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Number Of People On The Board


jaimek

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jaimek Enthusiast

I just took notice of the fact that I joined this board on February 10th, 2004 and was member #771. One year later, February, 2005, there were almost 4,000 members. That means over 3,000 people joined this website in one year. I think that is just insane!!!! I guess people are really becoming more knowledgable when it comes to Celiac and I think it's great!!!!! :lol:


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celiac3270 Collaborator

Yea...the funny thing, though, is that there are only maybe 200-400 people who post even semi-frequently.

Carriefaith Enthusiast

yeah I've noticed that some people make a few posts and then disappear and a lot of people have joined and have not posted at all. But that is an insane amount of people!

Guest Viola

Perhaps the people who don't post are finding the answers to their questions just listening to the rest of us who do. I hope so, it would be nice to know that we are saying something right and helping the ones who just drop in to read ;)

:lol: in some subjects they are certainly getting a variety of opinions at least.

KaitiUSA Enthusiast

I'm sure quite a few people read the posts but they do not post..I did that for a while(about 2 months) when I joined this site.

I sure hope that they are getting help from the posts.

scotia Newbie

Hi Guys, yes you're right...it takes time once you find this wonderful website to pluck up the courage to post...unless, like some of us, you're fond of the 'sound' of your own voice, or like seeing yourself in print :lol:

I believe a lot of people come into browse and pick up info based on our own experiences and take it away to see how it helps make their own experiences easier to cope with.

If there's one thing I've found, it sure helps to be self effacing, and have a sense of humour.

A friend of mine house sat while I was away for the weekend...

I nearly peed myself, when I found out they'd made a sandwich with the rice bread I bought at the local bakery...(you have to toast it to make it edible), but it does in a pinch.

Imagine this person, getting all the meat, cheese, and fixings, then putting the bread together...and taking a bite....(un toasted...) ha ha ha...

I can imagine the look on their face, as the bread disintegrated in their hands, and they found out two 'important' things, rice bread sucks, and rice bread should be toasted first!

Gotcha!!!

Scotia.

Carriefaith Enthusiast
I can imagine the look on their face, as the bread disintegrated in their hands,
:lol:

it takes time once you find this wonderful website to pluck up the courage to post

It took me about a month or two to finally make a post and then I even came on as an anonymous member once in a while. Oh I was silly. I don't know what I was scared of ;) You guys are great!


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celiac3270 Collaborator

My diagnosis day I just...noticed this site was here, next day I barged right in with my first post. :lol: No fear here...or maybe more fear of not knowing than about the people or the board :) .

mjbonsais Rookie

Some people are more introvered or extroverted as well. Many just want to learn and if they peruse this particular board and gain knowledge then it is doing the job it was intended.

Have a great afternoon!

Mary Jo java script:emoticon(':D')

mytummyhurts Contributor
you're fond of the 'sound' of your own voice, or like seeing yourself in print  :lol:

:D That's me!

I'm pretty shy in real life, but I find it easy to come in here and say stuff because nobody knows me personally.

I think it's exciting so many people have joined. I think the knowledge of celiac is spreading fast! Let's keep it up!

plantime Contributor

I guess I'm extroverted: I was posting my first day on the forum. It is an excellent source for reading and learning!

judy05 Apprentice

Hi,

I post once in a while whenever I think I can help someone (maybe I had the same problem). Although I don't post a lot I still read the forums that I think apply to me. I have really learned a lot, you guys are great!

I just want to add that I think a forum for newbies would be great, you moderators are great about giving the basic info but it wouldn't it be easier to have it all organized for someone new? Just a thought.

  • 3 months later...
paw Apprentice

Hello everyone. I am new. I am still being diagnosed so I don't know if they will call me Celiac or not. I certainly have a lot of symptoms that are consistant. My family doctor and the gastroenterologist both suspect that I have problems with wheat, but no true diagnosis yet. I have been hanging out here and READING everything.

It is a whole new way to live. You have to change where you shop, what you buy, how you cook and on and on and on. Even if I don't get a diagnosis of Celiac, I think I am gluten intolerant at the least. I will be trying it to see if it helps once the tests are done with.

It is not that I don't want to talk to you, it is just that so far I don't have a lot to add to the conversations. :) Thanks for sharing so much helpful information with the newbies.

Rachel--24 Collaborator
My diagnosis day I just...noticed this site was here, next day I barged right in with my first post. :lol: No fear here...or maybe more fear of not knowing than about the people or the board :) .

<{POST_SNAPBACK}>

:lol: Guess I was the same way except I barged in with a ton of questions *before* I got diagnosed....everyone here was great and thank God I learned about Enterolab since my bloodtests were neg. and I was really suffering.

Might seem hard to believe but in real life I'm pretty shy....until you get to know me. :)

FaithInScienceToo Contributor

I, too, spent time just reading before posting - it was enough to try to learn how to be gluten-free...

But, now I mostly just try to be supportive, and share what I can -

I have had A LOT of time on my hands in the past month or so, as I have been recovering from some serious surgery.

I go back to my old schedule this coming week, so won't be posting as often, but I will make it a point to come here weekly to read new posts I feel might help me further understand this disease AND to 'pay it back' by adding my support/sharing my knowledge with others.

In real life, I am an extrovert, so posting was never/is never threatening to me - if anyone knows anything about the "Kiersey Temperament Sorter," I am an ENFP - the most likely of his 16 personality types to be on here, encouraging others ;-) It's a GREAT personality test - you can find it in "Please Understand Me, II" - by David Kiersey, plus tons of information about each personaity type :)

(Available in paperback, at your nearest on-line bookseller...)

Anyway...besides my being an extrovert and bookaholic...

I am truly thankful for all those members who summon up the courage to share and care, even if YOUR personality type doesn't make that as easy for you as it has been for me.

LOVE, Gina

ianm Apprentice

It is pretty typical for online forums to have lots of members but only a handful that post. I jumped right in but I also believe very strongly that everyone does have a right to my opinion. :lol::lol:

sonjaf Rookie

Here's my two cents worth: I have been reading this site since I found out I had celiac disease in March 05. I have also been spending A LOT of time trying to figure out what to eat! It's been really hard, since I had to change my entire lifestyle and eating habits. So, most of the time I have to spend browsing the internet, I was on websites shopping for food and restaurants that I could enjoy. Now that I have a handle on things, I am concentrating on not "glutening" myself!

Thank you to all the old and new members that post such helpful advise. Sad thing is that there are so many of us out there, and still everytime I tell someone I have celiac disease they have no idea what I am talking about. I wish the media would do more to educate the public about food allergies and intolerance. One of my sons is allergic to peanuts, eggs and milk, and I have had to educate our entire family, his school and friends, and everyone else he meets about his dietary needs. (Thankfully, both sons are negative for celiac disease!!! Thank God for hugh miracles). :rolleyes:

SonjaF

tonyevans Newbie

I've been involved in a variety of lists from about 1992 and been moderator of a few. It has always been my experience that there are a very high perentage of Lurkers on any list.

Most are just content to read the posts that interest or affect them, many get their answers that way without needing to ask a question.

As long as people can get sound advice that way the list serves.

Just my 2c

Tony E

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    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
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