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What Tests Do I Need To Request

ouatic

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ouatic Newbie
ouatic
Posted

I know this information is here, but I'm not finding it. I was on the gluten free diet for a couple of years and was doing much better. My doctor said that I should be tested for celiac because if I have it I need to be stricter with my diet to avoid the known complications. If it is just a gluten sensitivity she says its not as much of a "risk" when I get glutened. Anyway I want to make sure that I am getting the blood tests I need. I had a biopsy years ago and it came back with slight flattening of the villi but the gastro at that time refused to give me a blood test for celiac and told me the flattening didn't mean anything and I didn't have celiac. It was after that I gave up and just went on the diet and my gerd and everything except the diarrhea went away - but even the diarrhea got better. When I went back on wheat the gerd and other problems came back. However, I became constipated (strange for me) with occasional dairrhea attacks. I have been on wheat again for about 5 weeks and will be taking the test in about 2 weeks. I'm fairly sure I have celiac but I know the tests don't always come back positive so I wanted to make sure I had all the correct tests to get my best chance of a diagnosis becuase after these tests I am going back on the diet for good. But if I am positive I think it may help to diagnose my mother and aunt who I think also have this. Any help directing me to the best information on tests will be greatly appreciated.

Thanks :)

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Skylark Collaborator
Skylark
Posted

Here's some info from the University of Chicago Celiac Center.

Open Original Shared Link

And the celiac society.

Open Original Shared Link

By the way, I turned these up with a very straightforward Google search for "celiac blood tests". If you want more information you might give it a try.

ravenwoodglass Mentor
ravenwoodglass
Posted

I know this information is here, but I'm not finding it. I was on the gluten free diet for a couple of years and was doing much better. My doctor said that I should be tested for celiac because if I have it I need to be stricter with my diet to avoid the known complications. If it is just a gluten sensitivity she says its not as much of a "risk" when I get glutened. Anyway I want to make sure that I am getting the blood tests I need. I had a biopsy years ago and it came back with slight flattening of the villi but the gastro at that time refused to give me a blood test for celiac and told me the flattening didn't mean anything and I didn't have celiac. It was after that I gave up and just went on the diet and my gerd and everything except the diarrhea went away - but even the diarrhea got better. When I went back on wheat the gerd and other problems came back. However, I became constipated (strange for me) with occasional dairrhea attacks. I have been on wheat again for about 5 weeks and will be taking the test in about 2 weeks. I'm fairly sure I have celiac but I know the tests don't always come back positive so I wanted to make sure I had all the correct tests to get my best chance of a diagnosis becuase after these tests I am going back on the diet for good. But if I am positive I think it may help to diagnose my mother and aunt who I think also have this. Any help directing me to the best information on tests will be greatly appreciated.

Thanks :)

The NIH is having a celiac awareness campaign. Here is a link to their testing page. As you know there is a chance of a false negative so do try the diet after all the tests are done.

Open Original Shared Link

ouatic Newbie
ouatic
Posted
  • Author

Thanks :)

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