Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Difficult Mornings


JDH

Recommended Posts

JDH Newbie

Good evening! I just learned last week that I have Celiac Disease and am in the process of completely rehauling my diet. Wondering if anybody else feels especially bad in the mornings? I wake up with my stomach feeling full, and often vomit (which may also be caused by my recently diagnosed severe allergies, per my Allergist). It's just tough to get going in the morning and I have no appetite. It's managable on days that I am not working, but terrible on days that I do work. I have no interest in food in the am (which is a new thing for me...have always been a good breakfast eater), but by late morning I'm feeling weak and lethargic. Mid to late afternoons I just want to lie down, and at times nap when I can. Then, I get a surge of energy in the early to late evening.

Anybody struggle with this? If so, any suggestions for food choices in the am that I can take to work and eat slowly?

This is a whole new world! I have so much to learn!! Thanks for any input that you may have!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



butterfl8 Rookie

Welcome to the forums! I don't know that I have any input, but I know others will ask this, so I'll start the ball rolling. . .

What are you eating for dinner the night before? Are you keeping a food journal? Are there any medications you are taking at night--and have you had those checked by your pharmacist to be sure they are safe? Any lotions or creams that you use at night or first thing in the morning? Toothpaste?

Sorry for all the questions, but it helps the detectives around here. :P We will help you find out what is happening!

Food suggestions for work? Someone on another thread posted a breakfast of an apple with peanut butter and a touch of honey and cinnamon. That sounds good to me!

-Daisy

MelindaLee Contributor

Good evening! I just learned last week that I have Celiac Disease and am in the process of completely rehauling my diet. Wondering if anybody else feels especially bad in the mornings? I wake up with my stomach feeling full, and often vomit (which may also be caused by my recently diagnosed severe allergies, per my Allergist). It's just tough to get going in the morning and I have no appetite. It's managable on days that I am not working, but terrible on days that I do work. I have no interest in food in the am (which is a new thing for me...have always been a good breakfast eater), but by late morning I'm feeling weak and lethargic. Mid to late afternoons I just want to lie down, and at times nap when I can. Then, I get a surge of energy in the early to late evening.

Anybody struggle with this? If so, any suggestions for food choices in the am that I can take to work and eat slowly?

This is a whole new world! I have so much to learn!! Thanks for any input that you may have!!

Sounds like you have a confirmed case of being allergic to work :D Just Kidding....more seriously here....are you eating protiens the night before? It reminds me of when I was pregnant. If I ate protiens in the evening...before bed, I was less nauseous the next day. I'm not sure about your other symptoms as I am new too. I found Kind bars, and really love them. Or, how about nuts and dried fruit to snack on. I found the Free Waffles from Van's to be pretty light. I just spread a little peanut butter on them for breakfast. Or, how about fruit and yogurt. All yoplait are gluten-free. Good luck hope you feel better soon! :rolleyes:

Looking for answers Contributor

You could also have adrenal fatigue and low cortisol in the mornings = no desire to eat and low energy. You may want to ask you doctor to run some tests. This often correlates with Celiac Disease and other food intolerances as they put a great deal of stress on the body. One sure sign of adrenal fatigue is no energy in the morning and then energy in the late afternoon at night. Other symptoms COULD include dizziness upon standing, frequent urination, not wakign up feeling rested, hormonal imbalances (secondary thyroid problems), not having endurance, not handlin stress well, etc. If any of those sound familiar, try googling it and learning more about it.

sandsurfgirl Collaborator

I had bad mornings for months. I'm a stay home mom and I wouldn't make any plans before 11 for a long time. It was so hard to get up and deal with my poor kids who got the short end of my gluten free stick cuz I had nothing left for them.

My biggest problem was dehydration and once the doc pointed it out to me things started to improve. I drank a bottle of Gatorade first thing in the morning and kept sipping water as much as I could to load up on my hydration. I ate fruit and simple things like egg whites or a gluten free pancake.

People on here give me a ration about Gatorade because it's not "natural" but it was life altering for me. I tried the natural electrolytes and every single one of them (over $100 worth) made me sick with explosive D, stomache pain or dizziness, the things I was trying to combat. I still get electrolyte issues once in awhile and I get my trusty Gatorade and I'm fine.

