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Bad Gas Bad Life


rose.88

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rose.88 Newbie

Hi everyone

My problem is GASES !!!!!!!!! HORRIBLE GASES .. its soooooo embarrassing that I cannot do anything in my life ! I cant study or work because I just cant sit in one place without passing gas ! My life is completely ruined and nobody gets it even my family! I had to drop out of college and leave my friends :( I have no social life .. no career .. nothing!

I have this problem since 8 months now ! I saw many doctors and all of them told me I have IBS they just thought that I have emotional problems and depression! But one of them asked me to try dairy free diet then do lactose tolerance test. So I tried the diet for 4 days and haven


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Looking for answers Contributor

Hi everyone

My problem is GASES !!!!!!!!! HORRIBLE GASES .. its soooooo embarrassing that I cannot do anything in my life ! I cant study or work because I just cant sit in one place without passing gas ! My life is completely ruined and nobody gets it even my family! I had to drop out of college and leave my friends :( I have no social life .. no career .. nothing!

I have this problem since 8 months now ! I saw many doctors and all of them told me I have IBS they just thought that I have emotional problems and depression! But one of them asked me to try dairy free diet then do lactose tolerance test. So I tried the diet for 4 days and haven

uafnanook2001 Newbie

Hi everyone

My problem is GASES !!!!!!!!! HORRIBLE GASES .. its soooooo embarrassing that I cannot do anything in my life ! I cant study or work because I just cant sit in one place without passing gas ! My life is completely ruined and nobody gets it even my family! I had to drop out of college and leave my friends :( I have no social life .. no career .. nothing!

I have this problem since 8 months now ! I saw many doctors and all of them told me I have IBS they just thought that I have emotional problems and depression! But one of them asked me to try dairy free diet then do lactose tolerance test. So I tried the diet for 4 days and haven

ravenwoodglass Mentor

I think there are a lot of us who can identify with your problem. Between the stomach rumbling so loud you could hear it across the room and the constant 'toots' I felt like a one man band at times.

The advice to get a good probiotic is a good one. Eat simply, which it sounds like you are doing, but do add some well cooked veggies or fruits to your meals for good nutrition. Stay away from sodas and carbonated beverages for now and if you eat or drink anything with sugar alcohols or sugar substitutes stop for a bit. Check any supplements or meds for gluten. Meds should be checked with the maker as your doctor won't know if they are gluten free. Also watch out for cross contamination. It can take some time to heal but you will and once you do the gas should go away.

cassP Contributor

it will NOT all go away in 2 days- of course u will feel A LOT better in 2 days- but it takes a while for your digestive system to heal and be able to digest even gluten free foods-

i had gone on and off this diet in the past- it always took me a good 3 weeks to not be in gassy pain most of the time! i feel much better now- but keep in mind- u could have other intolerances whether temporary or permanent. some of us cant do dairy, or soy, or corn... but everyone's different.

i also have a Fructose problem- and now that ive eliminated certain fruits- i am MUCH MUCH happier.

i was doing GREAT- and then last night i made gluten free cupcakes- stomach ache and gas this morning- (some of us do better on little or no grains)

u also may want to research about SIBO

lots of people here can help u on this journey! dont lose heart- it takes more than a few days- u will feel better soon :)

kayo Explorer

I can relate! It will go away but it will take time. It's possible you could have additional intolerances as that is pretty common with all of us, celiac or non-celiac. I'm intolerant to soy which makes being dairy free a bit trickier since soy is the perfect non-dairy solution, but there are others. A good probiotic and digestive enzyme will help. Keep a food diary. This will help you narrow down the suspects. I too had SIBO and I have issues with fructose (apples, pears, etc.) and fructans (onions, garlic, shallots, etc.) I'm just now at a point in my diet where I have very little gas. It takes time. Be patient and focus on the little victories. You can do it!

