Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Difficult Mornings

JDH

By JDH
in Coping with Celiac Disease

Recommended Posts

JDH Newbie
JDH
Posted

Good evening! I just learned last week that I have Celiac Disease and am in the process of completely rehauling my diet. Wondering if anybody else feels especially bad in the mornings? I wake up with my stomach feeling full, and often vomit (which may also be caused by my recently diagnosed severe allergies, per my Allergist). It's just tough to get going in the morning and I have no appetite. It's managable on days that I am not working, but terrible on days that I do work. I have no interest in food in the am (which is a new thing for me...have always been a good breakfast eater), but by late morning I'm feeling weak and lethargic. Mid to late afternoons I just want to lie down, and at times nap when I can. Then, I get a surge of energy in the early to late evening.

Anybody struggle with this? If so, any suggestions for food choices in the am that I can take to work and eat slowly?

This is a whole new world! I have so much to learn!! Thanks for any input that you may have!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


butterfl8 Rookie
butterfl8
Posted

Welcome to the forums! I don't know that I have any input, but I know others will ask this, so I'll start the ball rolling. . .

What are you eating for dinner the night before? Are you keeping a food journal? Are there any medications you are taking at night--and have you had those checked by your pharmacist to be sure they are safe? Any lotions or creams that you use at night or first thing in the morning? Toothpaste?

Sorry for all the questions, but it helps the detectives around here. :P We will help you find out what is happening!

Food suggestions for work? Someone on another thread posted a breakfast of an apple with peanut butter and a touch of honey and cinnamon. That sounds good to me!

-Daisy

MelindaLee Contributor
MelindaLee
Posted

Good evening! I just learned last week that I have Celiac Disease and am in the process of completely rehauling my diet. Wondering if anybody else feels especially bad in the mornings? I wake up with my stomach feeling full, and often vomit (which may also be caused by my recently diagnosed severe allergies, per my Allergist). It's just tough to get going in the morning and I have no appetite. It's managable on days that I am not working, but terrible on days that I do work. I have no interest in food in the am (which is a new thing for me...have always been a good breakfast eater), but by late morning I'm feeling weak and lethargic. Mid to late afternoons I just want to lie down, and at times nap when I can. Then, I get a surge of energy in the early to late evening.

Anybody struggle with this? If so, any suggestions for food choices in the am that I can take to work and eat slowly?

This is a whole new world! I have so much to learn!! Thanks for any input that you may have!!

Sounds like you have a confirmed case of being allergic to work :D Just Kidding....more seriously here....are you eating protiens the night before? It reminds me of when I was pregnant. If I ate protiens in the evening...before bed, I was less nauseous the next day. I'm not sure about your other symptoms as I am new too. I found Kind bars, and really love them. Or, how about nuts and dried fruit to snack on. I found the Free Waffles from Van's to be pretty light. I just spread a little peanut butter on them for breakfast. Or, how about fruit and yogurt. All yoplait are gluten-free. Good luck hope you feel better soon! :rolleyes:

Looking for answers Contributor
Looking for answers
Posted

You could also have adrenal fatigue and low cortisol in the mornings = no desire to eat and low energy. You may want to ask you doctor to run some tests. This often correlates with Celiac Disease and other food intolerances as they put a great deal of stress on the body. One sure sign of adrenal fatigue is no energy in the morning and then energy in the late afternoon at night. Other symptoms COULD include dizziness upon standing, frequent urination, not wakign up feeling rested, hormonal imbalances (secondary thyroid problems), not having endurance, not handlin stress well, etc. If any of those sound familiar, try googling it and learning more about it.

sandsurfgirl Collaborator
sandsurfgirl
Posted

I had bad mornings for months. I'm a stay home mom and I wouldn't make any plans before 11 for a long time. It was so hard to get up and deal with my poor kids who got the short end of my gluten free stick cuz I had nothing left for them.

My biggest problem was dehydration and once the doc pointed it out to me things started to improve. I drank a bottle of Gatorade first thing in the morning and kept sipping water as much as I could to load up on my hydration. I ate fruit and simple things like egg whites or a gluten free pancake.

People on here give me a ration about Gatorade because it's not "natural" but it was life altering for me. I tried the natural electrolytes and every single one of them (over $100 worth) made me sick with explosive D, stomache pain or dizziness, the things I was trying to combat. I still get electrolyte issues once in awhile and I get my trusty Gatorade and I'm fine.

