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Feeling Like Crud

firefightersgal

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firefightersgal Apprentice
firefightersgal
Posted

I've read some old posts on here about withdrawal symptoms, so I feel pretty confident that is what I'm going through, but I guess I need validation...

I am sooo lethargic. Despite the fact that I could barely keep my eyes open yesterday evening, I slept very little last night. Yesterday afternoon, I felt very light-headed and had to sit down a couple of times to prevent a fall. I've also had a craving for gluten that I've never experienced. I have to force myself to walk away from certain foods, and I almost feel a pain when I do. I feel weak and on edge all the time. I can barely stand talking to other people, particularly today. (One week gluten-free).

Of course, I'm still waiting to hear back from my doctor's office on my blood test, taken a week ago today. However, everything I've read tells me that it doesn't matter what the blood test says, I need to stay off of gluten.

On a positive note, my rash is getting better!

Any advice would be appreciated! Thanks!

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MaryLou Newbie
MaryLou
Posted

I've read some old posts on here about withdrawal symptoms, so I feel pretty confident that is what I'm going through, but I guess I need validation...

I am sooo lethargic. Despite the fact that I could barely keep my eyes open yesterday evening, I slept very little last night. Yesterday afternoon, I felt very light-headed and had to sit down a couple of times to prevent a fall. I've also had a craving for gluten that I've never experienced. I have to force myself to walk away from certain foods, and I almost feel a pain when I do. I feel weak and on edge all the time. I can barely stand talking to other people, particularly today. (One week gluten-free).

Of course, I'm still waiting to hear back from my doctor's office on my blood test, taken a week ago today. However, everything I've read tells me that it doesn't matter what the blood test says, I need to stay off of gluten.

On a positive note, my rash is getting better!

Any advice would be appreciated! Thanks!

Hang tight on the gluten avoidance. It's all one day at a time. After several weeks and feeling alive for the first time in years, finally slept after several years of insomnia. Then lactose intolerance reared its ugly head, and systems clogged. Also avoided all grains in an effort to curb inflammation. You may have some other "food" issues. :o It is a personal journey (and a puzzle) for each of us...but you are not alone.

vbecton Explorer
vbecton
Posted

Sounds like withdrawals to me. There was nothing on the internet that could have prepared me for the withdrawal symptoms. 2 straight weeks of feeling like a Mack truck ran me over. I felt so exhausted, had bizarre dreams, nauseated, strange BM's, out of control hunger. I only kept reading about withdrawals lasting 3 days. Well, 3 days was just the beginning for me. It was rough. But, worth it ;) Good luck, it will pass.

looking4help Apprentice
looking4help
Posted

Hang in there! As the previous posters said it is a personal journey. I had withdrawal symptoms for almost 3 solid weeks and then a bit more after that.

Hang in there and DO NOT GIVE UP! I am almost 4 months gluten free now and am still working on it.

(((((((((hugs)))))))))

captaincramp Newbie
captaincramp
Posted

Yep, I dont even know if I have celiac, but I think I do judging by the fact that I am 5 days gluten free and I have Gluten dreams, lightheadedness, EXTREME HUNGER, gas, bloating, fatigue, and to top it off shortness of breath You arent alone, I am panicking and freaking out about this too, because I dont eve know if this is what I have.

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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
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      26F!
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