Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems With Coffee?


waterlily-

Recommended Posts

waterlily- Explorer

I haven't been drinking coffee for the past few months because I felt sick from it. It's not flavored or anything, just regular cheap coffee, with milk and sugar. Lately I've tried drinking it again and I get EXTREMELY bad gas pains to the point where I can't move or breathe and I still have that sick feeling in the pit of my stomach. Is this gluten related or what? Does anyone else have this problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

coffee can be a HUGE irritant to the intestines (for some people). im addicted to it now- and cant go to the bathroom without it. but when i first started drinking it- (or if i overdo it in one day)- i get MAJOR "D"... and pain.

i also get queasy if i overdo it.

so, the coffee could be irritating you- or even the milk in it. i THINK the only possibility of glutening is if you got a "flavored" coffee... or if someone crosscontaminated your cup or pot.

luvs2eat Collaborator

Going gluten free wasn't too hard. Having to eliminate dairy was REALLY hard. I've learned to drink my coffee black. If I had to give up coffee... I think I'd really have to take the gas pipe!!

I put my coffee into a travel cup for a few weeks so I couldn't see it... that's how I went from coffee w/ milk to black coffee.

I'm so sorry you can't drink coffee. Maybe switching to tea might be better?

dilettantesteph Collaborator

I had problems with coffee (instant). I'm very sensitive. I found that if I get organic beans and wash them with soap and rinse well, I don't get sick. I'm not sure if all that is necessary. I didn't try it without.

cassP Contributor

I had problems with coffee (instant). I'm very sensitive. I found that if I get organic beans and wash them with soap and rinse well, I don't get sick. I'm not sure if all that is necessary. I didn't try it without.

i had heard that the instant coffee had traces of gluten..??

Lisa Mentor

Maybe it's not the coffee, but the milk in your coffee. Dairy can have a "gluten-like" effect on some, until healing can take place.

burdee Enthusiast

Caffeine is one of the substances which can relax esophageal sphincter and cause reflux. So anyone with heartburn, reflux, etc. may want to substitute herbal teas. Even decaf coffee has enough caffeine to exacerbate heartburn for some people.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Coffee is a pretty major GI irritant. Before I healed there were times I had to switch to tea for a while.

I've read posts where some people have had trouble with ground coffee. It's hard to know why - the best guess is that some flavors have gluten in them and it gets on the grinder. Can you buy whole beans and grind them yourself? Also go for a darker roast, as it's less acidic.

If three is a Peet's in your area, there is no gluten in any of their coffees so you can get a cup to see whether it's the coffee or hidden gluten. Not sure I'd trust Starbuck's for a really thorough test as they keep doing weird corporate "wiggle" language about gluten.

waterlily- Explorer

I can see how it would irritate the gut because it's healing. But, how would the dairy affect it when you mix it in the coffee? And how could I drink it before I went gluten-free?

What if I ground my own coffee, would that make a difference?

About milk, most kinds of milk you buy like in Walmart (for a universal example) makes me sick. I'm guessing it has something to do with the processing it goes through, I don't know. The milk I can drink by the cup fulls is Fieldcrest brand. (not sure if you can only get this here in Florida but I thought I'd put that out there) So I can't see how the dairy could be affecting me when I can eat dairy products fine if they're from certain brands. Why this is I have no idea.

Skylark Collaborator

If you could drink it before, I'd try grinding your own coffee from a known gluten-free brand like Peet's. Coffee tastes better freshly ground anyway. :)

As for the milk, is Fieldcrest antibiotic or hormone free? Some people aren't sensitive to the milk itself, but to the antibiotics in it. Cows on hormones tend to be sicker and given more antibiotics. You might try other kinds of organic dairy.

grainfree Newbie

I haven't been drinking coffee for the past few months because I felt sick from it. It's not flavored or anything, just regular cheap coffee, with milk and sugar. Lately I've tried drinking it again and I get EXTREMELY bad gas pains to the point where I can't move or breathe and I still have that sick feeling in the pit of my stomach. Is this gluten related or what? Does anyone else have this problem?

Welcome. Yes, I did, after switching to a cheaper brand of ground coffee. I took this to mean that I should decrease my coffee consumption and have subsequently increased my water intake (to about 2 liters per day) and find the craving for coffee dissipating. I have also heard about gluten in instant coffee. As Lisa has posted about dairy being the problem; many of my GI upsets vanished when I eliminated dairy from my diet.

The good news, waterlily, is that the gluten free diet will lead to a healthier diet overall. After almost one year gluten free (with two accidental glutenings, one of them from flavored coffee, the other from a crouton) I find that my diet is very much the same as pre gluten free (same likes and dislikes of foods) with only the need to eliminate certain food items. Your body will adjust. Hope the additional information helped. Please seek additional advice should you need to; a beverage should not cause you to not breathe. Be well, and all the best.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748

    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.