Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Issues First Week Gluten-Free?


GypsyGirl

Recommended Posts

GypsyGirl Rookie

Hello!

I'm new here, and relatively new to this whole subject (though I've been reading like mad).

For 9 years now I've been on a yeast/candida control diet (no fruit, no refined flowers or refined oils, no sugar, no dairy, nothing fermented, no caffeine, etc.).

I have not been tested for Celiac Disease, but I and my family exactly fit the profile for either Celiac or Gluten Intolerance, and I finally took the plunge to try 30 days gluten-free and see if my symptoms improve. Until now my diet has been very heavy on the wheat.

I've been gluten-free 4 days now, and I can already tell this was the right decision, because some things have improved tremendously (I actually bonked my head on the floor during yoga, because doing my usual bending motion put me much lower than usual, due to the increased space and comfort in my lower belly!). However, (and pardon the TMI, but I suppose you are all used to it:)) my bowel movements have been really loose, near liquid. No cramping (which in the past would have always accompanied such), but a little off schedule as well, and not exactly pleasant. Some excess gas throughout the day, etc...

I'm just looking for some advice while I try to stick it out. Is it likely this is just my system adjusting to the shock of the dietary change? A reaction to adding more vegetables and meat? Does this happen to other people, and is it likely to subside soon?

Any advice or reassurance (or just commisserating LOL) would be very much appreciated.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



srall Contributor

Yes. I think you need to stick this out while your system adjusts. I discovered my intolerance to gluten (and dairy, soy, caffeine) while on a detox diet so I felt awful for 2 weeks. I think my body was just getting rid of so many things that were poisoning me it made me really sick. Now I've been doing this since March and I'm still trying to figure out the perfect formula. Some days I just feel off, fatigued and foggy and I can't trace it to anything. From what I'm reading it just takes a very long time for your body to heal and recover. Even as much as 2 years. I think if you stick with it you'll continue to improve and feel better.

sandsurfgirl Collaborator

4 days is just the baby steps phase. The body goes through withdrawals and it takes time depending on how sick you were to begin with. It may be that you didn't need all that candida cleanse stuff, that it was always gluten.

(The candida claims are dubious anyway)

Search on here for withdrawals and read old threads to know what to expect and what is "normal."

I had the oddest things happen to me in the beginning. Pooping literally 10 and 12 times per day, some days more, for like 2 or 3 weeks. All manners of D, C and everything in between.

Okay, this one is so TMI but I will share. We all share poop and gas stories on here. It's a party! :lol:

I had this horrible cramp in my side. I'd had pain in my right side off and on for years and after tons of tests they came up with nothing. I was 2 weeks gluten free approximately and one night I was sitting in bed and got that same pain I always had gotten. But this time it was really bad and it was spasming and twitching. Then I got this major anxiety attack (one of my big celiac symptoms) and dizzy spells. I was gasping for breath and had to run to the bathroom. I felt like a pop or something on that right side where I'd had the pain all that time. Then I went to the bathroom, and was having anxiety and dizzy spells and all these weird sensations while I had to go. This stuff came out of me that looked like black tar. And when it was gone my symptoms subsided and I haven't had that pain since.

VERY Twilight Zone! Welcome to celiac!

If you have it, which you likely so since you are having big improvements on the diet, then you'll find all sorts of unexpected good results that you don't think are related to celiac. My anxiety was all due to celiac. Now I only get if I've been glutened. I had chronic sinus infections for years and years. All gone now.

GypsyGirl Rookie

srall and sandsurfgirl - thank you both so much for the replies. It's very reassuring to hear that others have gone through the same and far worse. I am definitely going to stick it out and I'm tentatively hopeful that life may be a whole lot better on the other side.

sandsurfgirl - you may be right that the candida is only a side symptom of the larger problem. Coming off the sugar and fruit and dairy definitely eliminated an array of symptoms that had long been plaguing me and they have not returned as long as I've been on on the diet. But other symptoms have remained regardless, and that is most like the gluten issue. I've also had CFS since I was 13 (I'm turning 38 this weekend), and am currently undergoing the Gupta Amygdala Retraining program to help treat that (which is the first thing in 35 years to actually improve my health), but some debilitating symptoms have remained, and I'm really starting to wonder how many of them may disappear as I continue to be gluten free. There is definitely an anxiety element to the CFS/Amygdala problem as well, and I wouldn't be surprised if the two syndromes are interrelated or one can lead to the other (gluten intolerance to CFS).

Your story sounds SO much like the symptoms my mother has suffered with her whole life. She is most likely celiac as well and I'm trying to get her to get tested. Problem for her is that she's on SUCH a massively restricted diet otherwise (for candida, food allergies, etc.), that she would need something to change in order to be able to remove wheat from her diet and not quite literally starve to death. I'm having enough trouble finding adequate food sources myself, and I have more diversity in my diet than she. I do hope to add in more foods that I haven't yet tested my tolerance for and expand my diet in the long run, but obviously I can't try new things during the initial detox phase, or I would never get any kind of accurate test.

Anyhow, thank you all for the support, and I will definitely be doing more reading of this forum's archives.

I'm about to hop on a plane tomorrow (with my son) for a visit to my parents, during which net access will be spotty, so I really appreciate the quick replies before I take off.:)

Here's hoping my symptoms leave me alone during the flight!

sandsurfgirl Collaborator

I bet the CFS is related to gluten. I will be surprised if you don't get relief.

If I were you I would add back in the fruits and some sugar and stuff, not go crazy or anything, but focus on being gluten free and eating as healthy as you can for gut healing.

Marz Enthusiast

This stuff came out of me that looked like black tar. And when it was gone my symptoms subsided and I haven't had that pain since.

Were you badly const just before this? Sounds IMHO like a impaction that cleared. I've had a similar experience 0.o Also cleared without any further incident, but just weird. I also had liquid d in my first week of going gluten free.

Since then, while I've been properly gluten free (and not challenging myself in some stupid attempt to prove to myself that I am gluten intolerant :angry: ), I haven't had any of these sort of problems.

I think the first few weeks you can expect anything, your system is really adjusting to this new gluten-free diet!

notme Experienced

I am very new here, too. this place has been a Godsend for me! I had a lot of D the first week - a lot - and seemingly out of nowhere but I read *on here* to try going dairy-free for awhile while my body is healing. worked like a charm :) learning to read my body better, too ( after all those years of clean living... NOT! ) I never knew what was wrong with me or how to correct it so whatever. what a huge difference!!! feeling better every day and gained some much needed weight.

in my mechanical mind: I am comparing my neglected and abused digestive system (and the rest of my malnourished systems/senses!) as an old machine that has sat idle for a long while. I keep thinking that my intestines are working now, like I've started that creaky wreck. the pains I'm feeling from time to time are parts that haven't been used properly in a long time? that make any sense?

and detox I expect will continue for awhile.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.