. I know, my family Dr. said I was WRONG! If not check out the Internet in your area or even your local hospital. Then you won't have to ask the questions, the Dr. will. Brain fog is the worst. I thought I was nuts. The 24/7 nausea, the bathroom hunts when you go out. Your intestines are inflamed. When you go off of gluten there is what's called the healing crisis. You body is dumping toxins and while this stuff floats in your system on it's way out it makes you sick. My husband and I rented a two bathroom apt. because of Celiac. Even though you went off gluten you may be getting contaminated in areas you have no idea. Vitamins, soap--oatmeal--nailed me! Cheaper soy sauce has wheat in it. Some candies do. Your toothpaste. A lot of Celiacs can't eat corn either, so you may have more issues. For me it's even tomato sauce. I am 59 and was diagnosed in 2004. I don't digest a lot of food. I have to eat smaller meals, so I started juicing. Turning out well also detoxing. When I started juicing, I had rotten symptoms, dizzy, nausea, lack of appetite...healing crisis. Not anymore. If you can find a Celiac Dr. I would go there first. When you get on the right track you will be amazed how quickly you will heal. Good Luck...

I am seeing a GI Dr. who specializes in Celiac at Beth Israel in Boston. I've had it with my Dr. looking at me like I'm just a whiner. My mother is helping me, she looked up online where I should go and I thankfully got an appt. for this Monday. A girl I know has similar problems and is seeing a GI, but I dont think the Dr. is specialized in celiac, but she told me to go on the BRAT diet when I start to get sick. I didn't realize that even such small amounts could make me this sick!!! Glad I finally am doing something about it though!!!! Soap can affect?!