Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gave My Son Barley: Bad Poop Reaction

brendab

Recommended Posts

brendab Contributor
brendab
Posted

I know we are all poop detectives here and dang, I wish it paid! LOL

Let me give you a link with (WARNING!!!) poop pictures, the one I am using as a reference is the one labeled, "infraction" above it and there are 2 pictures underneath it, the top one is the one I am going to refer to. These are NOT from my son but what I found today in researching my sons poop issues.

Open Original Shared Link

So, now that we have all lost the contents of our stomaches, let's re-group (or recoup LOL)and discuss my sons issues. My 2 year old is allergic to wheat, dairy, bananas and soy but I am suspecting gluten may be an issue as well. When I research my sons poop issues, it keeps coming back to celiac.com so I am wondering if I should be worried? I gave him barley yesterday afternoon and this morning's poop looked JUST like that 1st picture I referred to with a sharp, mothball like smell to it, the same yellow color and it was an enormous amount! So when I looked it up, the color, horrible smell, undigested food and amount all seem to point to celiac and this after I gave him barley in which he tested negative for it BUT gluten bugs me so I wonder about him. The sores that people with celiacs gets sounds like my son but only in the diaper area and only if he's eaten wheat, but he didn't get it this morning.

Ok, I am not convinced he has celiac's but it's a scary thought to me so what else could this be? I appreciate any and all thoughts!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Hi there. Have you had him tested for celiac?

brendab Contributor
brendab
Posted
  • Author

Hi there. Have you had him tested for celiac?

No, this is just recently (like the past 2 days) that I am putting things together. I have known since he was 4 months old that he had food allergies, had him tested and he's been MOSTLY gluten-free since 7 months old. I am starting to just now put more things together and tried the barley out (since I know he is allergic to wheat) since it has gluten in it and that picture looks JUST like his poop this morning!!!! Wow, it stunk up the entire 2nd level of the house! LOL He's seemingly healthy so I never really questioned it. If he were tested, don't you think it would come up negative since he's gluten free most of the time? I did that a few years ago for myself with celiac symptoms and the blood test came back negative but I know I feel better off of gluten. Our entire family has recently gone dairy and gluten free for the past 2 weeks or so and so I am now thinking a test wouldn't be accurate

frieze Community Regular
frieze
Posted

it seems the best test is already positive....

brendab Contributor
brendab
Posted
  • Author

it seems the best test is already positive....

Oh my gosh! Do you really think he's Celiac just from poop? I hope not :(

Skylark Collaborator
Skylark
Posted

No, this is just recently (like the past 2 days) that I am putting things together. I have known since he was 4 months old that he had food allergies, had him tested and he's been MOSTLY gluten-free since 7 months old. I am starting to just now put more things together and tried the barley out (since I know he is allergic to wheat) since it has gluten in it and that picture looks JUST like his poop this morning!!!! Wow, it stunk up the entire 2nd level of the house! LOL He's seemingly healthy so I never really questioned it. If he were tested, don't you think it would come up negative since he's gluten free most of the time? I did that a few years ago for myself with celiac symptoms and the blood test came back negative but I know I feel better off of gluten. Our entire family has recently gone dairy and gluten free for the past 2 weeks or so and so I am now thinking a test wouldn't be accurate

You probably need to talk to a GI doc. There are lifelong consequences to celiac disease and it might be better to find out for sure. A doctor who is knowledgeable about celiac could advise you about gluten challenge with rye and barley and do the celiac testing. Obviously the tests have limitations, especially in little kids, but my understanding is that it's better to have a diagnosis or at least a supportive doctor who will write notes for school.

brendab Contributor
brendab
Posted
  • Author

You probably need to talk to a GI doc. There are lifelong consequences to celiac disease and it might be better to find out for sure. A doctor who is knowledgeable about celiac could advise you about gluten challenge with rye and barley and do the celiac testing. Obviously the tests have limitations, especially in little kids, but my understanding is that it's better to have a diagnosis or at least a supportive doctor who will write notes for school.

I need to find a knowledgable one first, that is the hard part I think. How long would he have to be on a gluten diet?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

I need to find a knowledgable one first, that is the hard part I think. How long would he have to be on a gluten diet?

