Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Glutened By A Friend!

Twister2

By Twister2
in Coping with Celiac Disease

Recommended Posts

Twister2 Contributor
Twister2
Posted

Hey all, anyone else ever been accidently glutened by a friend??? We had friends over for dinner, and my husband was making homemeade burgers. A friend of ours was mixing the meat up and put a beer in there to add flavor. I ate the burger and have been sick for two days and itching like crazy! I told my husband the next day that I couldn't figure out what I had eaten, but I felt terrible and he said "oh yeah, our friend put a beer in the hamburger." I was so mad even though neither of them meant to make me sick. My hubby said "well it was just beer, I thought it was fine" Sheesh.....it's like beer is its own food group or something!!! :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted
Hey all, anyone else ever been accidently glutened by a friend??? We had friends over for dinner, and my husband was making homemeade burgers. A friend of ours was mixing the meat up and put a beer in there to add flavor. I ate the burger and have been sick for two days and itching like crazy! I told my husband the next day that I couldn't figure out what I had eaten, but I felt terrible and he said "oh yeah, our friend put a beer in the hamburger." I was so mad even though neither of them meant to make me sick. My hubby said "well it was just beer, I thought it was fine" Sheesh.....it's like beer is its own food group or something!!! :huh:

:o:o Just beer..I would have said o next time I'll add just a little bit of rat poison...just a little bit..see if thats ok for you. :lol:

I have been glutened by my friends before. I hope you feel better soon

luvs2eat Collaborator
luvs2eat
Posted

That rat poison example is a really good illustration to explain the gluten-free diet...

It's a pain to have to ask all the time what's in stuff... cause it seems to me 9 times out of 10, there's something in stuff that I can't have when we're at friend's... and it makes THEM feel so bad.

I hope you feel better soon too!!

jenvan Collaborator
jenvan
Posted

Ugh! That's stinks! I'm sorry! So many times our friends don't really get the long term consequences of being glutened. Don't be afraid to be honest and decline even if you are suspicious. Maybe you'll have to give them a long lists of non gluten-free foods... I had a friend recently say she was going to bake me a gluten-free surprise for a cook out we were having. She is sweet, but not detail-oriented, so I called her back later and mentioned contamination etc, and that I wasn't really comfortable with the idea. Well, it turned out she made gluten-free chocolate brownies and remembered later I can't eat chocolate !! See-attention to detail, she knows I can't eat chocolate, and forgot :) It's always good to remember our health is more important than trying to be nice...not that we can't decline nicely of course ! Hope you feel better soon !

Carriefaith Enthusiast
Carriefaith
Posted
It's always good to remember our health is more important than trying to be nice...not that we can't decline nicely of course!

That's so true! I have people make stuff and say I "can" eat it and sometimes I do not eat it. It's not that I don't like them... it's just that they don't always know how careful they have to be!

tarnalberry Community Regular
tarnalberry
Posted

I feel safe if a friend who is making me something asks about pretty much every last ingredient - even an "obvious" one. I don't feel safe if the person asks no questions at all. :-)

As for the beer... I'd cut them a bit of slack - most people don't know what goes into beer, and a lot who have a clue might only say hops. Lesson learned for them.

skbird Contributor
skbird
Posted

Yeah, I feel bad about making friends feel bad about not having anything I can eat. I have this one friend who keeps telling me that she asks for a list of what to avoid but I haven't had time to sit down with her yet to explain so I haven't given her one for that reason. I instead just bring things I can eat with me.

But you guys are right, it's more important to be safe for yourself than to not hurt someone else's feelings. Just hard trying to figure the best way for some people...

Stephanie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

my sister is one of those not so detail oriented people... she tries really hard to make gluten free things that I can eat, but inevitably she puts something in without thinking about it (like flour to thicken the sauce) or uses a seasoning without checking it first. I know it hurts her feelings if I won't eat anything she makes but after being accidentally glutened by her on more than one occasion, I just can't take a chance anymore. I tried telling her, just make what she wants to make, don't worry about trying to make it gluten free, that I'll fend for myself. She really wants to make something for everyone that my daughter and I can eat as well, but she just gets distracted too easily. (like the time she iced all of my gluten-free cupcakes that I made with the same icing and crumb filled knife that she had just used to ice all of the non gluten-free cupcakes)

louie Newbie
louie
Posted

I've been glutened by well meaning friends, especially when I was first diagnosed, I've even had friends buying food that they think is gluten free for me and then I'm apologsing for not being able to eat it which is embarressing, but at the end of the day it's my stomach thats going to ache, not thiers.

I ended up just telling people that it's a very complicated diet , i can basically only eat plain meat, rice vegetables and fruits with no sauces/ dressings, and this seems to have worked well with my friends

I just hate it when I go somewhere and what I can and can't eat becomes the main topic of conversation, I'm someone who hates being the centre of attention at the best of times and sometimes people just start asking questions and coming up with all kinds of useless advice and recipes that are not gluten free, suddenly everyones an expert of celiac!

I've become good at changing the topic when this happens.

I have one freind who I will take food from she is Italian and used to cook for a resaturant and her food is FANTASTIC!!

she makes everything from scratch (even stock!) and is fanatical about getting my food gluten free.

In my last year of uni when I was going crazy trying to finish my hons dissertation on time, she arrived at my house with 2 weeks worth of frozen gluten free Italian meals :D

marycubs Rookie
marycubs
Posted

Okay - just to add a little humor to our gluten free lives:

when I read the topic "I've been glutened by a friend"... the Rollings Stones song "I'm just waitin on a friend" came to mind. :lol:

I bet there are alot of songs we can play with -

To the tune of "Born Free"... (for all you age 40+ posters):

"Wheat Free...

though pizza surrounds us...

our hotdogs are bunless ...

Wheat Free...

we must continue to be"

:lol:

Guest Viola
Guest Viola
Posted

Ahhh, Mary that is funny :lol: We do need a sense of humour around here.

I even try and discourage friends from buying gluten free products. For one thing, they usually buy something that is if maybe edible, pretty bland and boring. Then when I leave they are stuck with this awful expensive stuff. We spend a lot of time trying out and finding 'good' gluten free products, and know what to look for. So I keep telling them to please not waste any money on a gluten free product, when we go to play cards, or visit, I'll bring my own. And of course they are surprised that things like Lays Stax can be gluten free :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
    2. par18
      - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free...
    3. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    4. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748
    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      IBS-D vs Celiac

      By par18 · Posted

      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.