Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Tests Do I Need To Request

ouatic

Recommended Posts

ouatic Newbie
ouatic
Posted

I know this information is here, but I'm not finding it. I was on the gluten free diet for a couple of years and was doing much better. My doctor said that I should be tested for celiac because if I have it I need to be stricter with my diet to avoid the known complications. If it is just a gluten sensitivity she says its not as much of a "risk" when I get glutened. Anyway I want to make sure that I am getting the blood tests I need. I had a biopsy years ago and it came back with slight flattening of the villi but the gastro at that time refused to give me a blood test for celiac and told me the flattening didn't mean anything and I didn't have celiac. It was after that I gave up and just went on the diet and my gerd and everything except the diarrhea went away - but even the diarrhea got better. When I went back on wheat the gerd and other problems came back. However, I became constipated (strange for me) with occasional dairrhea attacks. I have been on wheat again for about 5 weeks and will be taking the test in about 2 weeks. I'm fairly sure I have celiac but I know the tests don't always come back positive so I wanted to make sure I had all the correct tests to get my best chance of a diagnosis becuase after these tests I am going back on the diet for good. But if I am positive I think it may help to diagnose my mother and aunt who I think also have this. Any help directing me to the best information on tests will be greatly appreciated.

Thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Here's some info from the University of Chicago Celiac Center.

Open Original Shared Link

And the celiac society.

Open Original Shared Link

By the way, I turned these up with a very straightforward Google search for "celiac blood tests". If you want more information you might give it a try.

ravenwoodglass Mentor
ravenwoodglass
Posted

I know this information is here, but I'm not finding it. I was on the gluten free diet for a couple of years and was doing much better. My doctor said that I should be tested for celiac because if I have it I need to be stricter with my diet to avoid the known complications. If it is just a gluten sensitivity she says its not as much of a "risk" when I get glutened. Anyway I want to make sure that I am getting the blood tests I need. I had a biopsy years ago and it came back with slight flattening of the villi but the gastro at that time refused to give me a blood test for celiac and told me the flattening didn't mean anything and I didn't have celiac. It was after that I gave up and just went on the diet and my gerd and everything except the diarrhea went away - but even the diarrhea got better. When I went back on wheat the gerd and other problems came back. However, I became constipated (strange for me) with occasional dairrhea attacks. I have been on wheat again for about 5 weeks and will be taking the test in about 2 weeks. I'm fairly sure I have celiac but I know the tests don't always come back positive so I wanted to make sure I had all the correct tests to get my best chance of a diagnosis becuase after these tests I am going back on the diet for good. But if I am positive I think it may help to diagnose my mother and aunt who I think also have this. Any help directing me to the best information on tests will be greatly appreciated.

Thanks :)

The NIH is having a celiac awareness campaign. Here is a link to their testing page. As you know there is a chance of a false negative so do try the diet after all the tests are done.

Open Original Shared Link

ouatic Newbie
ouatic
Posted
  • Author

Thanks :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      GI DX celiac despite neg serology and no biopsy

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    2. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      6

      Shingles - Could It Be Related to Gluten/ Celiac

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress ...
    3. Scott Adams
      - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. ...
    4. Silk tha Shocker
      - Silk tha Shocker posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help

      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    5. trents
      - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      GI DX celiac despite neg serology and no biopsy

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,478
    • Most Online (within 30 mins)
      7,748
    Susan Gutenberger
    Newest Member
    Susan Gutenberger
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      Help

      By Scott Adams · Posted

      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Silk tha Shocker
      Help

      By Silk tha Shocker · Posted

      What is the best gluten free scanner app? I have the "gluten-free Scanner" app. I scanned an almond joy and it says it contains gluten when the package is labeled gluten free
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.