Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Think I Just Added Dh To My Symptoms

SGWhiskers

By SGWhiskers
in Coping with Celiac Disease

Recommended Posts

SGWhiskers Collaborator
SGWhiskers
Posted

As if I needed more frustration right now. This is the second time in my pregnancy that I've been cross contaminated. I'm still in the midst of feeling like mud and now I'm itching. Last time I was glutened, I got 2 little itchy bumps inside my elbow. I figured they were nothing and would go away. A month later, they hadn't and I started to wonder about them. Then the gluten in the split peas or something else. Now there are 15 itchies in that elbow and the other arm is itching up a storm without spots yet. I'm frustrated, headachy, tired, itchy, pregnant, cranky and afraid to eat anything since I aparently got glutened on food I thought was safe. Grrrr. If it is DH, is it worth a biopsy? If it is DH how long will it take to fade if I don't get glutened again? Is it OK to itch it, or will that make it worse or scar worse?

Good night from Ms. Cranky Pants.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

Hi, I just wanted to mention that often those with DH are of the very sensitive to gluten celiacs.

dilettantesteph Collaborator
dilettantesteph
Posted

My son has DH (13 years old). He gets it from things that I eat and don't seem to react to. I listen to his DH though and stop eating those things. I'm very sensitive and he is more so. It seems like when he eliminates the thing with gluten in it his DH starts improving by the next day. By about 3 days it is gone. It seems to show up the next day after he eats something contaminated. I hope that you can figure out what it is. The last time we found that we had to wash and peel our peaches and not just wash them. Things like that are really hard to figure out and seem totally crazy. It took a long while for us to consider something like that.

cassP Contributor
cassP
Posted

i dont know enough about it, and i think for the first time i have some on my stomach.

from other posts ive seen on here- i THINK it's possible to still have the DH for some time even after going gluten free- is that true??

curiousgirl Contributor
curiousgirl
Posted

We need a list of acronyms and what they stand for...please? What the heck is DH?

Sometimes I think I know what CC is, but then I read it in another post that seems to be using it for a different reason....

D = Diarrhea

CC = Cross Contamination?

DH = ??

Etc.

Etc.

Etc.

Charlie's Girl Apprentice
Charlie's Girl
Posted

Ohh Poor Baby Miss Cranky Pants. This is all so annoying at times, isn't it? I feel for you Momma.

(I've got a raging "atypical dermatitis"- or some such BS diagnosis- and it is just awful)

Perhaps you could use a little mind over matter. I have read posts here where people write about how much BETTER they felt when pregnant. Start a thread asking for everyone's GREAT experiences with symptoms disappearing when they were pregnant- might be uplifting???? Maybe? :unsure:

Come on everyone- let's think good thoughts for SGWhiskers to have an easy and effortless pregnancy and delivery!

lovegrov Collaborator
lovegrov
Posted

Why would you get tested for DH unless you are thinking about taking dapsone?

As for acronyms, CC is cross contamination and DH is dermatitis herpetiformis, which is essentially a skin version of celiac.

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

We need a list of acronyms and what they stand for...please? What the heck is DH?

Sometimes I think I know what CC is, but then I read it in another post that seems to be using it for a different reason....

D = Diarrhea

CC = Cross Contamination?

DH = ??

Etc.

Etc.

Etc.

D is diarrhea, CC cross contamination, DH can be either the skin form of celiac or can stand for dear husband, DD is dear daughter, DS dear son, C is constipation, IMHO is in my humble opinion, hope this helps.

curiousgirl Contributor
curiousgirl
Posted

D is diarrhea, CC cross contamination, DH can be either the skin form of celiac or can stand for dear husband, DD is dear daughter, DS dear son, C is constipation, IMHO is in my humble opinion, hope this helps.

Thank you! How many more can we come up with??

RX = prescription

DX = diagnosis

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748
    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...