Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Exactly Does This Mean?


dhiltonlittle

Recommended Posts

dhiltonlittle Contributor

"mild chronic duodenitis with focal scalloping, shortening and blunting of villi without intraepithelial lymphocytosis; inconclusive for a definite diagnosis of celiac disease. follow up and clinical correlation with serologic findings/antibody testing suggested."


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

It means that you have some inflammation of the duodenum of longstanding, and that your have some damage to your villi in the small intestine with no white blood cells present. Based on these findings the doctor is not prepared to make a diagnosis of celiac and recommends that the findings be followed up with celiac blood testing.

dhiltonlittle Contributor

It means that you have some inflammation of the duodenum of longstanding, and that your have some damage to your villi in the small intestine with no white blood cells present. Based on these findings the doctor is not prepared to make a diagnosis of celiac and recommends that the findings be followed up with celiac blood testing.

thanks, that makes a lot more sense!

i do have elevated antigliadin antibodies (39 with cut off <11). all other blood test were in normal range. also, am hypothyroid. what other things can cause damage to the small intestine like this that i should look into? i went to the celiac center at columbia who are also running some test but i don't go back for another 6 weeks or so....

Simona19 Collaborator

It means that you have some inflammation of the duodenum of longstanding, and that your have some damage to your villi in the small intestine with no white blood cells present. Based on these findings the doctor is not prepared to make a diagnosis of celiac and recommends that the findings be followed up with celiac blood testing.

Hi! I'm very surpriced that you knew what the doctor was writing about. Can you help me with this? What it mean?

Duodenum, biopsy: Small bowel mucosa with focal epithelial infiltration by lymphocytes (>40 lymphocytes/100 enterocytes). The villous architecture is preserved. No crypt hyperplasia identified. The findings are nonspecific and are associated with early celiac disease (MarshI). Correlation with clinical findings and serology suggested.

ravenwoodglass Mentor

thanks, that makes a lot more sense!

i do have elevated antigliadin antibodies (39 with cut off <11). all other blood test were in normal range. also, am hypothyroid. what other things can cause damage to the small intestine like this that i should look into? i went to the celiac center at columbia who are also running some test but i don't go back for another 6 weeks or so....

Those biopsy finding combined with a postive blood test mean you are likely celiac. Have you started the diet yet? Since you are done with blood work and biopsy a dietary trial is your next step and should take care of the issues you are having. You don't need to wait for the doctors appointment to get started.

dhiltonlittle Contributor

Those biopsy finding combined with a postive blood test mean you are likely celiac. Have you started the diet yet? Since you are done with blood work and biopsy a dietary trial is your next step and should take care of the issues you are having. You don't need to wait for the doctors appointment to get started.

yeah i've been gluten free for about 4 months now and have seen a lot of improvement since. not sure if it's the diet, time passing/healing, or the thyroid meds but i have seen some improvement over the last few months. the positive blood test that i had they said is very non specific and could be elevated for other reasons. me and my current doctor seem to be at a stand still with it which is why i went to columbia to get their input. curious what they have to say after looking over all of my old results and the tests that they are running as well.

Simona19 Collaborator

My tests are also confusing, but I'm staying on the gluten free diet. Everybody here gave me a very good advice, and I'm feeling much better. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.