Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 11 Year Old Was Glutened For The First Time


sahm-i-am

Recommended Posts

sahm-i-am Apprentice

When I was diagnosed with Celiac I had my daughters tested. Both bloodworks came back negative but my younger daughter wanted to try gluten free to see if it cleared up her GI issues. I am not ready to go through a biopsy with her and a gluten-free diet was the answer anyway so why not? So, she has been voluntarily gluten free for 4 months and feeling much, much better. Yesterday we were at a local farm and they were giving away ice cream. She asked about the cone (good girl!) but didn't think to ask about the lemon ice cream (awww!). I wondered out loud when I saw her eating it but most was gone. 3 hours later poor little thing was feeling it! :( It didn't last long but she had a strong reaction, which confirms her decision to be gluten-free. It is interesting because her reaction to gluten was SO much stronger than mine (I get mild heartburn) and I'm the one with all the positive bloodwork and lazy villi!! Go figure!

I have a question for you experienced GFers - would sudden consumption of gluten cause a reaction in all people that ate a gluten-free diet, regardless of diagnosis of celiac disease or GS/GI? Do you think perhaps that gluten can cause a reaction in everyone if they went gluten-free for a while? Just wondering, curious if it is toxic to all, not just us. And I do think my daughter has GI because of all her digestive issues, but wondering if so many people's bodies are 'addicted' to gluten.

Thanks for listening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I have a question for you experienced GFers - would sudden consumption of gluten cause a reaction in all people that ate a gluten-free diet, regardless of diagnosis of celiac disease or GS/GI? Do you think perhaps that gluten can cause a reaction in everyone if they went gluten-free for a while?

Thanks for listening!

No gluten will not cause a reaction in those who are not intolerant of it. If people reacted to food just because they hadn't eaten it in a while we would react to a lot of stuff we only have on holidays or seasonally. People who are not intolerant to gluten can add it in and out all they want with no reaction. That is the reason why eliminating gluten and then challenging with it is a good diagnostic for gluten reactions.

cassP Contributor

i agree with Ravenwood! i do NOT think everyone on a gluten-free diet would react to being glutened.

i do think with 30% of the population carrying DQ genes- that it is POSSIBLE for 30% of the population to be sensitive to gluten... with a subset of that group being intolerant or celiac.

i think there's even more than 30% who might have sensitivities to Wheat Germ Agglutin and other grains, etc..

im very impressed with your daughter- deciding she wanted to try the diet anyways!

also- i think its very possible that she had a reaction because of the dairy..???

and again- i agree with RW-> there's a misconception out there about allergies & intolerances... and that if we havent had something in awhile- then we just need to desensitize to it. there are certain foods that i never even tried till i was almost 30- and i never reacted to them

T.H. Community Regular

Don't believe it causes that reaction in people with no gluten issue, nope. I can say that I've seen no issue with my husband. Our house is gluten free, so he's been gluten free with the rest of us who HAVE to be. When I was making him lunch for work, he didn't get gluten for maybe 3 months straight. Then I stopped for a couple weeks and he had gluten during lunch with no issues at all, you know?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,122
    • Most Online (within 30 mins)
      7,748

    Sarer
    Newest Member
    Sarer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.