Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Slightly Overwhelmed!


nikelodeon79

Recommended Posts

nikelodeon79 Rookie

Hi, I hope I'm posting in the right section! :unsure: I didn't see a section for introductions or anything.

I was recently diagnosed with Celiac Disease. Basically, the doctor (to whom I am grateful to for actually recognizing my long list of symptoms were all related to this one thing, and for ordering the tests in the first place) told me on the phone that I have Celiac Disease, briefly outlined what it is, and sent me on my merry way. My health insurance won't pay for a nutritionist, so I'm basically on my own. I'm very glad I discovered this forum!

For the first few days, I ate nothing but corn and rice because I knew I could eat it, LOL. A friend found out that Outback Steakhouse had a gluten-free menu so she took me to eat there... I felt like a ravenous wolf!

At any rate, I'm doing better now, and slowly learning what I can and cannot eat. Pre-diagnosis, my diet was absolutely terrible (almost exclusively processed foods) so I'm excited to start eating and feeling better. Most everyone in my life has been very supportive.

My in-laws are frantic to do something to help. They keep buying me gluten-free groceries (yay!) and keep asking me for a list of things that I need. They are currently trying to sign me up for the "Gluten Free Club," which I'm trying to (politely) decline, since this forum has so much free information, and I've been able to find a lot of free recipes on the web, anyway.

What I'm really trying to come up with is a list of staples that I should give to them. This list can include items that have made a gluten-free lifestyle easier (breadmaker, extra pots & utensils, etc.) and grocery items (I do have a Whole Foods nearby). My entire household won't be going gluten-free... just me (my husband and brother will be eating a limited gluten diet, but will not totally cut out gluten).

Tips for saving money will also be appreciated. My boss got fed up with me missing so much work and, despite the fact that I was finally able to go to him with a diagnosis, decided to cut my hours. So now... my food budget will increase while my income decreases. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



heatherjane Contributor

Hi, I hope I'm posting in the right section! :unsure: I didn't see a section for introductions or anything.

I was recently diagnosed with Celiac Disease. Basically, the doctor (to whom I am grateful to for actually recognizing my long list of symptoms were all related to this one thing, and for ordering the tests in the first place) told me on the phone that I have Celiac Disease, briefly outlined what it is, and sent me on my merry way. My health insurance won't pay for a nutritionist, so I'm basically on my own. I'm very glad I discovered this forum!

For the first few days, I ate nothing but corn and rice because I knew I could eat it, LOL. A friend found out that Outback Steakhouse had a gluten-free menu so she took me to eat there... I felt like a ravenous wolf!

At any rate, I'm doing better now, and slowly learning what I can and cannot eat. Pre-diagnosis, my diet was absolutely terrible (almost exclusively processed foods) so I'm excited to start eating and feeling better. Most everyone in my life has been very supportive.

My in-laws are frantic to do something to help. They keep buying me gluten-free groceries (yay!) and keep asking me for a list of things that I need. They are currently trying to sign me up for the "Gluten Free Club," which I'm trying to (politely) decline, since this forum has so much free information, and I've been able to find a lot of free recipes on the web, anyway.

What I'm really trying to come up with is a list of staples that I should give to them. This list can include items that have made a gluten-free lifestyle easier (breadmaker, extra pots & utensils, etc.) and grocery items (I do have a Whole Foods nearby). My entire household won't be going gluten-free... just me (my husband and brother will be eating a limited gluten diet, but will not totally cut out gluten).

Tips for saving money will also be appreciated. My boss got fed up with me missing so much work and, despite the fact that I was finally able to go to him with a diagnosis, decided to cut my hours. So now... my food budget will increase while my income decreases. :(

I don't have a lot of time to write at the moment...but just wanted to give you a few tips...others will post:

- Since you're still new, it's wise for many reasons to stay on a simple diet...eat very little processed food and avoid restaurants. This will help you heal faster, avoid cross contamination, and save money. Plus, it's healthier.

- My parents bought me my own set of pots/pans/cuttingboards, etc, for me only to use when I come visit them. They store them in big plastic bins and take them out when I visit. They don't have to spend lots of money... my folks got my cookware at Big Lots and all the extras at the dollar store.

