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Rash - Is It Related To Celiac


rain

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rain Contributor

I have a rash over much of my body that is not dermatitis herpetiformus. At first I thought it was exema from sun exposure (which I get) but this is behaving very differently. I have had it for 4 months. The skin burns and itches intensely. It is disrupting my sleep and limiting my movement. Cortisone cream does not help. I've been trying natural alternatives (yogurt, onion, aloe, turmeric) which have helped reduce the inflammation but not cured. I have no idea what this is, but I do have a doctor's appt scheduled for next week. I'm otherwise doing very well in terms of digestion, mood, and energy.

My thought was that this was a toxin release but this seems to intense.

I'd appreciate any insights - thanks.


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mushroom Proficient

I have a rash over much of my body that is not dermatitis herpetiformus. At first I thought it was exema from sun exposure (which I get) but this is behaving very differently. I have had it for 4 months. The skin burns and itches intensely. It is disrupting my sleep and limiting my movement. Cortisone cream does not help. I've been trying natural alternatives (yogurt, onion, aloe, turmeric) which have helped reduce the inflammation but not cured. I have no idea what this is, but I do have a doctor's appt scheduled for next week. I'm otherwise doing very well in terms of digestion, mood, and energy.

My thought was that this was a toxin release but this seems to intense.

I'd appreciate any insights - thanks.

My best guess would be an additional food intolerance, especially if it developed after you stopped eating gluten. I had several different intolerances manifest themselves as rashes, itchy rashes, and hives after I went gluten free. Among them - soy, potatoes, citrus.

Check what you have been eating and see if you have been consuming an abundance of any one thing, and try cutting it out and see if it helps, Or it may be more than one. Soy is often an intolerance that accompanies gluten and that is where I would start. It cold also be a problem with dairy. Eliminate a whole food group, like dairy, for four days and see if you see some improvement. Then try another until you come up with an answer.

ravenwoodglass Mentor

Why are you so sure it is not DH? It sure does sound like it. Have you checked all your topicals for gluten ingredients? Just in case it is DH do you consume iodine in salt or supplements? Also distilled gluten grains in alcohol or vinegar will flare my DH although most can tolerate it.

If it is for sure not DH do you use sunblock? In my case there is not a single one I can use without problems.

rain Contributor

Thanks for your ideas. I have looked at the possibility of other foods but maybe not enough? I have cut out soy. I have taken dairy out and when that made no difference I put yoghurt in for the probiotic. I can take it out but I don't expect that to be the problem. I have reduced corn. I had a dermatologist check it to see if it was DH - it's not. And the rash isn't consistent with DH descriptions. Hard to say what this is.

  • 4 weeks later...
rain Contributor

I finally got a prescription for a mild steroid from my internist. Also we had some cloudy days. The rash cleared right up - in 2 days tops.

The sun came back out and the rash is back, first the bumps, then the insane itching that keeps me up at night and the herpes simplex blisters (cold sores) all around my mouth and nose. Ahhhh!!!!!!!!! I'm so frustrated.

I see the gastro doc this week and am making an appt to see the dermatologist.

On the DH forum I read that feeling better from the DH meds is a good indicator of whether or not it is DH. I'll ask the gastro about that. If it's a food allergy I'm going to lose my mind - I really can't figure out what other allergens it might be. I can guess maybe potatoes..but really, I think I just don't like them much.

I do feel better in other areas day by day, particularly mentally, but I am SO aggravated by this sensation that everything is a possible trigger.. I'm going to try out the support groups. I might feel better with company.

Thanks!

ravenwoodglass Mentor

I finally got a prescription for a mild steroid from my internist. Also we had some cloudy days. The rash cleared right up - in 2 days tops.

The sun came back out and the rash is back, first the bumps, then the insane itching that keeps me up at night and the herpes simplex blisters (cold sores) all around my mouth and nose. Ahhhh!!!!!!!!! I'm so frustrated.

I see the gastro doc this week and am making an appt to see the dermatologist.

On the DH forum I read that feeling better from the DH meds is a good indicator of whether or not it is DH. I'll ask the gastro about that. If it's a food allergy I'm going to lose my mind - I really can't figure out what other allergens it might be. I can guess maybe potatoes..but really, I think I just don't like them much.

I do feel better in other areas day by day, particularly mentally, but I am SO aggravated by this sensation that everything is a possible trigger.. I'm going to try out the support groups. I might feel better with company.

Thanks!

Have they ruled out Lupus? Are you on any meds that cause sunsensitivity?

mushroom Proficient

I finally got a prescription for a mild steroid from my internist. Also we had some cloudy days. The rash cleared right up - in 2 days tops.

The sun came back out and the rash is back, first the bumps, then the insane itching that keeps me up at night and the herpes simplex blisters (cold sores) all around my mouth and nose. Ahhhh!!!!!!!!! I'm so frustrated.

I see the gastro doc this week and am making an appt to see the dermatologist.

On the DH forum I read that feeling better from the DH meds is a good indicator of whether or not it is DH. I'll ask the gastro about that. If it's a food allergy I'm going to lose my mind - I really can't figure out what other allergens it might be. I can guess maybe potatoes..but really, I think I just don't like them much.

I do feel better in other areas day by day, particularly mentally, but I am SO aggravated by this sensation that everything is a possible trigger.. I'm going to try out the support groups. I might feel better with company.

Thanks!

Two thoughts aroused by your post. First, do you use sunscreen? I develop a photodermatitis to sunscreens after I have been using them a while, and have to change to another. It produces an itchy dermatitis which does respond to steroids. I have just had this happen again.

And second, potatoes gave (give) me rashes and hives. The nightshade family can be a problem.

Just tossing these out for your consideration. :)


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rain Contributor

Two thoughts aroused by your post. First, do you use sunscreen? I develop a photodermatitis to sunscreens after I have been using them a while, and have to change to another. It produces an itchy dermatitis which does respond to steroids. I have just had this happen again.

And second, potatoes gave (give) me rashes and hives. The nightshade family can be a problem.

Just tossing these out for your consideration. :)

Sunscreen - I do use sunscreen but am aware of the possibility of an allergic reaction, so this time was a trial to use sunscreen and see if it would make a difference. Plus, even though the rash started on my face it has spread to areas that were not exposed to sun.

I've gotten rashes on my belly from food, but all over? Is that possible? With that much itchiness? Of course this all started after I went off gluten so I guess it could?

Thanks for your thoughts. It's so helpful..

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