Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Old Were You When You Were Diagnosed?


SaraKat

Recommended Posts

SaraKat Contributor

I got the positive blood test last week and I am having the endoscopy next week and I am flipping out about the intestinal damage I may have been doing all these years. I am 35 and have been eating gluten all these years. I love cereals, chips, etc. I am so nervous!

How old were you when you were diagnosed?

My main symptom is left sided rib cage pain and I've always have mild gas- I always thought it was when I ate junk food. I am hoping the left sided pain is from the celiac. I just want to get the final dx and start the diet to see if I feel better.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Don't worry. It heals. I didn't figure out I was gluten intolerant/celiac until my late 30s. We just have to catch up on calcium with lots of weight-bearing exercise, supplements, and calcium-rich foods. :)

mama3122006 Newbie

I got the positive blood test last week and I am having the endoscopy next week and I am flipping out about the intestinal damage I may have been doing all these years. I am 35 and have been eating gluten all these years. I love cereals, chips, etc. I am so nervous!

How old were you when you were diagnosed?

My main symptom is left sided rib cage pain and I've always have mild gas- I always thought it was when I ate junk food. I am hoping the left sided pain is from the celiac. I just want to get the final dx and start the diet to see if I feel better.

Thanks!

I was diagnosed at 21, but I had been having the same side rib cage pain you described since I was about 17. I was originally diagnosed with acid reflux disease, until they found an abnormality during my 2nd upper endoscopy and did a biopsy. They then sent me for blood testing to further confirm the diagnosis. The real kicker was that I was a vegetarian at the time, and I worked at Subway for years!

SaraKat Contributor

Thanks! Speaking of calcium, I found a blood test I had done in April 2010 (before my celiac positive blood test) and my calcium, B12, and D were all in the normal range. My iron and ferritin were low though. Do you know if that has any indication about the condition of the intestines? I must have been absorbing some nutrients for them to be normal. All my liver levels were normal also.

Roda Rising Star

I was 35 when I was diagnosed and it will be two years this Sept.

jerseyangel Proficient

I was diagnosed 5 years ago at the age of 49.

I've had 2 endoscopys since, and no damage was found on either. I am highly sensitive to cross contamination, and have several other food intolerances and chemical sensitivities that showed up after going gluten-free.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.