Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Crying Out Loud

Aphreal

By Aphreal
in Coping with Celiac Disease

Recommended Posts

Aphreal Contributor
Aphreal
Posted

If one more person asks "well, what DO you eat then?" UGH!

Secondly I had my colonoscopy. Couple of spots, waiting on biopsy results.

Thirdly, I had some knarly oral surgery yesterday so now I hurt, I can hardly open my mouth and since I had work on both sides, I have nowhere to chew really. I am doped on vicodin so I cant drive and the kids are being... well kids.

Then my cycle started 3 days early

I can't catch a break!

Changed my antispasmotic and probiotic. Trying to keep the constipation at bay. Trying to bring my blood pressure down but yesterday at the surgeons office it was 145/104. I knew I would be put to sleep and Im on BP meds so why it was so high, I don't know.

*sigh* thanks for listening.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RachelisFacebook Apprentice
RachelisFacebook
Posted

Awe. Someone needs a hug!! :wub:

I understand completely about the "What DO you eat?" question. I know its because they care, but there are people out there who have it far worse than I do. I'm going to Thanksgiving at my best friend's house (I'm in college in TN, and my family is in PA, so going home isn't quite an option), and its harder on me than I think them. But I know its because they're concerned and don't want me getting sick.

:wub:

tehjrow Rookie
tehjrow
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

i-geek Rookie
i-geek
Posted

*hugs* Sorry you're having such a rough go.

You need a smart-a$$ answer for the "what DO you eat?" question. You could always respond thusly (with a big smile on your face and a cheerful voice): "Puppies! They're gluten-free."

Aphreal Contributor
Aphreal
Posted
  • Author

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

What the heck? I am SO sorry. That is horrible!! Stress is a big trigger for my symptoms and that would take me over the edge. I really am sorry, lifting you up for strength.

Thank you all for the encouragement. I knew I could come here. I think I am having cramping from a spot in my bowel where maybe she had a problem with the scope. Its a sharp pain. blah. hope it goes away.

Aphreal Contributor
Aphreal
Posted
  • Author

*hugs* Sorry you're having such a rough go.

You need a smart-a$$ answer for the "what DO you eat?" question. You could always respond thusly (with a big smile on your face and a cheerful voice): "Puppies! They're gluten-free."

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

ravenwoodglass Mentor
ravenwoodglass
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

((((((((((((hugs))))))))))))))))))

I'm sorry you have to go through that. Just went through a divorce myself, it isn't easy.

Hope you get over the glutening soon.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

:D:D:D

That would be a great reply.

I hope your mouth heals quickly. Dental stuff is no fun. Relax as much as you can and hopefully you have lots of yummy liquid and mooshy stuff on hand.

Aphreal Contributor
Aphreal
Posted
  • Author

Ive had to lay off anything crunchy because of dental issues for like a month. He extracted the biggest of the problems so when I DO heal, I hope I can go back to my carrots and gluten-free crackers.

xox

Another quip..

So what DO you eat? "Well.... I used to have 4 children"

BWAAHAHAHAAHA! *sigh*

tarnalberry Community Regular
tarnalberry
Posted

I like the "overwhelm them with the obvious" answer to "what do you eat", especially when I say I'm gluten and dairy free, and have had to eliminate a number of things for my baby's reflux.

"Oh, you know. Chicken, fish, beef, pork, eggs, carrots, zucchini, peas, bean sprouts, bananas, apples, oranges, pears, mangos, avocado, rice, corn, quinoa, millet, lentils, beans..."

(by the time I get this far, whoever asked the question is usually doing some sort of "ok, ok... I get the picture, you can stop now". and they usually look a little shamefaced for asking. :P )

i-geek Rookie
i-geek
Posted

HA! Lets all come up with a quip for the question.

hmmm.... *what DO you eat?*, "How do you think we keep our rodent problem under control?" :P

Hee... "what DO you eat?" "Oh, cardboard, tree bark, mushrooms I find in the yard- sometimes things go funny colors when I eat those..."

i-geek Rookie
i-geek
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

It can only go up from here, RIGHT??

Oh no. So sorry to hear that you're also having a rough go. :(

Aphreal Contributor
Aphreal
Posted
  • Author

Hee... "what DO you eat?" "Oh, cardboard, tree bark, mushrooms I find in the yard- sometimes things go funny colors when I eat those..."

HAHAHA I hope you have flowers in your hair when you are able to use that one.:)

Aphreal Contributor
Aphreal
Posted
  • Author

I like the "overwhelm them with the obvious" answer to "what do you eat", especially when I say I'm gluten and dairy free, and have had to eliminate a number of things for my baby's reflux.

"Oh, you know. Chicken, fish, beef, pork, eggs, carrots, zucchini, peas, bean sprouts, bananas, apples, oranges, pears, mangos, avocado, rice, corn, quinoa, millet, lentils, beans..."

(by the time I get this far, whoever asked the question is usually doing some sort of "ok, ok... I get the picture, you can stop now". and they usually look a little shamefaced for asking. :P )

From one Tiff to another, I am hankerin for some chocolate. Oh and I love the idea of listing everything in nauseating detail.... and keep talking if they try to walk away. I mean they DID ask, right? :)

notme Experienced
notme
Posted

haha - on my first gluten-free trip out of town i brought my own breakfast: honey nut chex. and my own dish and spoon. so, in a big crowd of people in our hotel room i am munching away while everybody is discussing what i can and cannot eat. (my first "feed the freak" experience) i get done eating and take the bowl to wash it out and promptly drop it into the sink where it shatters into a million pieces. so now when anybody asks me what i can eat i tell them, "honey nut chex and broken glass" they usually shaddup after that :D:D:D

Jestgar Rising Star
Jestgar
Posted

I hear ya, i'm having a bad day also.

Got glutened a few days ago, still fighting diarrhea and found out last night my wife is divorcing me.

WTF?? She's so not good enough for you.

Dellers Apprentice
Dellers
Posted

Big huggs we all have bad days then mother nature decides to kick us while we are down.

GFinDC Veteran
GFinDC
Posted

@tehjrow

Sorry tehjrow, that's a hard one to take. I got's 2 ex's myself. I talk to one on a fairly regular basis. She got re-married, to a stupid brain surgeon, why the heck would she want that? Silly 'ooman. But what the hey, life goes on and they are a happy family and I am happy for them. Took me a while to get over it though. We went to a mediator rather than lawyers. Might help in your case I don't know. Mediators can help both sides through the process, versus lawyers being a one sided, kind of adversarial thing.

@Apreal

Ya'al with your what do I eat lines are reminding me of the dead baby jokes. Ewww!

I heard yesterday that a tornado hit the little burg 2 of my sisters live in, The Plains, Ohio. Both of them are ok and their homes are barely scratched. Thank god for sparing them!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.