Tissue Transglutaminase (ttg)

[Emme999]

Well, my dad was finally tested for celiac disease - which I *really* thought he had, because of his many problems that seem to correlate. But - his tTG score was only 3. So.. this led me to wonder what mine was!

My score was 23.4 - does anyone know about the "normal" range? My dad's doctor said normal range was anything below 19, but then my doctor told me that normal range was anything below 7. All I know for sure is that mine seems high.

If you know your score, please share I'm interested!

And what does it mean if your score is "really" high versus "kinda" high anyway?

Please let me know if you know

Thanks!

- Michelle

[KaitiUSA]

Different labs vary with the ranges of normal.

My lab said anything below a 4 was normal...I had a 10

[nikki-uk]

My husband's ttg was 12 which was classed at borderline(biopsy positve though)

My son's recent results are7 which again are classed as borderline-but docs are now checking his ferratin levels looking for more signs.

The number scored therefore can vary enormously.Would your Dad consider doing a trial gluten-free period to see if he has a positive response?

[Carriefaith]

Mine was high, like 20 or 30 something, I don't really remember the exact number though. I believe the normal in my lab was 7.

[SueC]

MIne was 187!! The normal range for my lab is 0-19.

Does anyone else have a level that high?

Sue.

[bklyn]

Yup, mine was 194.

[SueC]

Hi Kathy,

Did your levels go down? If so how long did it take?

Sue

[lovegrov]

Mine was 177 with anything above 19 positive. It was normal 14 months later but probably was actually down before that.

richard

[bklyn]

I was at 5 after about six months.

[skbird]

Michelle - was that the only test your dad had, or did he have others?

Stephanie

[Sharon C.]

Hi-

My son is going back for a follow up after being diagnosed last October with Celiac. They are testing him with this same test. They are not doing a Gliadin/IgG-IgA. Just a tTG, and also thyroid function and also CBC/platlet. Is this a normal way to check to see if levels have gone down?

Also, when my son was diagnosed, I asked my doctor to screen me. He had NEVER screened anyone for gluten intolerance before. He sent me for the Gliadin IgG-IgA test but NOT the tTG. He said it "seemed" like I was negative. Is this the proper way to screen someone?

[nikki-uk]

Hi Sharon-the ttg is specific to coeliac disease,and you should have had it with the other tests.Without the ttg,your levels of iGg/igA would not really mean much(other than high levels would mean all is not well in your body).

However for your son,just testing his tTg levels is a normal way in diagnosed coeliac to see if his antibodies to gluten are going down now he's gluten-free.

Hope that helps.