Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

On Sibo Diet - So Hungry!


lucia

Recommended Posts

lucia Enthusiast

The good news is that I am feeling better everyday on the SIBO diet. One week ago, I pretty much had continuous stomach cramps, and those are gone.

As I feel better though, I'm beginning to experience real hunger again. I'm only eating fish, eggs, and fruits & vegetables, no grains at all. I can't seem to satiate this hunger.

Has anyone else done the SIBO diet, and experienced this? Is it just a stage?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gary'sgirl Explorer

The good news is that I am feeling better everyday on the SIBO diet. One week ago, I pretty much had continuous stomach cramps, and those are gone.

As I feel better though, I'm beginning to experience real hunger again. I'm only eating fish, eggs, and fruits & vegetables, no grains at all. I can't seem to satiate this hunger.

Has anyone else done the SIBO diet, and experienced this? Is it just a stage?

I'm curious... What is the SIBO diet? And are you on it because of things you can't eat along with gluten?

I'm glad you are feeling better and I hope that it continues, but not the hungry part... of course. :)

~Sarah

cassP Contributor

i havent experienced it- because i dont have the discipline u have!

years ago (before suspecting Celiac)- i limited my diet to ONLY meats, veggies, & fats. (atkins,then bloodtype)- but i STILL ate dairy. i pretty much felt fantastic!

have to admit tho- it would be almost impossible for me to do what you're doing, tho im sure i would feel great.

im wondering- if any of you out there ever see articles & videos put out by the GlutenFreeSociety??? they talk about how other grains have a type of Gluten that may also be harmful... that when they first studied Celiac Disease & Gluten Intolerance- they only studied a few grains..?????

i dont know if they're full of it OR if my favourite doctor is right- but i FOR SURE feel BEST when i eat NO GRAINS WHATSOEVER.

hhmmm?????

lucia- glad you're feeling better :)

lucia Enthusiast

gary'sgirl, The SIBO diet is designed to treat bacterial overgrowth. I was getting sick from eating/drinking everything, so I suspected that I had bacterial overgrowth. It's definitely a desperate measure.

cassP, You reminded me how hard this diet is. I wouldn't be doing it if I didn't need to to recover.

This experience has made me think that I need to include some foods to eat in case of emergency hungers.

Skylark Collaborator

I'm so glad you're feeling better! Hungry is much better than sick.

I wonder if you're not getting enough calories, especially since you will be healing if things are settling down. People don't use protein very well for fuel so we need either complex carbs or fats. If you took all the complex carbs out, you have to put some fats in! I don't know much about the diet. Are you allowed nuts and seeds? Can you eat a handful of nuts, drizzle some extra-virgin olive oil over your veggies, or put some peanut butter on celery sticks?

India Contributor

Hi Lucia, I'm so glad to hear you're feeling better! I'm sorry to hear you're so hungry though... I know that feeling! As Skylark suggested, perhaps there are some safe foods you could add. Can you eating oily fish at oil? The extra fats might help your appetite a little.

Sorry if this isn't much help, I mostly replied to say how happy I am for you :-)

cassP Contributor

sorry Lucia- didn't mean to remind you that it's hard- im just always amazed- because i have such lack of self discipline

i like the above suggestions- with EVOO & nut butters... the fats will help you absorb more vitamins too


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Girrlock Newbie

Hi Lucia! I am not a frequent poster here but I read your post about having SIBO and I just had to chime in. Its great that you're feeling better with your new diet. What you're describing is akin to the diet I feel best on (I have SIBO too) except I don't eat any fruits except berries and I eat all meat (not just fish.)

I run an online support group for people with SIBO and I also write a SIBO blog so I'd love to know where you got your SIBO diet from. Is it just something that came to you from experience? Because there isn't much of a consensus on what to eat and what not to eat when you have SIBO. The way of eating that Dr. Pimentel describes in his book allows small portions of white carbs (white rice, white bread, etc. - easier to digest) and this works well for some folks while the no-grain thing works better for others. Its funny; I was actually vegan when I got sick with SIBO. Later on, before I got the SIBO diagnosis, I had added dairy back in - mostly because my doctor had told me I had gastroparesis so I thought I should add dairy back in for the protein. Years later I am just now giving it back up again (dairy that is) because I never saw my symptoms get worse when I added it. Its only been a few days really but I notice a huge difference.