- As for living with gluten eaters, make sure you have a segregated area in your kitchen where no gluten is allowed. Have your own toaster, cutting board, etc. Also make sure any condiments you have in the fridge are clearly marked as yours to keep gluteny utensils out (as with jelly, mayo, etc)

Hope that gives you a good start. Other people will chime in... keep asking questions. :)

scarlett77 Apprentice

Welcome and glad you are on the road to recovery! This place is a great resource for information and personal experience. I also like reading blogs by "Gluten Free Girl & the Chef" as well as "Gluten Free Goddess" some great recipes and ideas on those sites as well (just google them for the links). I've also found some great information from "Living Without" magazine, but it was a gift subscription so while nice, I'm not sure I would have paid for it myself. Specialty gluten free staples for me are:

Tamari (I use the SanJ I believe which I get at Whole Foods)

Udi's bread

Pamela's Pancake & Baking Mix

Pamela's Bread Mix

boxed Mac & Cheese (Annie's or DeBoles)

Pasta (I like Tinkyada because there is usually a variety and it goes on sale often)

Some nice things to have on hand but not staples:

Betty Crocker mix (they have brownie, cookie, and 2 different cake mixes)

Van's Waffles

Udi's pizza crust

Udi's bagels

Staple items that are NATURALLY gluten-free:

Fruit

Veggies (if using frozen make sure there are NO SAUCES or additives)

Meat (try to go for Organic or meats not injected with broth)

Yogurt (CHECK ingredients and manufacturers sometimes they are not gluten-free. Yoplait is usually safe)

Milk

Cheese (not Blue Cheese)

Rice

Corn tortillas (Mission is recommended...check other brands before using since sometimes they may be made by flour tortillas)

Nuts & seeds

Peanut Butter (check to make sure..I use Skippy Natural)

There's a ton more but that is basically my list. There are a lot of mainstream products such as some General Mills cereals (Chex, Fruity Pebbles, etc) that are gluten-free along with things like fruit snacks and some types of Oreida frozen potato products.

Beware of bath & beauty products also. Some lip glosses, hairsprays, lotions, etc. can accidentally be ingestion and cause reactions.

fatlazyceliac Newbie

I've only been Gluten-Free for 2 months, so I'm sure others will have much more advice, but here are some things I couldn't live without

- Rice cooker & vegetable steamer (yes, I know I can cook things like quinoa in a pot, but I'm lazy)

- Boxes of Oskri bars and mixes from Amazon for those times when I'm out & about (I love the Cashew/Cranberry bars)

- New toaster, pots, strainer & reusable containers - the cross-contamination had me sick.

- Orange dot stickers - how I mark my condiments and other foods that are just for me

notme Experienced

- Orange dot stickers - how I mark my condiments and other foods that are just for me

wow that's a great idea :)

Skylark Collaborator

What wonderful in-laws you have.

My list would be:

Rice cooker - it will save your sanity!

Crockpot if you don't have one (helps with the cooking)

Bread machine if you like to use them

Fresh cutting boards

Teflon pan for non-gluten foods

gluten-free cookbooks

You will find that cooking is a lot more affordable than trying to buy gluten-free convenience foods. I'd suggest you ask for some gluten-free flour like this one that just came up recently: Open Original Shared Link and enough herbs and spices if you don't have them around to make interesting food.

If they are inclined, I love Glutino bagels, the Whole Foods brand scones and breads, and the 365 brand rice crackers. They also have a gluten-free brand of Thai ramen I like to grab when I'm there. The new Betty Crocker gluten-free mixes at the regular stores are really good too.

Good luck!

nikelodeon79 Rookie

Thanks for all the ideas (and the support!). My in-laws are being super cool... which is really nice because things have not always been peach keen between us. Maybe this diagnosis will bring us together. I'm just having to rein them in a bit because they're so gung ho about helping... I haven't caught up with them yet! I'm trying to start small and ease my way into things (I'm completely off gluten, but am just eating a few basic foods right now until I get the hang of things). I'm going to definitely use this as motivation to get off the processed crap and start eating right. I'm sure my family (hubby and brother) will be very excited to have homecooked meals all the time. I am no stranger to cooking... but I'm usually just so darn busy that I don't have time. Now, I'll just have to make time.

My mom, on the other hand, keeps encouraging me to cheat. She's like "Oh, I don't think you have to be that careful!" when I try to explain about cross-contamination. I'm actually trying to convince her to get tested herself... she's got a lot of the same issues as I do, plus fibromyalgia and diverticulitis (sp?). Thyroid issues also run in my family.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bincongo Contributor

I am new too and it is true that keeping it simple with simple foods is the best advice but since I am not one to put my life on hold I am not following that advice all the time. My life saver has been the book Gluten Free Grocery shopping Guide by Matison. You can find it on line. I take it every time I shop. It has a huge list of everyday items that are gluten free. They took the time to consult manufactures to see which gluten free products they have. I also like Bisquick's gluten free pancake and baking mix.

srall Contributor

I just started eating gluten free (dairy free) in March. I started from only eating whole foods, then was ecstatic to find the processed gluten free foods...YAY convenience. Well, personally I had a really hard time with the processed foods, and they are very expensive.