The doc told me that people with autoimmune diseases tend to be dehydrated a lot and it's our number one battle.

And it just might be the healing. It takes awhile for your body to repair all the damage in your intestines and who knows where else. They've only seriously studied intestinal damage to a great extent, but all of us have so many other issues so we know other organs and our brains are compromised. I think there are brain studies, but I don't think it's a big focus like the intestines have been which is too bad because the neuro effects of celiac are widespread.

tarnalberry Community Regular
tarnalberry
Posted

I would also suggest looking at how you're eating the night before. I used to have hypoglycemic episodes most mornings (not diabetic, but reactive hypoglycemia). It makes sense, your body is going for a really long time without food. If I started that process with a meal that would cause my blood sugar to go up quickly and then fall dramatically... well, that just made things worse.

For me, the key is not just eating a well balanced dinner, but keeping my meals well balanced between fat/protein/carbs ALL day. (For me, that's something between 25/25/50 and 30/30/40.) If I do that, I can pretty much get to never having hypoglycemic episodes, even if I go six or eight (or when sleeping and dealing with the baby, twelve) hours between eating.

(One of the "symptoms" with reactive hypoglycemia is that you might not feel hungry. Basically, you go from doing ok to feeling like crap, and skip the getting hungry bit. Sometimes, that means 'forcing' yourself to eat something in the morning.)

curiousgirl Contributor
curiousgirl
Posted

Wow! What a way to start the day! Sorry to hear that.

I'm pretty new to Celiac as well (May 2010) and sometimes feel silly or not knowledgeable enough to post anything but my questions.

But, I do have a little experience to share. I didn't realize how important the "little" things are; like shampoo, face cleanser, toothpaste, cooking utensils, pots and pans. I've switched to better choices now. Except for my toaster oven...haven't changed that out yet and wondering if that could be a problem...even though I've cleaned and it's been so long????? Anyone?????

Tho, I'm still feeling symptoms I'm questioning now whether it's gluten bothering me or other allergies. And, I understand that once you've eliminated gluten from your diet, other allergies will pop up.

So, I hope that little bit of info will help you in your beginning attempts to "overhaul" your life....and I do mean your LIFE!

All the investigators, inspectors, detectives, and "doctors" that post on this site are very supportive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sandsurfgirl Collaborator
sandsurfgirl
Posted

I did not start improving greatly until I got rid of all the shampoos, etc that contain wheat. It runs down your face in the shower, gets on your hands and is just darn hard to keep out of your mouth.

kitgordon Explorer
kitgordon
Posted

Dry Rice Chex might be a good thing to bring to work and nibble on - easy on the stomach. Or some gluten free crackers. Then if that stays down, maybe some yogurt or fruit? Ginger ale. Eating little bits throughout the morning might stabilize your blood sugar. Good luck!

quincy Contributor
quincy
Posted

Good evening! I just learned last week that I have Celiac Disease and am in the process of completely rehauling my diet. Wondering if anybody else feels especially bad in the mornings? I wake up with my stomach feeling full, and often vomit (which may also be caused by my recently diagnosed severe allergies, per my Allergist). It's just tough to get going in the morning and I have no appetite. It's managable on days that I am not working, but terrible on days that I do work. I have no interest in food in the am (which is a new thing for me...have always been a good breakfast eater), but by late morning I'm feeling weak and lethargic. Mid to late afternoons I just want to lie down, and at times nap when I can. Then, I get a surge of energy in the early to late evening.

Anybody struggle with this? If so, any suggestions for food choices in the am that I can take to work and eat slowly?

This is a whole new world! I have so much to learn!! Thanks for any input that you may have!!

I was dx'd in April and mornings were the WORST!! I also went from having a good appetite in the am to nausea and not really wanting to eat until after noon. I had to finally break down and take klonapin, which in addition to calming the awful anxiety I was having, it got rid of the nausea and brought my appetite right back. gosh, it was just a few months ago that I went through what you are going through, and it is amazing how far I have improved since then and its only been 5 mos. so take heart from my experience, you WILL improve but it will take a few mos of struggle and sheer will.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to bui...
    2. Scott Adams
      - Scott Adams replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Fruits & Veggies

      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate...
    3. Scott Adams
      - Scott Adams replied to yellowstone's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Cold/flu or gluten poisoning?