As far as the hunger, I can only imagine that when you are starting to feel better, and feel more like eating, then yes, you'd be hungrier. Are you getting any fats in? Because with few carbs like that, you'll probably need fats in order to not feel hungry. I see another poster addressed that already.

BRUMI1968 Collaborator

I've done grain free, and it works best for me. It is really hard to maintain, however. I use sweet potato for that feeling of full, and recently added back regular potato after not eating it for two years.

I'm also, though, typically vegan and to be honest, this is catching up to me. I am adding back some meat right now because I'm anemic and it's hard for me philosophically to grasp that taking supplements made in a lab someplace could possible be better than eating GRASS FED humanely raised meat once a week or so. That said, I'm struggling with it. I'm also an aspiring Buddhist, which adds to the problem philosophically.

I think the grain free thing just needs a way to make enough calories. One way is to add quinoa or amaranth to the diet - they are not grasses/grains, but we call them that as it makes them easier to talk about. They are actually seeds. Amaranth especially helped me when I first went grain free - it tastes a bit odd but you get used to it. I have never in my life been more "regular" than when I had amaranth every morning for breakfast.

I'm currently on the low fodmap diet, for similar reasons to why you're on the sibo diet...it is pretty interesting if you want to google it. It separates out types of sugars and then through elimination and adding back, you can see which of these highly fermentable sugars you might have troubles with. Already being vegan I did not have to worry about milk sugar, so mostly I had to quit beans (which I know I do better w/o anyway), onions, Brussels sprouts (totally my favorite), cabbages, zucchini (ate a lot of this) and I think that is mostly it.

Anyway, I'm blathering on due to the crazy low-oxygen anemia brains....but try adding quinoa, amaranth, or sweet potato for feeling full. Cream of cauliflower soup can help too (just cook the cauliflower and then put it in the blender, it creams up by itself, or add some avocado)...if that's allowed on sibo. Good luck to you!

-Sherri

cassP Contributor

i've read that amaranth is good for your large intestine :)

and ive read that dark turkey meat can have as much iron as red meat... but i totally understand the philosopy- i feel bad eating animals too- if i could be healthy as a vegetarian i would.

gary'sgirl Explorer

gary'sgirl, The SIBO diet is designed to treat bacterial overgrowth. I was getting sick from eating/drinking everything, so I suspected that I had bacterial overgrowth. It's definitely a desperate measure.

cassP, You reminded me how hard this diet is. I wouldn't be doing it if I didn't need to to recover.

This experience has made me think that I need to include some foods to eat in case of emergency hungers.

Lucia, where did you find out what to eat for this diet? I have been looking up a lot about it, but can't find too many specifics on what is best to eat and for how long you should be on the diet to ensure things have gotten back to normal.

Also, how long had you been on the diet when you started to notice improvement?

I think that this may be part of my problem with not recovering. I know that I have been having bacterial overgrowth problems, but I wasn't tested specifically for SIBO.

I'm so glad you started this thread!

  • 3 weeks later...
Katie B Apprentice

I know this is a late reply but I'm on the SIBO (low FODMAP) diet as well. I'm sure you've progressed from where you were about a month ago so sorry if this isn't applicable anymore but thought I'd jump in.

I'm eating small amounts of carbs (15-20g) every 3 hours - this includes corn flakes from Erewhon (gluten-free/sugar free), lactose-free milk (1/2 cup at a time 1 cup a day), rice wraps, pumpkin, zucchini. I'm eating a lot more protein - tilapia, shrimp, chicken, salmon, lactose-free cheese (cheddar), lactose-free yogurt (lactose-free Specific Carbohydrate Diet), gelatin with stevia. I've been adding safflower oil to lots of things like to tuna rice wraps and to my zucchini. Having 6 meals a day. Very difficult to follow the diet but it's worth it. I'm hoping to expand to fruits and other cooked veggies soon but I'm also recovering from c. diff. colitis so I can't process a lot of foods - thus making sibo even worse. It's definitely doable though! I'm just happy I can eat anything really. Also supplementing with Vivionex T.E.N. as per Dr. Pimental - find I have to sip this slowly so I don't overload on carbs.

Just as proof that this diet is working I went through the glucose challenge for diabetes (have to basically drink a soda pop) and had horrendous D afterwards - way too many carbs.

I've been working with Diet Solutions in Australia via Skype - they've been great. Also bought Sue Shepherd's cookbooks.

Anyways, good luck with your diet...it's a process!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.