Most folks around here have had doctors say 4-6 weeks for blood tests, and at least 2 months for biopsy. And yes, finding a good doctor is probably the hardest part of the whole thing.

Grace'smom Explorer
Grace'smom
Posted

Hi there

I know there is a lot of talk about finding a "good" GI doctor, but my experience has been wonderful with our Children's Hospital (in Boston). You must live somewhere in driving distance to a Children's hospital in your region; my recommendation would be to start there where the GIs are very familiar with diagnosing and treating celiac. Our Children's hosp GI program was so great that not only did we get teriffic medical support, but were offered nutritional classes for recently diagnosed celiac children, emotional support via sessions w/ GI social workers (no charge, no insurance, just part of the program), and they even found a "match" for my 6 yr old within the town that we live, so the two celiac children could meet and support each other and form a friendhship. Contact the GI dept of your local Children's hospital or ask your pediatrician to recommend one out of there. Its a good place to start. Take care. Emily

brendab Contributor
brendab
Posted
  • Author

Hi there

I know there is a lot of talk about finding a "good" GI doctor, but my experience has been wonderful with our Children's Hospital (in Boston). You must live somewhere in driving distance to a Children's hospital in your region; my recommendation would be to start there where the GIs are very familiar with diagnosing and treating celiac. Our Children's hosp GI program was so great that not only did we get teriffic medical support, but were offered nutritional classes for recently diagnosed celiac children, emotional support via sessions w/ GI social workers (no charge, no insurance, just part of the program), and they even found a "match" for my 6 yr old within the town that we live, so the two celiac children could meet and support each other and form a friendhship. Contact the GI dept of your local Children's hospital or ask your pediatrician to recommend one out of there. Its a good place to start. Take care. Emily

What great advice, thank you!

Gardening Apprentice
Gardening
Posted

That is exactly what my younger daughter's poop normally looks like (well... since this spring).

It was 5x/day, usually 3 poops by noon, but it's improved to 3-4x/day and less undigested food. For a while, it looked like I had taken a scoop full of dinner and just dumped it in her diaper, with a little actual poo to bind it together.

The improvements have come at the same time that I've added tons of high-end probiotics to daily smoothies (her sister gets them for vitamins). She has had a large number of antibiotics and I don't know if that contributed to the undigested poop. But the change in poop this spring also coincides with when I weaned her, so who knows.

We are at the "something appears to be wrong, waiting for her GI appt next week" stage. As you can see in my siggy, her Enterolab results were far from equivocal. Our next step is probably a celiac panel blood test, after she has been sufficiently glutened up (since big sis has been gluten-free for almost two months, little sis has been gluten-lite).

I'd definately make an appt and see what they say.

brendab Contributor
brendab
Posted
  • Author

That is exactly what my younger daughter's poop normally looks like (well... since this spring).

It was 5x/day, usually 3 poops by noon, but it's improved to 3-4x/day and less undigested food. For a while, it looked like I had taken a scoop full of dinner and just dumped it in her diaper, with a little actual poo to bind it together.

The improvements have come at the same time that I've added tons of high-end probiotics to daily smoothies (her sister gets them for vitamins). She has had a large number of antibiotics and I don't know if that contributed to the undigested poop. But the change in poop this spring also coincides with when I weaned her, so who knows.

We are at the "something appears to be wrong, waiting for her GI appt next week" stage. As you can see in my siggy, her Enterolab results were far from equivocal. Our next step is probably a celiac panel blood test, after she has been sufficiently glutened up (since big sis has been gluten-free for almost two months, little sis has been gluten-lite).

I'd definately make an appt and see what they say.

Ya, my son has days where he poops multiple times as well and in retrospect he's shown the signs all along but I didn't know them. I recall many poops like the one I am talking about because the smell is unforgettable! Why does it smell like moth balls? I recall once that what he ate came out so quick that the banana's also came out just like how he swallowed them and I have NEVER seen banana's coming out the back end as we all know they are mostly water. That was quick!!!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748
    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Lkg5
      Unexpected gluten exposure risk from cultivated mushrooms

      By Lkg5 · Posted

      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.