Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Symptoms


cmac0351

Recommended Posts

cmac0351 Newbie

Here is my story:

About two weeks ago I was driving home from work when I started to feel light headed. The next day I was feeling a bit nauseous and stayed home from work. That happened to be my birthday, and my wife and I went out to eat for dinner (I was feeling better and hadn't eaten all day, just gatorade); I had chicken parmesan and lasagna. A few hours later I was light headed, had awful gas and heartburn ( I have struggled with moderate reflux for a long time). I vomited but didn't really feel much better after. I am not sure I had to vomit, I might have talked myself into thinking I needed to, if that makes sense.

I saw a doctor after a couple days who did the normal doctor thing. He thought I had something viral, then prescribed an antibiotic in case it was an infection. About that time, I started having diarrhea which lasted for about 3 days. Since then, I have been lightheaded off and on, and the diarrhea stopped, but every BM is very soft, not diarrhea, but not normal. It seems like too there are sometimes little black specs in the stool, though not many, and spread out.

I have in the last two days realized that the lightheaded feelings like I was going to pass out have been shortly after or within a couple hours of eating. The worst I felt was after eating two quarter pounders at MacDonald's. I remember I was driving home and really thought I was going to pass out. I have also been very tired lately. It seems like I get tired quickly after not much activity.

All of this appeared suddenly, and I can't think of anything similar in the past, except the reflux that has been there. Can Celiac manifest that quickly, one day fine the next you fell really bad?

Thanks for reading this long post,

Chris


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dhiltonlittle Contributor

Here is my story:

About two weeks ago I was driving home from work when I started to feel light headed. The next day I was feeling a bit nauseous and stayed home from work. That happened to be my birthday, and my wife and I went out to eat for dinner (I was feeling better and hadn't eaten all day, just gatorade); I had chicken parmesan and lasagna. A few hours later I was light headed, had awful gas and heartburn ( I have struggled with moderate reflux for a long time). I vomited but didn't really feel much better after. I am not sure I had to vomit, I might have talked myself into thinking I needed to, if that makes sense.

I saw a doctor after a couple days who did the normal doctor thing. He thought I had something viral, then prescribed an antibiotic in case it was an infection. About that time, I started having diarrhea which lasted for about 3 days. Since then, I have been lightheaded off and on, and the diarrhea stopped, but every BM is very soft, not diarrhea, but not normal. It seems like too there are sometimes little black specs in the stool, though not many, and spread out.

I have in the last two days realized that the lightheaded feelings like I was going to pass out have been shortly after or within a couple hours of eating. The worst I felt was after eating two quarter pounders at MacDonald's. I remember I was driving home and really thought I was going to pass out. I have also been very tired lately. It seems like I get tired quickly after not much activity.

All of this appeared suddenly, and I can't think of anything similar in the past, except the reflux that has been there. Can Celiac manifest that quickly, one day fine the next you fell really bad?

Thanks for reading this long post,

Chris

i'd start by taking a probiotic for a few weeks, eat things that are easier to digest (no mcdonalds!!) and see how you feel. it is likely that the bacterial balance in your gut has gotten off from the antibiotic. if you're still feeling bad after a few weeks, maybe try some stool samples (lots of bad things can happen after a round of antibiotics) and a celiac blood panel would be a good idea just to check. it could very well be that you had an infection and you'll need time to recover from it and the antibiotics.

T.H. Community Regular

I do know that celiac disease is 'triggered,' so at some point, you definitely go from a state of gluten being fine, to it causing problems, but I don't know how it manifests for those who feel the symptoms right away, I'm afraid.

However, food allergies do sudden onset as well, and can cause dizziness and nausea, too. I just went through that, and I had no known food allergies and then within days had similar symptoms: dizziness, nausea, etc...

But I'd wonder like the previous poster about damage done to your gut due to something bacterial or viral. And if you are not feeling better, you might want to go back to the doc. A bad gut infection or stomach flu can damage your ability to absorb nutrients and fluids for a while, so it might be that you are having trouble getting enough to eat and drink from an infection, too.

cmac0351 Newbie

Thanks for the replies.

When I was taking the antibiotic, I was really tired and thought it might be the medicine, so I called my doc and he said i could stop taking it. I was only on it three days. I have taken antibiotics before for things with out any complications, although it does sound reasonable about the bacteria balance, as I do know the presence of bacteria is important for proper digestion.

