Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dentist Visit


Kim27

Recommended Posts

Kim27 Contributor

I have had the worst luck with people not understanding or having NO clue what I'm talking about when I ask about gluten ingredients in things. From people saying "Oh no there's no sugar in this" to telling me they checked the ingredients and everything is A-OK! because the actual WORD gluten is not listed in the ingredients!! (I wish it was that easy!!!!!) So it has happened again and I need some help. I have seen on here people talking about needing to check dental cleaning supplies while at the dentist office. I have an appointment next week (my first since diagnosis) and so I called them yesterday to give them a head-up on my new diagnosis and also to give them time to find out about the gluten in their products. Well of courseeeeee they say they've never heard of gluten and no one has asked about it before in the office. (great!) I live in a relatively well-sized city with multiple gluten free menus in different restaurants, large celiac support group, etc, so I KNOW I'm not the only one in the city that has these concerns. Anyway...... the woman says let me find out and call you tomorrow. So I get a phone call this morning from her saying that she had one of the dental assistants check the ingredients and I'm all good b/c gluten is not listed as an ingredient. Of course I have to go through the whole thing where I have to explain that gluten itself will not be listed, they need to look for other keywords etc, and could they contact the manufacturer and ask them b/c they are likely to know what sort of excipients are in things. Now, I'm waiting....... My question for everyone, what do you do in these situations? I always end up feeling like I am not getting a for sure certain answer to feel comfortable that gluten is not in things, like pills, dental stuff, etc. How do you get thru to people? HOw do you find out for sure if it's safe? I am having so many problems with this. Food is not a big deal, if I can't find out for sure I just don't eat it, but for example, I can't just stop going to the dentist forever. How do you help people get a clue??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

One thing you can do is ask for a list of the products to be used and the manufacturer and call them yourself. There's much less chance of error and misunderstanding if you talk directly instead of using an apparently clueless intermediary. Do it yourself is my rule.

Anyway, as far as cleaning stuff, from my experience, if you stay away from mint-flavored things (some have gluten, others don't) and you have them use plain, unflavored pumice, you'll be all right.

richard

Frances03 Enthusiast

I guess I just dont freak out about the dentist. It's only twice a year, and I dont swallow anything they put in my mouth. I rinse really well and spit a lot, and they know I'm going to do that, so I don't worry about it.

CarolinaKip Community Regular

I have had the worst luck with people not understanding or having NO clue what I'm talking about when I ask about gluten ingredients in things. From people saying "Oh no there's no sugar in this" to telling me they checked the ingredients and everything is A-OK! because the actual WORD gluten is not listed in the ingredients!! (I wish it was that easy!!!!!) So it has happened again and I need some help. I have seen on here people talking about needing to check dental cleaning supplies while at the dentist office. I have an appointment next week (my first since diagnosis) and so I called them yesterday to give them a head-up on my new diagnosis and also to give them time to find out about the gluten in their products. Well of courseeeeee they say they've never heard of gluten and no one has asked about it before in the office. (great!) I live in a relatively well-sized city with multiple gluten free menus in different restaurants, large celiac support group, etc, so I KNOW I'm not the only one in the city that has these concerns. Anyway...... the woman says let me find out and call you tomorrow. So I get a phone call this morning from her saying that she had one of the dental assistants check the ingredients and I'm all good b/c gluten is not listed as an ingredient. Of course I have to go through the whole thing where I have to explain that gluten itself will not be listed, they need to look for other keywords etc, and could they contact the manufacturer and ask them b/c they are likely to know what sort of excipients are in things. Now, I'm waiting....... My question for everyone, what do you do in these situations? I always end up feeling like I am not getting a for sure certain answer to feel comfortable that gluten is not in things, like pills, dental stuff, etc. How do you get thru to people? HOw do you find out for sure if it's safe? I am having so many problems with this. Food is not a big deal, if I can't find out for sure I just don't eat it, but for example, I can't just stop going to the dentist forever. How do you help people get a clue??

I plan to do what Richard suggested, call the company of the products. My dental office had no clue as well.

SGWhiskers Collaborator

I call two weeks in advance for a list of all products and then make the calls myself. I've run into the problem of arriving and being placed in a booth that is stocked with different items for some reason, and making them hunt down the safe items from other booths and back room storage.

Kim27 Contributor

*UPDATE* Well the dentist office called me back again. They said that they couldn't know for sure so they were gonna fax me the product information so I could look at the ingredients. Well, I think they should have to know what is in their products, but I guess that's besides the point. I said okay, thinking I could pretty much tell from the ingredients or I would then know the manufacturer so I could call them and they would surely know. Well the manufacturer phone number was right on the sheet so I went ahead and called information. The woman was very nice and said NONE of their pastes (cleaning stuff) contain gluten and that it is written right on the box "contains no gluten"!!!! At least I know now and know it's safe, but I must say, the people at that office are either really stupid or didn't even bother to look at the box in the first place!!!!!!!!! ugh!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748

    Betty Siebert
    Newest Member
    Betty Siebert
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.