I am back to whole foods and preparing all my own foods as much as possible. Even today I had Pad Thai at Noodles which is supposed to be safe, and I have a headache and my jaw is clenching. Just feel the best when I make the food from scratch.

I agree with the above lists. You will figure out there are a lot of foods you can eat. Just not a lot of convenient foods.

Marilyn R Community Regular

Hi,

I've been gluten-free for a relatively short time and find that things get easier as time progresses. Here are some budget friendly gluten free ideas for your staples.

White potatoes - Make 3 times the amount you will consume for a meal. I leave the skins on, cut them up and boil them. I refrigerate 2/3 of them for later, and mash the rest of them by hand with milk. (Rice milk for me.) The leftovers can be used to make American Fries for breakfast or another meal. They can be mashed as a topping for shepard's pie. You can add diced potatoes to any lettuce salad, not just nicoise. Make a frittata. Potato salad. I buy two bags of potatoes when they're on sale for 99 cents a bag. It takes no more time and less effort to make homemade mashed potatoes then it did for me to make Rice-A-Roni back in the pre gluten-free days.

Eggs - Cheap. Besides the obvious, boiled, fried, scrambled, omelets...Devilled eggs, egg salad, (Hellman's is gluten-free but I can't have it because of the soy) sliced eggs in salads, chopped hardboiled eggs are delicious in tuna salad.

Rice - Cheap. I ditto the Rice Cooker suggestion. Oriental stores sell beautiful jasmine rice at a very reasonable price. I alternate health food purchased organic brown rice with jasmine rice each week and make a big batch of rice every weekend to consume during the week. Warmed up rice with a scrambled or fried egg on it with feta cheese works for breakfast. Stir fries are really inexpensive and an excellent way to use up leftovers. Even though I pay more for some foods, I find that I use almost everything and waste less, which is better for my conscience and the earth.

Chicken - I get every cent out of BJ's Heartland Chicken. I buy two at a time, one to shred and freeze in packets (for chicken salad, bbq chicken, chicken soup, chicken stir fries...)and one to eat during the week.

One product I love is Riceworks chips. They are delicious on their own and have a satisfying crunch. Crushed, they can be used as a filler for any stuffing recipe vs. breadcrumbs ... like meatloaf or stuffed mushrooms ... or be a breading substitute for panko (crusted fish, etc.) They make delicious natchos (Tostitos are gluten-free too)

Don't pay the big buck for gluten-free salad dressings, because you can make better dressings at home with safe ingredients and less effort than it takes to read all those ingredient labels.

I haven't bought many gluten-free labelled foods because they're so expensive. I'd rather splurge on shrimp or something that's really gluten-free without having to wonder if the producer is being honest.

All the best to you. My boyfriend doesn't miss the gluten.

sandsurfgirl Collaborator

Eat clean in the beginning to help healing. Don't go nuts on gluten free junk foods and starchy carbs.

When you feel better here are a few things I like.

By far the best bread I've tried and the cheapest ($4 a loaf on the internet order place named after a river) is Gluten Free Pantry Basic White Bread Mix. It's super easy to make. Mix it up. Rise in the loaf pan half hour. Bake half hour. Makes a big loaf.

Tinkyada rice pasta. This is from an italian girl who was freaking about pasta. Like it a lot.

Betty Crocker cake, brownie and chocolate chip cookie mixes.

Awesome peanut butter cookies super easy to make.

1 cup peanut butter.

1 cup sugar

1 egg

Mix up the dough. Form balls and then smash with a fork. Bake at 350 for about 10 minutes until lightly browned.

AMAZING.

Glutino pretzels and wafer cookies are great. Also their crackers. I love Glutino stuff. Gluten free pantry is owned by them.

Gluten free pantry french bread and pizza mix is yummy for pizza.

sandsurfgirl Collaborator

We are all overwhelmed in the beginning. It gets easier and then it just becomes your life.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,356
    • Most Online (within 30 mins)
      7,748

    JAGAPG
    Newest Member
    JAGAPG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.