Yesterday and today, I decided to try out a gluten free diet and my reflux is completely gone, as is gas and bloating. I typically have problems after most meals with heartburn and bad gas. I don't remember my throat feeling this good in a long time. I usually wake up with thick mucous and raspy voice, but not today.

My lightheaded feeling seems to be mostly gone too, but the symptom that remains is fatigue. I am tired most of the time still and it doesn't take much to wear me out when I feel good.

If I do have a problem with gluten, how long does it take to feel better once you go gluten free?

dhiltonlittle Contributor

Thanks for the replies.

When I was taking the antibiotic, I was really tired and thought it might be the medicine, so I called my doc and he said i could stop taking it. I was only on it three days. I have taken antibiotics before for things with out any complications, although it does sound reasonable about the bacteria balance, as I do know the presence of bacteria is important for proper digestion.

Yesterday and today, I decided to try out a gluten free diet and my reflux is completely gone, as is gas and bloating. I typically have problems after most meals with heartburn and bad gas. I don't remember my throat feeling this good in a long time. I usually wake up with thick mucous and raspy voice, but not today.

My lightheaded feeling seems to be mostly gone too, but the symptom that remains is fatigue. I am tired most of the time still and it doesn't take much to wear me out when I feel good.

If I do have a problem with gluten, how long does it take to feel better once you go gluten free?

you very well could have a problem with gluten. however, i'd suggest that you keep eating it until you get properly tested.

as far as being tired, you may also want to get your thyroid levels checked.

this can also cause lots of stomach issues as well as fatigue and goes hand in hand with celiac.

not to freak you out, but i was 100 percent healthy and came down with hypothyroidism and celiac after a flu and a round of antibiotics. the previous poster is correct. for both of these things if you have the genes, all it takes is a trigger. stress, illness, whatever.

  • 2 weeks later...
cmac0351 Newbie

Ok, I have had some tests done recently; here are the results.

IgG = <3 U/mL

IgA = 30 U/mL

I also have elevated bilirubin (3.6 mg/dL) as well as SGOT/AST (50 IU/L) and SGPT/ALT (97 IU/L). They have done an ultrasound on my liver and found a couple of abnormal spots which the radiologist thinks looks like fatty liver. They have now scheduled an MRI for that.

I saw a gastroenterologist, and I have an endoscopy and colonoscopy scheduled for next Wednesday.

I stopped eating gluten and seem to feel a little better, no lightheadedness or nausea, but I am still week, tired, and now have a mild pain in some of my joints; wrists, knees, a little in the elbow; and I have very little appetite. I have lost about 10 pounds over the last 3 1/2 weeks.

The doctor wants me to eat gluten containing foods between now and Wednesday, but I am really scared of eating them thinking I might feel really bad. I feel lousy enough as it is.

cmac0351 Newbie

So I have been eating gluten the last two days because of the test coming up, and boy do I feel terrible! I am burping up some stuff that really stings my throat. I REALLY want to stop, but I am afraid to mess up the test result. I am actually looking forward to having to fast before the test. Seriously, I feel like I can't make it until Wednesday; I am just praying it goes by quickly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Hang in there! I hope you get some answers soon. Either way, you're free to stop eating gluten once the testing is done.

Did you want help with the test results by the way? I couldn't understand what the tests were because you didn't say what kind of IgA or IgG. Also, you need to know how they relate to "normal" for that lab.

cmac0351 Newbie

Thanks, I didn't know there were different kinds. I am all new to this. I do know that above 17 was considered positive and below 11 is negative for both IgA and IgG. The only other thing the test says is gliadin antibody.

Hang in there! I hope you get some answers soon. Either way, you're free to stop eating gluten once the testing is done.

Did you want help with the test results by the way? I couldn't understand what the tests were because you didn't say what kind of IgA or IgG. Also, you need to know how they relate to "normal" for that lab.

Skylark Collaborator

Thanks, I didn't know there were different kinds. I am all new to this. I do know that above 17 was considered positive and below 11 is negative for both IgA and IgG. The only other thing the test says is gliadin antibody.

OK, so you have positive anti-gliadin IgA. There are other antibodies they test for, including anti-TTG and anti-endomysial which are the autoimmune antibodies. Anti-gliadin IgA is an antibody that often shows up with celiac, but some people without intestinal damage have it too.

Most folks with anti-gliadin IgA are gluten-sensitive in some way or another because it does mean your immune system recognizes gluten as foreign. If you're lucky you won't have all the autoimmunity and intestinal damage. Going back to gluten-free makes sense once you have your endoscopy done even if it comes out normal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748

    K M
    Newest Member
    K M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.