The doc told me that people with autoimmune diseases tend to be dehydrated a lot and it's our number one battle.

And it just might be the healing. It takes awhile for your body to repair all the damage in your intestines and who knows where else. They've only seriously studied intestinal damage to a great extent, but all of us have so many other issues so we know other organs and our brains are compromised. I think there are brain studies, but I don't think it's a big focus like the intestines have been which is too bad because the neuro effects of celiac are widespread.

tarnalberry Community Regular

I would also suggest looking at how you're eating the night before. I used to have hypoglycemic episodes most mornings (not diabetic, but reactive hypoglycemia). It makes sense, your body is going for a really long time without food. If I started that process with a meal that would cause my blood sugar to go up quickly and then fall dramatically... well, that just made things worse.

For me, the key is not just eating a well balanced dinner, but keeping my meals well balanced between fat/protein/carbs ALL day. (For me, that's something between 25/25/50 and 30/30/40.) If I do that, I can pretty much get to never having hypoglycemic episodes, even if I go six or eight (or when sleeping and dealing with the baby, twelve) hours between eating.

(One of the "symptoms" with reactive hypoglycemia is that you might not feel hungry. Basically, you go from doing ok to feeling like crap, and skip the getting hungry bit. Sometimes, that means 'forcing' yourself to eat something in the morning.)

curiousgirl Contributor

Wow! What a way to start the day! Sorry to hear that.

I'm pretty new to Celiac as well (May 2010) and sometimes feel silly or not knowledgeable enough to post anything but my questions.

But, I do have a little experience to share. I didn't realize how important the "little" things are; like shampoo, face cleanser, toothpaste, cooking utensils, pots and pans. I've switched to better choices now. Except for my toaster oven...haven't changed that out yet and wondering if that could be a problem...even though I've cleaned and it's been so long????? Anyone?????

Tho, I'm still feeling symptoms I'm questioning now whether it's gluten bothering me or other allergies. And, I understand that once you've eliminated gluten from your diet, other allergies will pop up.

So, I hope that little bit of info will help you in your beginning attempts to "overhaul" your life....and I do mean your LIFE!

All the investigators, inspectors, detectives, and "doctors" that post on this site are very supportive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

I did not start improving greatly until I got rid of all the shampoos, etc that contain wheat. It runs down your face in the shower, gets on your hands and is just darn hard to keep out of your mouth.

kitgordon Explorer

Dry Rice Chex might be a good thing to bring to work and nibble on - easy on the stomach. Or some gluten free crackers. Then if that stays down, maybe some yogurt or fruit? Ginger ale. Eating little bits throughout the morning might stabilize your blood sugar. Good luck!

quincy Contributor

Good evening! I just learned last week that I have Celiac Disease and am in the process of completely rehauling my diet. Wondering if anybody else feels especially bad in the mornings? I wake up with my stomach feeling full, and often vomit (which may also be caused by my recently diagnosed severe allergies, per my Allergist). It's just tough to get going in the morning and I have no appetite. It's managable on days that I am not working, but terrible on days that I do work. I have no interest in food in the am (which is a new thing for me...have always been a good breakfast eater), but by late morning I'm feeling weak and lethargic. Mid to late afternoons I just want to lie down, and at times nap when I can. Then, I get a surge of energy in the early to late evening.

Anybody struggle with this? If so, any suggestions for food choices in the am that I can take to work and eat slowly?

This is a whole new world! I have so much to learn!! Thanks for any input that you may have!!

I was dx'd in April and mornings were the WORST!! I also went from having a good appetite in the am to nausea and not really wanting to eat until after noon. I had to finally break down and take klonapin, which in addition to calming the awful anxiety I was having, it got rid of the nausea and brought my appetite right back. gosh, it was just a few months ago that I went through what you are going through, and it is amazing how far I have improved since then and its only been 5 mos. so take heart from my experience, you WILL improve but it will take a few mos of struggle and sheer will.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,420
    • Most Online (within 30 mins)
      7,748

    maggie23
    Newest Member
    maggie23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.