Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This A Rxn To Advil? Or Food?


srall

Recommended Posts

srall Contributor

Hi everyone. I am really new to this site but have been getting so much good info from it. If nothing else it helps to make me feel less crazy.

Here's my question (which I'll try to keep short and sweet) with a tiny bit of background. When I found out I was gluten intolerant back in March 2010 I was on a whole foods detox diet. After two weeks I felt amazing. I did try and add wheat back in only to get sick again, and again, and again...until I finally accepted the fact that I was gluten intolerant. Slowly I began adding other foods back in, and slowly I began feeling a little sick again.

Now I'm back on the same diet as I was in March but I can't seem to get back to feeling as good as I was then. There's always some little food reaction, mostly with joints as I try and figure out all the different things I'm sensitive to. (No wheat, wine, dairy, soy, coffee)

Two days ago I cheated and had some coffee with rice milk, and I also at out at a (gulp...) pizza place with my daughter where I had a salad.

Within 24 hours a lymph node under my right ear started swelling and became very painful. So painful that last night I finally broke down and took some advil to manage the pain. I probably haven't taken an advil in 5 months. Today I'm foggy and my stomach is bothering me. Could this be from the advil, or I'm wondering if the swollen lymph node is a food rxn and these other symptoms are just following close behind.

Has anybody else dealt with the swollen glands from eating gluten...or is advil a problem. I thought it was gluten free?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi everyone. I am really new to this site but have been getting so much good info from it. If nothing else it helps to make me feel less crazy.

Here's my question (which I'll try to keep short and sweet) with a tiny bit of background. When I found out I was gluten intolerant back in March 2010 I was on a whole foods detox diet. After two weeks I felt amazing. I did try and add wheat back in only to get sick again, and again, and again...until I finally accepted the fact that I was gluten intolerant. Slowly I began adding other foods back in, and slowly I began feeling a little sick again.

Now I'm back on the same diet as I was in March but I can't seem to get back to feeling as good as I was then. There's always some little food reaction, mostly with joints as I try and figure out all the different things I'm sensitive to. (No wheat, wine, dairy, soy, coffee)

Two days ago I cheated and had some coffee with rice milk, and I also at out at a (gulp...) pizza place with my daughter where I had a salad.

Within 24 hours a lymph node under my right ear started swelling and became very painful. So painful that last night I finally broke down and took some advil to manage the pain. I probably haven't taken an advil in 5 months. Today I'm foggy and my stomach is bothering me. Could this be from the advil, or I'm wondering if the swollen lymph node is a food rxn and these other symptoms are just following close behind.

Has anybody else dealt with the swollen glands from eating gluten...or is advil a problem. I thought it was gluten free?

Open Original Shared Link

Advil is indeed gluten free.

Have you been tested? Have you considered that you may have a gluten allergy as well as a wheat or gluten intolerance?

srall Contributor

Yes I've been tested for a wheat allergy. I am NOT allergic to wheat. Gluten intolerance is a self diagnosis...but years of arthritis, brain fog, migraines, stomach issues, brain fog, fatigue cleared when I eliminated gluten.

Lisa Mentor

Yes I've been tested for a wheat allergy. I am NOT allergic to wheat. Gluten intolerance is a self diagnosis...but years of arthritis, brain fog, migraines, stomach issues, brain fog, fatigue cleared when I eliminated gluten.

I'm sorry, when you mentioned that you reintroduced wheat, I thought that was a possibility.

Well... here is some information you can ponder:

Open Original Shared Link

Sometimes we need to ask questions, in order to direct members in the proper direction. :D

As a "self diagnosed" gluten intolerant, I would encourage you to have and endoscopy exam. With years of "stomach issues", it might be wise to rule out some potential serious issues.

ravenwoodglass Mentor

You may want to have a doctor look at the swelling. It does sound like you may have had a gluten reaction to the meal from your description of your symptoms today. Whether the lymph node is related to the glutening I don't know. However when you have a node swell so markedly it is a good idea to have it looked at. It may even turn out to be some kind of a cyst and not a node at all.

If you do decide to get formally tested for celiac you should get back on gluten ASAP as since you have had a few months off of it you would need to do a challenge for a couple of months. You could also have something else going on either another intolerance, CC issues if your home isn't gluten free or CC from non-food sources. Your doctor can test for other issues like refractory sprue or Chrons, ulcers etc without a challenge but not for celiac.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.