      Your satiation is challenging and a common dilemma for those with celiac disease or non-celiac gluten sensitivity: distinguishing between a routine viral illness and a reaction to gluten exposure. The overlap in symptoms—fatigue, malaise, body aches, and general inflammation—makes it nearly impossible to tell them apart in the moment, especially with a h...
    4. Scott Adams
      - Scott Adams replied to hjayne19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Screening

      Your situation highlights a difficult but critical crossroads in celiac diagnosis. While your positive blood test (a high TTG-IgA of 66.6) and dramatic improvement on a gluten-free diet strongly point to celiac disease, the gastroenterologist is following the formal protocol which requires an endoscopy/biopsy for official confirmation. This confirmation is...
    5. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Related Issues & Disorders
      2

      New issue

      Your experience of being medically dismissed for decades, despite a clear celiac diagnosis since 1994, is unacceptable. It is a tragic common thread in our community that the systemic failure to understand celiac disease leads to a cascade of other diagnoses—like SIBO, IBS, depression, and now the investigation of MS or meningioma—while the core autoimmune con...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,092
    • Most Online (within 30 mins)
      7,748
    LVanderbeck12
    Newest Member
    LVanderbeck12
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      heaps of hope!

      By Scott Adams · Posted

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      Fruits & Veggies

      By Scott Adams · Posted

      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
    • Scott Adams
      Cold/flu or gluten poisoning?

      By Scott Adams · Posted

      Your satiation is challenging and a common dilemma for those with celiac disease or non-celiac gluten sensitivity: distinguishing between a routine viral illness and a reaction to gluten exposure. The overlap in symptoms—fatigue, malaise, body aches, and general inflammation—makes it nearly impossible to tell them apart in the moment, especially with a hypersensitive system. This ambiguity is a significant source of anxiety. The key differentiator often lies in the symptom pattern and accompanying signs: gluten reactions frequently include distinct digestive upset (bloating, diarrhea), neurological symptoms like "brain fog," or a specific rash (dermatitis herpetiformis), and they persist without the respiratory symptoms (runny nose, sore throat) typical of a cold. Tracking your symptoms meticulously after any exposure and during illnesses can help identify your personal patterns. Ultimately, your experience underscores the reality that for a sensitive body, any immune stressor—be it gluten or a virus—can trigger a severe and similar inflammatory cascade, making vigilant management of your diet all the more critical. Have you had a blood panel done for celiac disease? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Celiac Screening

      By Scott Adams · Posted

      Your situation highlights a difficult but critical crossroads in celiac diagnosis. While your positive blood test (a high TTG-IgA of 66.6) and dramatic improvement on a gluten-free diet strongly point to celiac disease, the gastroenterologist is following the formal protocol which requires an endoscopy/biopsy for official confirmation. This confirmation is important for your lifelong medical record, can rule out other issues, and is often needed for family screening eligibility. The conflicting advice from your doctors creates understandable anxiety. The challenge, of course, is the "gluten challenge"—reintroducing gluten for 4-6 weeks to make the biopsy accurate. Since your symptoms resolved, this will likely make you feel unwell again. You must weigh the short-term hardship against the long-term certainty of a concrete diagnosis. A key discussion to have with your GI doctor is whether, given your clear serology and clinical response, would be getting a diagnosis without the biopsy.
    • Scott Adams
      New issue

      By Scott Adams · Posted

      Your experience of being medically dismissed for decades, despite a clear celiac diagnosis since 1994, is unacceptable. It is a tragic common thread in our community that the systemic failure to understand celiac disease leads to a cascade of other diagnoses—like SIBO, IBS, depression, and now the investigation of MS or meningioma—while the core autoimmune condition is neglected. The constant, severe flu-like symptoms and new neurological concerns are absolutely valid and warrant serious investigation for connections to celiac-related autoimmunity or complications like refractory disease. It is enraging that you must fight so hard to be heard. While I don't have a medical answer about MS or meningioma links, your instinct is correct: relentless symptoms require a specialist who understands celiac disease beyond the gut. Regarding the California proclamation, it is a symbolic advocacy effort; reaching out to the women mentioned may provide supportive community, but your advocacy with your local representative is the most direct action. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.