SGWhiskers Collaborator

I reached a point before my diagnosis, I couldn't stand to be around myself. First I was diagnosed with a milk allergy and cut out all dairy. That didn't do it, but when the celiac was diagnosed, things got a lot better over a 3-6 month period. I found I needed to stay away from dairy as well. I do not have a nut allergy, but find that for my body, peanuts are a trigger for the stinkies. I still have gas, but after 2 years gluten, dairy, and egg free, the smell is gone or something I can get away with around my husband. Even the slightest bit of gluten will set my body off for weeks. I hope that you can give the gluten/casin free diet a solid effort for at least 6 months (hopefully that will convince you for a lifetime). This website is a great resource for information and support. Good luck and hang in there.


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srall Contributor

I will just be another person that chimes in and says...yes this sounds similar to my symptoms. Now I never have bad stomach problems or feel gassy at all. The only time I had a problem was when I was on vacation a month ago and kept drinking soy lattes from Starbucks...then the gas was pretty awful and foul (tmi...sorry). I've since dropped soy and coffee (and have been lactose free as long as gluten free). I think you'll find that you need to baby your system for awhile, and start to explore new foods. I'm at the point where my diet is so pure, that if I eat anything processed I swear I can taste chemicals. Give it time and GOOD LUCK.

srall Contributor

Oh and one other thing. You may notice many other symptoms you never would have thought were related to diet clear up too. Even last night as I was lying in bed reading it occured to me that since I've been gluten free my hands and forearms never go numb anymore from holding the book too long. I haven't had a cold sore in 5 months and other even more embarrassing issues have cleared up. The main ones you'll notice right away, if you are following the diet meant for you, is no more headaches, brain fog, fatigue. Although I have to say sometimes I still have off days seemingly unrelated to being glutened. It takes a long time but it is so worth it. It is absolutely life changing in a positive way.

rose.88 Newbie

Many thaaanks guys Im really glad to see all these advices and comments :) I will keep them in mind. Now Im taking probiotics ( acidophilus ), multivitamins and lactase enzyme I dont know if I have fructose or other problems so for now I will stick to the gluten/lactose free diet and hope that my gases will go away for good :')

rose.88 Newbie

Have you been on antibiotics in the past year? I recommend strictly following the diet, but also taking good quality digestive enzymes with each meal and probiotics.

NO I havent! but I used to take panadol almost everyday because I had headaches But not anymore ! Im taking probiotics and vitamins :) so all I have to do is wait and see

MelindaLee Contributor

Even last night as I was lying in bed reading it occured to me that since I've been gluten free my hands and forearms never go numb anymore from holding the book too long.

I have been gluten free for 2 weeks...I will have to test this theory and see if my hands stop going numb! So many symptoms I thought was just from turning 40 that now seem to be related to gluten!

srall Contributor

Melinda, I am 42 and for YEARS have blamed my fatigue and symptoms on age, stress, motherhood, etc.

If I'm having a good day (because there are still bad days) I feel 20. Keep going...you are going to feel so much better! You may have to drop some other foods too before you get there, but when you do you'll feel great.

ravenwoodglass Mentor

I have been gluten free for 2 weeks...I will have to test this theory and see if my hands stop going numb! So many symptoms I thought was just from turning 40 that now seem to be related to gluten!

Yep. Gluten sure does make us old before our time. I'm 54 and feel the 'youngest' now that I have since I was a child. All those things I had to stop doing like dancing, bike riding and long walks by the lake are now once again a part of life. It does take a while to heal though so be patient with your body. We didn't get sick overnight (though for some it can seem like we did) and we don't heal overnight either.

Try some sublingual B12 to speed the disappearance of the numbness. It may help a lot.

CarolinaKip Community Regular

Oh and one other thing. You may notice many other symptoms you never would have thought were related to diet clear up too. Even last night as I was lying in bed reading it occured to me that since I've been gluten free my hands and forearms never go numb anymore from holding the book too long. I haven't had a cold sore in 5 months and other even more embarrassing issues have cleared up. The main ones you'll notice right away, if you are following the diet meant for you, is no more headaches, brain fog, fatigue. Although I have to say sometimes I still have off days seemingly unrelated to being glutened. It takes a long time but it is so worth it. It is absolutely life changing in a positive way.

I was having 9-10 migraines a month! I haven't had one since going gluten-free! Hang in there, I'm going into my 4th month gluten-free. A great tip they gave me here is to keep a food diary. It will help you figure out if other foods bother you. I found out I cannot do tomatos.Hang in there!

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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